Wot Ben said...

User

Posted 23 Nov 2018 at 21:42

Thank you Lynn . I’m sure we will have a great time . And I’m sure also we will end up at Meadow Hall at some point . Went to watch Djokovic at O2 last week and guess what there are new shops there now . 2 Radley handbags later ..... must admit I did buy some shoes so fairs fair.

i love talking to you guys so much . Details of RP and RT and HT are great but sometimes you need a break...

Killimanjaro must have been magnificent . Something I’ve never done , climb a big mountain 🤔🤔🤔

let me deal with Tough Mudder first....

Nighty night , wife is watching Celeb Jungle whatsit, so I’m tucked in with good book now.

Phil

User

Posted 06 Dec 2018 at 18:17

So just got my latest PSA and it 0.2 . Was expecting lower but it’s still on the way down from 0.3. Consultant doesn’t want to see me for 6 months .....wasn’t expecting that. I feel a little abandoned 😳.

Still not getting any fatigue and managing to keep up the gym and running etc. I think I’m very lucky...

Still aiming for my Tough Mudder next May.

Phil

User

Posted 06 Dec 2018 at 18:42

Originally Posted by: Online Community Member

The year that John climbed Kili for Marie Curie in between his RP and RT, someone arranged for us to have special seats at the front at Manchester arena - it was brilliant. You will have a great time!

Reminds me when I went to see Bob Dylan at the MEN Arena a few years ago. He was dressed entirely in black on a dark stage. I don’t think I ever actually saw him https://community.prostatecanceruk.org/Scripts/tinymce/plugins/emoticons/img/smiley-smile.gif . Great concert, though!

Chris

User

Posted 06 Dec 2018 at 20:15

yes Iain, except the depression, anxiety, insomnia and ED , piece of cake . 😆😆😆😳

User

Posted 06 Dec 2018 at 23:00

And of course for some of us , a little bit of history thrown in for good measure, let's not leave anything out .

We all know what a s*** this disease is ,but we only have one life and we are dealt this cruel hand . But you know there are a lot worse off than me, so I'm not going to complain one bit .

I can read every day of people worse off than us so let's enjoy what we can . It doesn't stop me crying every now and then but that's what being human is ...

Phil ,

By the way Iain there's always a space in the Tough Mudder team for you 😘

Posted after a couple of glasses of wine 😊

User

Posted 07 Dec 2018 at 07:46

Always room for you Iain https://community.prostatecanceruk.org/Scripts/tinymce/plugins/emoticons/img/smiley-laughing.gif....

So back to the PCa for a moment:

Is that good ,going down to 0.2 ? I was expecting it to be lower on the HT , but the consultant seems happy.

Are you normally left to 6 months PSA after just under a year on the HT ? I was expecting 3 monthly for the next couple at least.

My counseling is still ongoing although i feel the end is in sight after 13 sessions so far. She wants to resume when i start to come off the HT. I must admit i do feel that i was too optimistic at the start about how much, and how quick it would help my 'damaged' mind to heal. I've got 3 or 4 sessions still before we break off for a while and she says we really need to start to talk about the PCa now https://community.prostatecanceruk.org/Scripts/tinymce/plugins/emoticons/img/smiley-laughing.gif

Massive party at the end of my HT - Iain you are invited to that also https://community.prostatecanceruk.org/Scripts/tinymce/plugins/emoticons/img/smiley-laughing.gif

Bye Bye kids, play nicely

Phil

User

Posted 07 Dec 2018 at 13:44

Hi Iain.

I do feel OK really its just as you say 6 months is a long time and i suppose i was expecting too much of the HT considering what its doing to my mind....

To be honest i was a little concerned that the HT wasn't doing its bit due to my lack of physical symptoms, although its obviously wreaking havoc with my head .....i think my counselor needs to see a counselor now https://community.prostatecanceruk.org/Scripts/tinymce/plugins/emoticons/img/smiley-smile.gif. I am meeting with my brother shortly today and i'm going to 'enlighten' him to my childhood of which he knew nothing.

I think after HT the PSA will go up to a 'normal' level as we still have that little bugger the 'prostate' living inside us. Your level increase does sound like the rise back to what is considered normal.

Anyways, still not interested in the Tough Mudder then https://community.prostatecanceruk.org/Scripts/tinymce/plugins/emoticons/img/smiley-smile.gif ? You can always change your mind.....https://community.prostatecanceruk.org/Scripts/tinymce/plugins/emoticons/img/smiley-smile.gifhttps://community.prostatecanceruk.org/Scripts/tinymce/plugins/emoticons/img/smiley-smile.gif

I am absolutely loving getting fit again and i am so so pleased i don't get the fatigue that everyone seems to get. And being able to fit into nice slim clothes is soooo good. Although its cost me a fortune https://community.prostatecanceruk.org/Scripts/tinymce/plugins/emoticons/img/smiley-smile.gif.

Take care my man, and hope that your head is recovering well from the HT onslaught.....

Phil

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