55 Years old Just diagnosed with prostate cancer

User

Posted 02 Dec 2018 at 07:18

On or around day 10 you will be having your catheter removed in hospital, so postpone your meeting.

Cheers, John.

User

Posted 02 Dec 2018 at 07:20

Good Morning

John

Thank you so much for your kind answer.

Sure would do as I trust your words

User

Posted 02 Dec 2018 at 07:37

Good Morning John

If you have got time would you mind educate me please.

I have zero knowledge of this prostate cancer and the treatments (as you can imagine)

What does it mean these reports >>>>TSc NO MO Gleason 3+4=7

I don't know the meaning of single of it at all.

Seems to me I get better ideas helps advises on this website from people like your self than my key specialists nurse and other medical staff!

Thank you

R .

User

Posted 02 Dec 2018 at 09:17

Hi Darkrainbow

My diagnosis was similar to yours 2 years ago. Click on my name to see my profile.

This link explains the diagnosis and Gleeson and TNM terms.

https://www.cancer.net/cancer-types/prostate-cancer/stages-and-grades

By the way my catherter was removed after 7 days. I started walking a fair bit the next day. After 2 weeks I was doing at least 2 miles a day and built up to 6 miles by four weeks. I had 1 month warning before my operatiom so had time to get fitter in preperation. Also did pelvic floor excercises apart from when the catherter was in and still do now.

All the best with your op and recovery

Cheers

Bill

Cheers

Bill

User

Posted 02 Dec 2018 at 09:42

Good Morning Bill

I thank you so much for the link that I will have a look up after this (very kind of you)

Because of I live on my own I must rely doing things for my self so to be mobilised is important for me.

Also 10 days after my operation I must attend a very important meeting (IM not a businessman just a private personal thing)

Seems you recovered from the operation quickly and were fit enough to walk miles. Sound wonderful.

May I ask this was it your medical team's or your decision to remove the catheter after a week? Who makes that decision? Some people says 10 days some people 2 weeks?

Many thanks for your kind thoughts and answer

R x

User

Posted 02 Dec 2018 at 12:01

Darkrainbow

It was the medical team that decided on 7 days for catherter removal. I thought it would be to soon so questioned it. The nurse said it was the surgeon who decides and he knows best. It turned out absalutely fine.

I would have been fine for a meeting after 10 days (waring a pad) as long as there would have been a loo close by because I had some urgency issue. You could maybe even go with the catherter in. I had a one hour taxi and then one hour flight to get home three days after my op.

I got your personal message about pelvic floor excercises. It's best to ask questions on here so that the answers can help others.

Yes I did the pelvic floor excercises before the op. and still do them every day.

Cheers

Bill

User

Posted 02 Dec 2018 at 12:01

The surgeon alone decides when the catheter should be removed. We had one guy here this week who had his removal after four days at an Austrian hospital, and others who have had to wear one for weeks.

When the catheter is removed (TWOC procedure) they give you a flow test to make sure the waterworks are operating correctly, and if not, in isolated cases they may reinsert another catheter to allow more healing to take place.

Bloody horrible things!

Cheers, John.

User

Posted 02 Dec 2018 at 12:21

If you have keyhole surgery you may be well enough to go to a short meeting after 10 days but a) you won’t be insured to drive so go by public transport or taxi and b) if the catheter has been removed you may be very incontinent so will have to wear dark clothes and continence pads.

Your penis and testicles may be very swollen and your belly might be very painful so don’t assume you will be able to wear normal trousers for the meeting.

If you have no one to stay with you at home, the hospital may keep you in for longer than usual.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 02 Dec 2018 at 12:41

Hi Bill

Thanks for your message .all noted I thank you for your taking time and responding to me.much appreciated. Seems it works differently to everybody different ways.

I will fallow your advises seriously

Many Thanks

User

Posted 02 Dec 2018 at 12:50

Hi John

I thank you for your kind words.

They are all valuable for me. Seems you had rough times and coped very well.

I will fallow your advise seriously and will remember your comments .

Not being a cry baby but it's just when you live on your own even despite planning things situation can be hard mentally and physically

Many thanks and have a nice day

R x

User

Posted 02 Dec 2018 at 12:56

Dear Lynn

Your the first lady from here I'm communicate with.

IM honoured. Thank you so much.

Honestly you given to me good tips re dark trouses and other things. I didn't know about it.

Surely I will fallow your advise seriously yes incase of any leaking type of accident wearing a black trouses can be a good idea.

Surely I will use public transports.

Many many thanks.

R x

User

Posted 02 Dec 2018 at 13:05

Hello Again

Lynn

Sorry I missed a point. Yes I live on my own and there are nobody to care for me at my flat. So All I can ask my medical people about it than see what they say.

