Hubby recently diagnosed

So hubby was meant to go for his mapping 4th Jan. He got a call the day before from the hospital asking if he was attending and all was OK. He said yes. They then asked how he was coping without the catheter and he said it's still in!!! So the appointment was cancelled. So today back to the oncology consultant to be told they now want to change the treatment plan. Chemotherapy, 6 sessions every 3 weeks. A break, then radiotherapy. New trial research results show using chemo aswell helps keep the psa score down longer. This is all very new she said with the consultant meeting only taking place a couple of weeks ago. Teams around the country may not know yet as its still rolling out. They wanted to start next week but he said no. He has urology next week and he wants to try again and take the catheter out first. He says he now has urges to go unlike last time they tried to take it out and he couldn't go. So fingers crossed or it will be the operation, turp. However his Psa has come down from 33.41 to 8.41 from a blood test a few weeks ago. More blood was taken today so hopefully it's fallen further. Has anyone else had chemo and radio for locally advanced? 

He's just had a phone call from the hospital. They are trying again Thursday to remove the catheter and see how he gets on. He hates it with a passion. I really hope he can pass urine without it this time! Did anyone else have chemo followed by radiotherapy? 

Can I ask what your husbands gleason score and stage he was at? My hubby is stage 3b and gleason 9.  The wording our consultant has put the survival rate has changed from the first time we saw her. At first she said in 5/10 years 30/40% are classed as cured with the rest still having some kind of treatment. However Thursday she said there is a 50% survival rate. Scared both of us as at first we had hope. Now just 50% chance he may not be here in 5 years time 😔. 

How are you coping with it as his wife? I try to be strong for him and put a positive spin on anything the consultant has said. He has been all over the place and it's been so tough emotionally. If I'm honest I'm scared of what is to come. 

Sadly hubby failed 2nd twoc today so turp op to be done soon. Urology consultant never heard of this chemo research so got macmillan nurse in with us to. He wants meeting with oncology consultants ASAP. So chemo/radio or one or other back off the table for now. He wants to do the turp before any chemo or radio is started. Macmillan nurse said oncology want chemo to be started within the 12 week window from hormone therapy starting as this is what trial results show is best. Urology consultant didn't seem keen at all on chemo starting before op and oncology said they won't wait for the op and recovery to be done first. So deadlock. We are back in on Monday after the two areas have met. Also urology doc has asked for the trial results/data to be emailed to my hubby and himself ASAP before Monday so he can see if benefits outway the risks. So when the consultants seem to differ in opinion on his treatment plan does not give us much confidence and left us some what confused 😕 . 

Well he has just had another hormone injection today. The practice nurse told him as he is type 2 diabetic any chemo would put him on daily insulin injections for life.He currently takes metformin tablets which I believe non diabetics use in the stampede trial. So with the urology consultant worried chemo will affect his upcoming turp operation and now this he is wondering whether the original plan of radiotherapy is best for him after all? 

Edited by member 25 Jan 2019 at 12:09  | Reason: Not specified