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User
Posted 07 Feb 2020 at 16:46
Hi Exbus, glad the Enzalutamide is doing the trick, Tony's Oncologist wanted him to have that so he could stop the steroids after he had finished his chemo last year but because of his other conditions he couldn't have it so he is on abiraterone and you have to take steroids with that.

regards Barbara

User
Posted 07 Feb 2020 at 17:13
Barbara, I’m cutting down to half a steroid pill a day, rather than just taking 4 weeks, as it’s best not to stop abruptly Onco said.

Chris.

User
Posted 07 Feb 2020 at 18:43
Good to see your PSA in decline Chris and hope the trend continues.
Roger
User
Posted 09 Feb 2020 at 20:36

I am wondering Chris if another dose of Chemo say six sessions would help 
Good luck 
Barry

User
Posted 10 Feb 2020 at 07:46

Chris J,

I have been informed I have now, waiting to get the actual results tomorrow.

Edited by member 10 Feb 2020 at 07:48  | Reason: Not specified

User
Posted 10 Feb 2020 at 07:47

Barry,

Oncologist ruled it out for now, continue with the Enzalutamide 

User
Posted 26 May 2020 at 10:51

Latest news.
Had constipation for several weeks, emailed my GP for a stool softener, heard nothing so applied online for same, surgery phoned and prescribed another laxative, GP phoned later in the week, had a chat in case one of my METS (22) was causing problems in the Rectum, she wanted to do a DRE but said they had no available appointments so sent me to A&E, WELL had a blood appointment today and Oncology Nurse Practitioner as well, and she stated that the A&E Doctor said the constipation could be caused by the Co codamol and she could feel my PROSTATE which I thought had been removed in Jan 2006!
Well if a little bit is left it CAN grow back, so that’s why my PSA has not gone down and stayed down.
PSA last month was 1.6, I’ll post today’s result when I get it.


Chris.

Edited by member 26 May 2020 at 11:07  | Reason: Not specified

User
Posted 26 May 2020 at 11:19
"Well if a little bit is left it CAN grow back".

That's an interesting concept Chris and one I've never heard of before.

As long as your PSA remains stable or at least a very, very small rise, I personally would be happy with that.

Let's hope the "poo problem" soon becomes history. Perhaps you should ask around to see if there is an RT close by that you can have a go in, all that bouncing up and down should help. :)

Roger
User
Posted 26 May 2020 at 13:00

Originally Posted by: Online Community Member

... she could feel my PROSTATE which I thought had been removed in Jan 2006!
Well if a little bit is left it CAN grow back, so that’s why my PSA has not gone down and stayed down.


Chris.

Do you think that perhaps she didn't word that very well and what she meant was that it a little bit of the tumour is left behind it can grow back? A new prostate can't grow from cells left behind after the surgery. 

 

 

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 26 May 2020 at 13:50

Lyn, she said, at the time, “I can feel your Prostate” and today at the Oncology dept it said that she could feel the Prostate in her report.

and the Oncology Nurse Practitioner said it is possible for the Prostate to grow back, but very unusual.

Edited by member 26 May 2020 at 13:51  | Reason: Not specified

User
Posted 28 May 2020 at 06:28

Keep going Chris , 
Always love reading your posts
Barry

User
Posted 29 May 2020 at 14:57
PSA down a bit more, 1.2 now.

Chris.

User
Posted 29 May 2020 at 17:42

Chris 

Good to see , take care.

Thanks Chris

User
Posted 29 May 2020 at 18:42

Good news Chris .

User
Posted 22 Jun 2020 at 16:46

Just had my four weekly telephone appointment with Oncologist, when I queried the “feeling Prostate” Onco said it is more likely SCAR TISSUE.
So carrying on with Enzalutamide and Zoladex, we will think about another set of SCANS when PSA rises, he said, ( note not IF but when)


Chris.

PS, latest Blood result now down by a third to 0.8 I’m pleased with that.

Edited by member 27 Jun 2020 at 07:30  | Reason: Blood result.

User
Posted 27 Jun 2020 at 08:48

That's splendid news Chris. 

Roger
User
Posted 27 Jun 2020 at 10:56
Great result Chris 👍
User
Posted 27 Jun 2020 at 15:00

Good news Chris. Very pleased for you.

Ido4

User
Posted 27 Jun 2020 at 15:28

Chris 

Great news.

Thanks Chris

 
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