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Active Surveillance or Not

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User
Posted 04 Nov 2018 at 21:30

Hi Mark,


The recovery is going well now, I am walking, eating and don’t have much pain. I had really itchy skin from the anaesthetics, chills from the heparin, and hot flushes as my hormones balanced out. It is almost 2 weeks now and I almost forget my condition. The catheter is part of my life for 4 more days , then I can discover how much control I will have.


when making the choice you have to weigh up the benefits with the risks, it is a personal choice which can be informed by the medical team, but is ultimately your decision.  I am convinced I made the right choice for me, and will work hard to ensure the lasting effects are minimal.


Good luck with your journey.

User
Posted 05 Nov 2018 at 06:29

Although still early days, I have already had some erectile activity and feel everything, including pain.


i was reminded the other day, that my father choose RP and is still with us. Both my Uncles choose other treatment options and have both passed on.

Edited by member 05 Nov 2018 at 06:30  | Reason: Not specified

User
Posted 27 Nov 2018 at 17:46

Just got my pathology results.


The staging that was T1 Gleason 3+4 before surgery turns out to be T3 Gleason 4+3 after removal.


This just goes to show how much of a lottery it can be making a decision on treatment based on the inadequate testing, and varying advice from the various consultants.


I took charge, and assumed the worst. The surgery had clear margins, and now I just need to get the PSA tested in January. I consider myself lucky as this could have been much worse had I waited.

User
Posted 27 Nov 2018 at 18:05

Hi Mark,


Like you say, could have been much worse. Clear margins is a 'positive'  so i wish you all the best for the future.


Neil.

User
Posted 27 Nov 2018 at 18:30
I hope your recovery goes well and PSA is undetectable.

Ido4

User
Posted 23 Dec 2018 at 18:53
PSA is now undetectable, just need to regain continence.
User
Posted 23 Dec 2018 at 23:55

That's good news. Wish you all the very best for the future. 

User
Posted 24 Dec 2018 at 02:45
A good and call on your part and yes it does show how indefinite the tools of pre-treatment assessment available to consultant's and opinion to patients can be.

Hope you make a good recovery.
Barry
User
Posted 24 Dec 2018 at 10:08

Originally Posted by: Online Community Member


Just got my pathology results.


The staging that was T1 Gleason 3+4 before surgery turns out to be T3 Gleason 4+3 after removal.


This just goes to show how much of a lottery it can be making a decision on treatment based on the inadequate testing, and varying advice from the various consultants.


 



That's what worries me about men who go for active surveillance. The tests are still not sufficiently accurate to show the exact status of the disease.


Merry Xmas and a Happy New Year to everyone.


Ann

 
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