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So worried

User
Posted 22 Dec 2018 at 23:29

Thankyou....Had a copy letter from consultant to his GP today, stating a Pi-Rad of 2/3 and 4, and that there will be a Trus fusion biopsy.

The one thing we are worried about is at what stage could it spread from being localised to breaking out?

User
Posted 23 Dec 2018 at 04:34

Looks like he is getting the best treatment with ‘The Full Monty’ of tests, with a kidney stone as a bonus!

Most prostate cancers are usually very slow growing, so don’t worry too much about the capsule being breached in the next few weeks or months. In any case they can’t really tell until the prostate is biopsied after surgical removal, although they have more idea with a template biopsy as to the exact location of the lesion. Mine was thought to be contained following a template biopsy with 42 cores sampled, in the event it was not. Am I bovvered? No.

If and when cancer is confirmed following the biopsy, you will have plenty of time to consider options for treatment (if any at all), and make sure you obtain second opinions whichever treatment plan you go for.

Enjoy your Christmas.

Cheers, John.

Edited by member 23 Dec 2018 at 05:29  | Reason: Not specified

User
Posted 24 Dec 2018 at 11:18

Hi Everyone

I'm just rereading the consultant letter and am unclear about something and my interpretation of what the consultant has said...

'MRI has shown some PIRADS 2/3 and 4 lesions within the prostate gland."

Now does that mean 4 lesions that are 2/3, or lesions that are 2/3 and 4? 

Thankyou for all your support x

User
Posted 24 Dec 2018 at 11:37

Originally Posted by: Online Community Member

Hi Everyone

I'm just rereading the consultant letter and am unclear about something and my interpretation of what the consultant has said...

'MRI has shown some PIRADS 2/3 and 4 lesions within the prostate gland."

Now does that mean 4 lesions that are 2/3, or lesions that are 2/3 and 4? 

Thankyou for all your support x



Hmm .....All a bit ambiguous innit! 

My interpretation would be lesions that are PIRADS 2, 3 and 4.... 
Otherwise the consultant would have written it as you describe.... 4 lesions that indicate PIRADS 2/3 ? 
Which perhaps is why they are going ahead with a Biopsy? I may well be wrong ( I hope I am ) 
Others may have a different take on it... 

Best Wishes 
Luther 



User
Posted 29 Dec 2018 at 23:01
Hi Everyone, another question (and it may sound really stupid).......when they do the biopsy could that disturb the cancerous cells and allow them to spread from the prostate? All sorts of questions going through our heads......
User
Posted 30 Dec 2018 at 01:42
There are no known cases of needle tracking (cancer spread through the spaces where biopsies are taken) with TRUS biopsy. There are a handful of reported cases with template biopsy but the risk is very small.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 30 Dec 2018 at 18:24

This is interesting on the subject of needle tracking by the Sperling Prostate Center (who incidentally are often referred to for the (Focal
Ablation Treatment (FLA) they administer. The risk of biopsy needle tracking for PCa is minuscule, although increased for some other cancers.
https://sperlingprostatecenter.com/truth-biopsy-track-seeding/

 

 

 

 

Barry
User
Posted 31 Dec 2018 at 16:46
Thankyou both for your replies, so it wasn't a silly question lol All sorts of things go through my head!

Bone scan done today, biopsy next Monday. On his MRI the other week the consultant said there was no spread to the lymph nodes but I'm wondering why he is having a bone scan as would the cancer not travel to the bones that way?

Thankyou x

User
Posted 31 Dec 2018 at 17:04
A bone scan is a completely normal diagnostic procedure, and is just done as a precautionary check. It absolutely does NOT mean that anyone thinks that the cancer has spread, so do try not to be concerned about it (easier said than done, I know from personal experience).

You're almost at the end of the diagnostic road now, and most people find that the toughest time from an emotional perspective. Things get a lot easier once you know where you stand.

Very best wishes,

Chris

User
Posted 31 Dec 2018 at 17:47
Thankyou Chris. How would the cancer spread to the bones though?
User
Posted 31 Dec 2018 at 17:49

Cancer spreads to the bones through the bloodstream.

You can have mets to the bone but not the nodes or organs, spread to the nodes but nowhere else, mets to soft organs without spread to any other place, or mets to lymph/bone but still contained in the gland. 

Edited by member 31 Dec 2018 at 17:53  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 07 Jan 2019 at 13:59
Biopsy day today, all went well. Appointment for results in 10 agonising days.
User
Posted 07 Jan 2019 at 14:27
Which biopsy is he having?

Best of luck.

Cheers, John.

User
Posted 07 Jan 2019 at 18:05

It was a trus fusion MRI ultrasound biopsy. Went well and not too sore 

User
Posted 08 Jan 2019 at 14:39

Originally Posted by: Online Community Member

Looks like he is getting the best treatment with ‘The Full Monty’ of tests, with a kidney stone as a bonus!

Most prostate cancers are usually very slow growing, so don’t worry too much about the capsule being breached in the next few weeks or months. In any case they can’t really tell until the prostate is biopsied after surgical removal, although they have more idea with a template biopsy as to the exact location of the lesion. Mine was thought to be contained following a template biopsy with 42 cores sampled, in the event it was not. Am I bovvered? No.

If and when cancer is confirmed following the biopsy, you will have plenty of time to consider options for treatment (if any at all), and make sure you obtain second opinions whichever treatment plan you go for.

Enjoy your Christmas.

Cheers, John.

 

John

Have just tried to PM you but your inbox is full

User
Posted 08 Jan 2019 at 14:54

My email is re.vision@btinternet.com

Cheers,  John.

User
Posted 16 Jan 2019 at 19:44
Just back from consultant appointment for biopsy results. We have a result of locally advanced Pca, 34 samples taken and 11 showed cancerous, Gleason 3+4 (7). MDT meeting next Thursday and appointment a week on Monday, and if we decide surgery, in a couple of weeks. Feeling strangely less stressed now we know what we are dealing with.
User
Posted 17 Jan 2019 at 03:44
Well it could be worse. A friend is G3+4=7 and he has been on active surveillance for four years, although his PSA has risen to 11 now, so I guess he’ll have to come off it soon.

Something definitely worth taking advice on at your meeting with the MDT?

Best of luck.

Cheers, John.

User
Posted 17 Jan 2019 at 07:28

Thanks John

That's reassuring that your friend has been on AS, my HB PSA is 21.3 so not sure if that would be an option. But TBH he wants the damn thing out ASAP.

Vx

 

User
Posted 19 Sep 2020 at 21:48

Hi everyone 

So......its been a long time since I updated, and my apologies for leaving it so long!  My Husband had a radical prostatectomy in February 2019 (where did that time go?)  Operation went well, apart from trapped gas under his diaphragm, which he was in agony with.  On our follow up appointment we was told the cancer was very very close to the margins, and had the agonising wait for PSA results.  To our relief it was undetectable and has been ever since!  He is now fit and well and back doing his manual job.  Waterworks are on the whole nearly back to normal and ED is helped with caverject.  Thankyou to everyone for all the support in what was a horrendous time in our lives xx

 
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