Too late?

User

Posted 31 Jan 2019 at 23:14

I still haven't heard from the 'vacuum' nurse despite leaving messages with the relevant secretary. They are, apparently, two months behind with with their letters - you never know I might still be in with a chance for a Christmas card from my consultant! I'll try again soon but it is wearing me down.

User

Posted 01 Feb 2019 at 06:15

Just get a cheap one off Lovehoney sent through the post discretely. Not the real deal but guaranteed to work and keep him healthy and start things off so to speak

If life gives you lemons , then make lemonade

User

Posted 01 Feb 2019 at 07:43

I have copied links below from amazon of what I use. I added the insert because it is softer and more comfortable. You may need to trim it. The pump comes with a squeezy ball type pump which soon becames ineficient so I got the scissor grip one. The pump also comes with a ring which is rubbish, so you will need to get others if you want.

I dont know how to make the links work properly so you will need to copy them to your browser.

https://www.amazon.co.uk/Pipedream-Pump-Worx-Potent-Black/dp/B005EILA1G/ref=gp_aw_ybh_a_1?_encoding=UTF8&psc=1&refRID=4X5D34XDQ8142FY27WMT

https://www.amazon.co.uk/You2Toys-Transparent-Replacement-Cuff-Pumps/dp/B004D755GU/ref=pd_aw_fbt_img_2/257-6491659-0966014?_encoding=UTF8&pd_rd_i=B004D755GU&pd_rd_r=0c552ce1-25f3-11e9-bc3f-c119fe0d879a&pd_rd_w=cBAC7&pd_rd_wg=HqZDk&pf_rd_p=829773a1-0532-4117-a22f-5a653a869422&pf_rd_r=EYNNR36078DTPBS0Q8WA&psc=1&refRID=EYNNR36078DTPBS0Q8WA

https://www.amazon.co.uk/gp/aw/d/B001LYZ5RC/ref=ppx_yo_mob_b_post_ship_o0_img?ie=UTF8&psc=1

Good luck

Cheers

Bill

User

Posted 27 Mar 2019 at 05:08

Well, I eventually got my vacuum device - it took a lot of chasing up and I am now in the position of DIY! There's been no ED clinic appointment just a letter asking me to give them a ring if I can't manage the pump on my own!!!!!

FFS!!! Anyway, I've had a go and it seems to be working. So, I'm following the instructions carefully - wouldn't want to break anything after all this effort!!!

After my latest oncology appointment - PSA nice and low https://community.prostatecanceruk.org/Scripts/tinymce/plugins/emoticons/img/smiley-laughing.gif and testosterone still very lowhttps://community.prostatecanceruk.org/Scripts/tinymce/plugins/emoticons/img/smiley-laughing.gif,I'm not sure where I go from here. One thing I become more certain of every day is how demoralising and humiliating I find this whole thing.

Wish me luck with my auto-blow jobs!!!!

Thanks to everyone who has posted here so far.

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