Side effects after RP

User

Posted 19 Jun 2019 at 08:11

Excellent results. What was your post op histology?

Ido4

User

Posted 19 Jun 2019 at 08:20

Ido4

Not sure what he said made much sense to me.

Gleason 3+4=7. Something about 40%.

But most importantly Clear Margins and PSA undetectable.

Onwards and Upwards

User

Posted 19 Jun 2019 at 10:42

Congratulations on your successful surgery, and your instructions to ‘act as though the cancer has gone and get on with the rest of your life”, which is exactly what I have done for the past year.

I don’t want to be a damp squib, but before you skip happily off into the sunset, you may or may not care to consult The Memorial Sloane Kettering Hospital prognostication nomogram, where you enter your post-operative results and it comes up with a statistical forecast of the probability of biochemical recurrence (the buggers back!) over different time-lines and the likelihood of surviving this cancer for fifteen years (in my case it’s 98%, by which time I might be dead of something else).

https://www.mskcc.org/nomograms/prostate/post_op

You are quite right that it is normal to have three-monthly post-operative PSA tests, at least for the first year or two. I have had five or six this past year which were all ‘undetectable’, so I have now switched to four-monthly testing for year two. Maybe your surgeon is an extreme optimist, but I have two friends who both now have post-op recurrence, one immediately afterwards, and the other a year later. They both had the top surgeons money can buy (not mine).

Best of luck for the future.

Cheers, John

Edited by member 19 Jun 2019 at 11:01 | Reason: Not specified

User

Posted 19 Jun 2019 at 21:58

Hi I’m 4 weeks ish post RP and slowly starting to control the bladder but still leaking leaking everyday only 4 pads a day but dry at night 👍but in question to the catheter I had it in for a couple of weeks post op but it was very uncomfortable leaking down the side of the tube and had it taken out after 10 days .. the best feeling ever !! A lot of people dread having it removed but I found it absolutely fine ... it’s a bit of a journey but it will get better I also found intsllagel around the tip of the old boy relieved irritation and get a thigh bag sock off Amazon they help as well

all the best for the future

User

Posted 20 Jun 2019 at 05:53

Hi John

Thanks for the comments, I'm sure there are some people on here that would like to know the probability of recurrence, but personally speaking I'd rather ride of into the sunset blind and let mother nature do what's got to be done, than worry about a return.

As you rightly say the grim reaper will more than likely get us with something else before PCa.

Onwards and Upwards

User

Posted 01 Jul 2019 at 06:02

Hi John

My husband had his prostate removed in February. He was doing ok but then got an infection when catheter was removed.

We're 4 months on and he still gets leakage. Worse in pm/eve. How long was it before you were completely ok?

Thanks

Jane

User

Posted 01 Jul 2019 at 09:00

Hi Jane,

We got your message via your own post, no need to duplicate the question.

Best of luck.

Cheers, John.

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