Blood in sperm after biopsy

User

Posted 24 Nov 2018 at 22:25

Originally Posted by: Online Community Member

Hi Andu,

Click my profile to read my one-year story since a raised PSA reading was discovered. Might I suggest you fill in your full clinical details likewise (G score, PSA, staging, etc.), so as to assist the very wise minds here to help you further?

Lucky old you with your orgasms, and I urge you to have as many as possible before any treatment commences.

I had robotic surgery, and I can honestly say I have had more pain from a sore throat and a broken rib.

Get second opinions from another surgeon and oncologist, and take note of advice you will undoubtedly receive here from those of us here who ‘have been there, had that done’.

Best of luck.

Cheers, John.

Hi John

I've just put some more info on my profile, hope that's useful.

I'm 55 years old

Andy

User

Posted 24 Nov 2018 at 22:28

Originally Posted by: Online Community Member

Thats exactly the situation and decision I made in March this year. I am now throught it with a PSA of 0.5, I am Glad of my decision. but am aware the NHS hospital where I was treated is rated second only to the Royal Marsden

Hi Pallance, which hospital was that. Plan is for me to be treated at the Royal Surrey, Guildford

User

Posted 24 Nov 2018 at 22:33

Originally Posted by: Online Community Member

Sorry if I have missed it but what was your Gleason score and size of tumour?

My husband was relatively lucky with a G6 (3+3) outcome but bilateral and large volume.

At 54 he wanted to avoid ED and incontinence so we went overseas for a Focal laser ablation ( out of pocket expense of USD 30,000).

Of the UK offerings we had Brachi at the top of our list and surgery at the bottom.

However a different Gleason rating could have changed that decision completely of course.

Good luck with your decision

Clare

Hi Clare

Sorry new here! Have put some more info on my profile, also below:

adenocarcinoma of the prostate (cT2, PSA at diagnosis 1.04)
MRI (October 2018) - T2 N0 Mx
TRUS prostrate biopsy (November 2018) - Gleason Score 3+4 3/18 Cores,mccl 9mm

I'm 55, good erections and orgasms, hate pain!

Andy

User

Posted 26 Nov 2018 at 21:28

Hi Andy

well the diagnosis could be worse so I think you have time to research all options thoroughly. It really is a strange one re having to choose rather than just been put on a plan.

The community here is great so do read profiles and ask any questions as everyone is so open. Some are quite clear they have no interest in sex so ED is not a consideration for them but for others ( like my Hubble) they are not keen to lose their sex life.

So do ask if they haven’t said anything on their profile as everybody is very happy to help.

what options have you been given?

Hope you are doing OK and recovering from the biopsy now

Clare

User

Posted 27 Nov 2018 at 03:57

Originally Posted by: Online Community Member

Hi Andy

well the diagnosis could be worse so I think you have time to research all options thoroughly. It really is a strange one re having to choose rather than just been put on a plan.

So do ask if they haven’t said anything on their profile as everybody is very happy to help.

what options have you been given?

Hope you are doing OK and recovering from the biopsy now

Clare

Hey Clare

Silly o'clock in the morning, woke from a nightmare a few hours ago, nearly got back to sleep. Come downstairs so as not to disturb my girlfriend! Dreamed I was in a large house eventually cornered by a big group of strangers, all quite threatening, they forced me to take a gun to play russian roulette with. I tried to shoot some of them, but it was empty then I woke up, felt like calling the Samaritans. Didn't expect to feel so emotionally affected :-(

I will read profiles and ask questions, thanks

I'm choosing between Brachyrherapy and robotic prostate removal .leaning towards Brachyrherapy right now

Met the robotic surgery team last week. Meeting Brachyrherapy team later today, will be there a few hours flow test, ultrasound exam etc.

Then I'll be making a decision once we've had a think about it

Pretty much recovered from the biopsy now thanks .less blood in my sperm, but sex drive has gone down though, last few weeks, a lot on my mind

Work stressed me out a bit yesterday. Was called into bosses office and reminded I needed to keep letting them know how i wanted to manage my time off for appointments i.e. take holiday or owe them time. My health comes first but they're trying to run a business they said. No s***! Feel like the boss is getting fed up with me taking time off and me having appointments at inconvenient times

Yeah, damn inconvenient me having cancer

Ho hum, will report back later

Hope you and hubbie are good

Thanks

Andy

User

Posted 27 Nov 2018 at 16:25

Andy, are you serious? No sick pay scheme covering these things? I am staggered that any employer should adopt such an attitude in the 21st century.