But Saying that I will have the operation in a private clinic instead of one of NHS hospital. It was not my choice really they arranged it for me. And my operation will be on Saturday afternoon next week on the 10th. Because of is a private clinic I don't think so they would let me stay more than a night/day

Will update

Many Thanks

R x

User

Posted 02 Dec 2018 at 13:13

Originally Posted by: Online Community Member

Hi John

I thank you for your kind words.

They are all valuable for me. Seems you had rough times and coped very well.

Rainbow,

I have had no ‘rough times’ whatsoever. I had no symptoms prior to diagnosis, I had virtually pain-free surgery, am now cancer-free, and have no side-effects apart from a shortened penis and erectile dysfunction.

I am now getting on with the rest of my life.

I hope you enjoy a similar outcome.

Cheers, John.

User

Posted 02 Dec 2018 at 13:18

John sorry for misinterpretation

I thought all the prostate cancer patient's could have rough times

Glad to hear that it worked for you and your cancer free.

Thanks for your kind wishes

R x.

User

Posted 02 Dec 2018 at 14:20

Originally Posted by: Online Community Member

If you have keyhole surgery you may be well enough to go to a short meeting after 10 days but a) you won’t be insured to drive so go by public transport or taxi

We've discussed this before, Lyn https://community.prostatecanceruk.org/Scripts/tinymce/plugins/emoticons/img/smiley-smile.gif. The DVLA's rules simply say that you must follow the advice of your surgeon about when you're able to drive after surgery, and notes that "Drivers have the legal responsibility to remain in control of a vehicle at all times". In my case that advice was "you can drive when you feel able to". Some insurance policies may impose requirements for reporting medical conditions. Mine does not. I was driving (somewhat painfully) around the village where I live a week after surgery. I wasn't able to drive long distances (it was just too painful) for at least 6 weeks after surgery.

So it would probably be best for Darkrainbow to ask the medical staff about driving, and check his insurance policy to see if it has any requirements to report medical conditions.

Cheers,

Chris

User

Posted 02 Dec 2018 at 14:57

Chris.

I was told I would not be able to drive for six weeks if I opted for surgery. The reason given was that if it was necessary to perform an emergency stop nor could tear stitches and the seat belt could cause damage.

Bob

User

Posted 02 Dec 2018 at 15:16

Originally Posted by: Online Community Member

Chris.

I was told I would not be able to drive for six weeks if I opted for surgery. The reason given was that if it was necessary to perform an emergency stop nor could tear stitches and the seat belt could cause damage.

Bob

If that's what you were told, Bob, then that's what counts legally, It does seem that people are given a range of different advice on the matter. As I say, I had similar surgery but was told, on discharge from hospital 3 days after surgery, "drive when you feel able to", although it was so bloody painful the first week that a quick experiment soon convinced me that I did not feel able to!

Cheers,

Chris

User

Posted 02 Dec 2018 at 15:33

Blah, blah .... if he doesn't check - or drives 10 days after surgery - and then has an accident, you can bet your bottom dollar that his insurer will say he was not covered and the people that he kills or injures will receive no compensation.

Gov.uk website says that the insurer must be informed of any medical condition that might affect driving - it also says "you are not covered to drive until your doctor confirms it is safe to do so". Whether the technically legal position is as you say or not, I don't see how anyone (not even the Stig) could drive safely 10 days after RP and even if they could, it is an open invitation for an insurer to wriggle out of their responsibility.

Bob, my husband's insurer was even worse - they wouldn't cover him for 12 weeks and until a letter was provided by the surgeon confirming he was fit to drive, which the surgeon (understandably) refused to write.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 02 Dec 2018 at 16:19

Hi Chris

Thank you for kind concern.

IM sure that you ,Lynn and Bob on the same boat trying to give right advises to people like my self.

Behalf Of you thank you all for your kindness.

Have a nice evening

Darkrainbow

User

Posted 03 Dec 2018 at 17:14

My surgeon was very positive and brief pre-op. He said in hospital 1 night, catheter out 7 days, dry 1 to 6 months. He was very close, Christmas was in the way too.

After 10 days we were walking miles. Quickly learnt to take spare pads. Never had any pain or inconvenience and always wore my usual clothes. Keep it simple and keep positive. It's easy to say I know.

I wrote about my op on a website linked here if you want to read any more. https://sites.google.com/site/myprostateprobleminlancashire/radical-prostatectomy

Good luck that date gets nearer and that 3 hour sleep on the day works wonders. I was so pleased to get the tumour out.

Regards

Notification

Join the online community now.