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3 days post op

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User

Posted 19 Dec 2018 at 17:14

Bladder spasms can be very short and very uncomfortable, does he leak a small amount of urine at the same time ? I had an excruciating pain two days after my op and again about 5 days after my op the latter resulted in an ambulance ride and morphine injections, after three or four hours in A&E they found nothing , in the end it turned out to be constipation, lots of pain killers can cause constipation. I had little or no pain from the gas they use to inflate the operation area. Keeping mobile will help with trapped wind and bowel movements. Good that you are getting in touch with the hospital.

Thanks Chris

User

Posted 19 Dec 2018 at 17:46

I was prescribed oxybutynin and an alpha blocker for bladder spasms.

Did not get any pain on bowel movement only when bladder started to fill.

Bladder spasms are excruciating and had me doubled over in pain. You feel like you need to urinate but can't.

Urinating regularly helped.

Neil

User

Posted 19 Dec 2018 at 21:27

When I had sepsis caused by peritonitis it started about 5 days post op, initially I just felt off colour and maybe a bit feverish when I woke up, by 11 the intense pains had started, that's when my GP told me to take paracetamol over the phone. By 2pm I was being rushed to intensive care by ambulance no thanks to the GP!

Sounds like your GP is better than mine!

User

Posted 29 Dec 2018 at 20:15

Bounce for Reenmatch

User

Posted 12 Jan 2019 at 09:51

Hi everyone,

well it’s almost 5 weeks post op and Mr L is doing pretty well. to look at him you’d never know he’d had a big op. The continence is usually pretty good, with him only needing the level 1 tena pads, which normally last 24 hours and then they have nothing but a slight dribble on them, however just this week he’s had 2 accidents overnight whilst he’s been sleeping. Would you say this is normal? it just seems a bit random, when he’s virtually dry.

The other thing that seems a bit odd, he’s had a semi erection whilst having a poo!! this has happened a couple of times, is this normal? is it a good sign that the nerves are starting to heal? There is no libido at the moment either. I know its still very early days, and patience is a virtue.

Thanks for any advice guys, I hope you are all ok? I’ll be glad when spring arrives!

User

Posted 12 Jan 2019 at 13:09

Glad he’s healing well from the op. It'sunusual to suddenly have overnight accidents.

Was he over tired at the time or under the weather?

Hope he doesn’t pee while he’s pooing with a semi!

Ian

Ido4

User

Posted 12 Jan 2019 at 13:13

Semi-erections while pooing are an involuntary reflex action rather than a sexual one; I am not sure that it is indicative of sexual function recovery as it involves a different set of nerves.

Re weeing at night, it could just be that he is starting to sleep properly again. In a deeper more settled sleep, his brain isn't yet getting the signals. This is probably a very temporary situation, all your indicators are good.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 12 Jan 2019 at 14:57

Thanks for answering, I didnt know if it was due to the amount of fluids he’d drunk? the first time it happened hed had a late cuppa followed not long after by a glass of milk. The 2nd time which was last night he’d been drinking wine and whiskey 😱 although he’s drunk alcohol before and not leaked.

User

Posted 12 Jan 2019 at 16:12

ah yes - alcohol could be playing its part ... John has been continent since soon after his op but even he has issues if he has been drinking.

But I don't think it can be about drinking milk or tea; it makes no physiological sense since, if he is continent, his brain would wake him up at whatever time his bladder gets full. It sounds like the issue for your man is that he isn't quite at the stage where his brain wakes him up properly yet.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 12 Jan 2019 at 16:18

Thanks lyn, that makes sense.

User

Posted 12 Jan 2019 at 16:59

I was very continent from day one luckily. I wore a small pad for 3 months but rarely needed to change it. It was a confidence thing tbh. A couple of nights after a few drinks and a deep early sleep I totally emptied my bladder !! Only a few times. Strangely last year I wet the bed 3 times over a few months despite not being drunk. I do have massive issues sleeping though and I guess when I really relax it can mean trouble. Very early days for you so don’t worry. My kind wife just put a bed pad under the sheet and said don’t worry. Not weed in ages at night

If life gives you lemons , then make lemonade

User

Posted 12 Jan 2019 at 17:44

I was totally dry at night from day one. Then for no apparent reason after about 8 weeks I think, I also had a complete bladder empty. Nearly two years on now and it has never happened again.

Cheers

Bill

User

Posted 12 Jan 2019 at 22:40

Hi Mr & Mrs L,

I think his urinary control recovery thus far is very encouraging, way ahead of most, a bit behind some from what I hear and read.

Maybe if there is a blip, then 2 incidents in close proximity indicates an issue other than to do with physical control? Was he tired, had he been exerting or over exerting himself before these episodes?

Regarding alcohol affecting the leakage, maybe it does have an effect on him, maybe not? I can have far too many beers and sleep through without issues. Don't even have to empty the bladder before morning exercises any more. I do have loss of control if I walk home from a pub late at night when tired. Leak like a sieve, almost no control. So I avoid that situation.