User

Posted 27 Nov 2018 at 17:40

I think that your employer needs some training on his duties under the Equality Act 2010. Having cancer is a protected characteristic.

The word tawt comes to mind :-/

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 27 Nov 2018 at 18:40

Wow, Andy, I'm staggered by your employer's attitude. Complete contrast to mine: I was off work on full pay for five and a half months and am now working on "light duties" until I have my RT in Feb when they know that (and have no problem with) I'll be off for another two months.

A sympathetic employer is a huge help in such trying times.

Chris

User

Posted 27 Nov 2018 at 19:54

My goodness.. that is shocking. It may be worth getting advice from citizens advice, no wonder you had nightmares!

i hope the brachi team meeting went well. A fair view guys on here have had it so they should be able to appraise you of their experience.

My husbands employer was great and fortunately he has been able to continue to work full time but does get time to go for his surveillance appointments.. your emplayer is being short sighted indeed.

We felt better when we had a plan so hopefully you will too.

uncertainty is a mare and sounds Like it is causing you a lot of stress but on the positive side you seem to have access to good medical advice and great you have seen two completely different teams.

keeping asking questions.. Its horrid when someone says ‘I wish I had known... ‘

Good luck

Clare

User

Posted 28 Nov 2018 at 07:13

Sadly serious. Don't expect them to ask how i am every 5 minutes but his attitude seems to have changed

Then, to cap it off, had a nightmare that night in the early hours. Dreamed I was being chased around a big house by people who had really intense expressions on their faces until they cornered me in a room, forcing me to take a gun to play russian roulette with :-(

Had my meeting yesterday with a great nurse at royal Surrey in Guildford to discuss Brachyrherapy, as well as some more checks. She was bloody fantastic, talked about my nightmare with her and she so amazingly caring and told me there was no way I was playing russian roulette with my health. All this while i was naked from the waste down and was using an ultrasound probe up my bum ;-)

Made up for my boss being a dick

User

Posted 04 Dec 2018 at 06:57

Hi All

Thought I'd update you all.

I've decided on my treatment being Brachytherapy

My girlfriend and I thought about the options, but I've been in favour of brachytherapy pretty much since we had the options given to me.

I'm glad I've made my choice and I'm happy with it.

I had my second nightmare last night though, thought they would stop once I'd made my decision .

Last night's was that nurses had clamped my left hand so I couldn't move it and were amputating some of my fingers.

Not very nice to wake up at 2am after that :-(

Anyone else have nightmares after their diagnosis?

Thanks

Andy

User

Posted 04 Dec 2018 at 07:35

Yes Andy

I was particularly anxious, stressed and angry after dx. I lost three stone from dx to going back to work after op and I didnt really have three stone to spare. My worst nightmare is being at my gp surgery, its all a bit vague and varies until the point where I am trying to shout at him but unable to make a sound. Then I am peeing blood all over his desk and floor. Then wake up soaked in sweat. There are others but more varied. Two years on and much less frequent so not really a problem now. The worst part is the waking up soaked even though not even slightly hot.

Good luck with your treatment and recovery

Cheers

Bill

User

Posted 04 Dec 2018 at 08:05

I had real problems coming to terms with my diagnosis in May. My GP prescribed Sertraline - an anti-anxiety/anti-depressant - which helped me tremendously. I was on that for about 4 months in total. I don't need it any more (I'm happy with life again, and start RT in Feb), but it was a lifesaver for me.

Chris

User

Posted 04 Dec 2018 at 08:23

Thanks for sharing

I was due to come off fluoxetine, but will stay on it a while yet. Also take zopiclone sometimes, to get a good night's sleep.

User

Posted 04 Dec 2018 at 13:56

I’m on Fluoxetine from this week. It’s an ssri that can help with hot flushes, as a bonus to keeping me calm. I was just getting over my PCa to find out my wife has bladder cancer

User

Posted 15 Dec 2018 at 19:54

Sorry I've not posted for a while. Good news is my sperm is the "right" colour!

Tough times though, stresses and strains in my relationship with my girlfriend. Over financial issues, upshot if which she said i should move out as I'm obviously not happy. So me mentioning i want to make some changes to our finances, she takes a big leap and wants me to move out after my treatment.

Feel really flat emotionally now and somewhat paranoid. Work are being very understanding and taking the load off where they Can, lucky to have this job, despite earlier issues

Tough times, I just let out a big sigh :-(

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