It's still very soon after the op, and he is very fortunate compared to most, and this can lead to elevated expectations where a hiccup is seen as a bigger issue than it is.

Once he/you identify what works for him and what works against him you'll have a better understanding of the matter?

Maybe try a night of enjoyable alcohol intake, see what happens?

Then try a night or nights of zero, but makes himself tired, and see what happens?

Then zero alcohol and no exertion, see what happens.

Just a thought. By trial and error you might identify what is helpful or not so?

But I reckon he is very fortunate at this early stage post op.

atb

dave

Edited by member 12 Jan 2019 at 22:41 | Reason: Not specified

Do all you can to help yourself, then make the best of your time. :-)

User

Posted 13 Jan 2019 at 08:14

I disagree with lyn re the semi, any involuntary swelling down there is a good thing!

Re the drinking and pissing yourself this is definitely a problem, 2 years after my op with full continence even when lifting heavy weights etc I got "rather tipsy" on a night out with my then new girlfriend (getting married soon!) and I completely wet myself and didn't even know I had done it until we got outside and it went cold!! Combination of booze, dancing and being turned on is very dangerous post RP!!

User

Posted 13 Jan 2019 at 09:48

Thank you all for taking the time to reply, I can tell you its certainly made us both feel better.

It seems funny how hes 100% continent during waking hours, only to have this blip whilst sleeping.

Yes thats a good idea to try and find out what is the trigger. I definately think tiredness plays its part. I could tell how disapointed he was, after doing so well. like you say a tiny blip can seem enormous.

Regarding the pooing causing swelling, he was over the moon to see a bit of life down there again. He’s convinced its a good sign. I dont know, i hope so.

Cant thank you all enough.

User

Posted 13 Jan 2019 at 15:22

I have some tumescence during defecation (I hate the babyish current trend calling it ‘pooing’), but sadly nothing otherwise, despite 5mg Tadalafil daily, and the 20mg master-blaster on occasion, without success so far. Seven months post-op.

Am I bovvered? No. Still breathing.

Cheers, John.

User

Posted 13 Jan 2019 at 18:02

“ (I hate the babyish current trend calling it ‘pooing’)”

We could use excreting (that includes urination, defecation,etc.)

Or we could use a ”Barry White”, a ”tom tit”, a ”Donald Trump”, a ”pony and trap”

Just saying...the poo isn’t the point being made in this thread. Its about recovery from surgery.

No offence intended btw, I'm off my meds.

Edited by member 13 Jan 2019 at 20:35 | Reason: clarification

Ido4

User

Posted 05 Feb 2019 at 11:04

Hi everyone,

We are now 8 weeks post op and have just been to see the surgeon for our follow up appointment and the ED nurse, so thought this would be a good time to update my thread.

GLEASON 4+3=7 (was 3+3=6 on biopsy)

GLEASON GROUP = 3

VASCULAR INVASION = NO

INVASION OF SEMINAL VESICLES = NO

PERINEURAL INVASION = YES

EPE PERINEURAL INVASION = NO

MICROSCOPIC INVASION OF BLADDER NECK = NO

MARGINS = NEGATIVE

pT2CN0M0 (down graded from T3a)

PSA <0.05 ( I think that's right, they said it was undetectable)

The surgeon was very pleased, and said he was glad the we had the op as obviously there was a more aggressive cancer in there up from G6 to G7. I was worried about this but he seemed to think it was ok and probably better to have a G7 with a T2, rather than a G6 with a T3, I'm not sure but happy that he's happy. I did forget to ask about the perineural invasion, but have been told it's only significant if picked up on biopsy, but not if it's only noted in the post op pathology. We are not due to see the surgeon for another 4 months, when Pete will have his next PSA test.

We also saw the ED nurse, she asked how things were going continence wise and was pleased to hear Pete has been pad free since week 5 or 6, then onto the ED issues, we told her that he has had one spontaneous semi erection, and like I said above a couple of times when he had had a Donald Trump!! (for you John). She claimed he is doing very well and has prescribed him Cialis 10mg, 2 tablets per week, however she seemed reluctant to give him a pump. I wonder if this is something I should have insisted upon?

So that's pretty much the update. I can't tell you how pleased we are to have this outcome, I know it's early days but long may this continue. Thanks again to everyone that has answered my many question, and has really kept me sane throughout the past 3 months.

I'd appreciate any thoughts on the above.

Michaela x

User

Posted 05 Feb 2019 at 11:27

I think you have demonstrated the real benefit of RP, looks like you got it just in time..

User

Posted 05 Feb 2019 at 11:29

Very good results. Although upgraded from initial biopsy, it appears that it has been caught early.

I had PNI on biopsy, but was told that with all margins clear it shouldn't be a cause for concern...fingers crossed.

All the best with future recovery.

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