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User

Posted 15 Oct 2018 at 21:11

Had DEXA scan on October 10. Just waiting for results.

User

Posted 26 Oct 2018 at 16:20

Finally got my DEXA scan results today.

Bone density is normal in hip and spine ranging from +0.3 to - 0.1.

So HRT and HT have not decimated my bones yet.

Having follow up MRI on sacrum on Nov 6.

User

Posted 30 Oct 2018 at 07:55

Highly unlikely at a fractionated PSA to be what you fear. The only way of definitely knowing is a scintographic bone scan but I doubt that will be offered quite yet. When I was at that stage, every ache and pain in my back, hips and legs was bone mets in my brain. It’s a hard one to get to grips with but you will brother, you will.

bazza

User

Posted 30 Oct 2018 at 08:14

Thanks Bazza

Yes, this disease does get inside your head and I think about it almost every minute of every day.

I am now in Year 5 and it gets worse if anything.

My next big pressure point is when they stop HT and I will then see if the SRT has been successful.

That will be a biggie for me.’

User

Posted 14 Nov 2018 at 08:18

My follow up MRI scan on sacrum now rescheduled to Nov 22.

Back problem now seems to have cleared up so not too worried.

However, I am not counting my chickens.

User

Posted 19 Dec 2018 at 21:17

Had my 6 monthly Oncologist review today at which my latest MRI scan on my spine was discussed.

The findings were positive - just some insufficiency micro fractures which are not considered to be of any great consequence.

So, all’s well that ends well regarding this little episode.

On another note I was told today that my next hormone injection in January will be my last for the time being.

So next year could be an interesting rollercoaster type of year. I will discuss this in one of my other threads.

User

Posted 10 Jan 2019 at 08:32

Saw my GP on Tuesday complaining of leg pain. Bearing in mind my history he referred me for a bone scan which I have never had before.

Thanks to a cancellation I had the scan yesterday. Bit of a long drawn out affair, there being a 3 hour wait after the injection until the actual scan.

But all done now and just have to wait for the results.

User

Posted 10 Jan 2019 at 10:19

I hope the results don't take too long although I am sure it will be fine. You do seem to have a pattern of hip / back / leg pain which suggests more likely a sciatic nerve jangling or similar, perhaps linked to the hormones.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 10 Jan 2019 at 10:54

Many thanks Lynn. I hope you’re right. With my PSA tending towards zero I wouldn’t expect anything nasty.

User

Posted 17 Jan 2019 at 10:51

So I got the bone scan result which I believed is supposed to answer questions. However it raised questions and pretty big ones.

Here is what it says :-

"Intense uptake in both sacral alae, in keeping with the known bilateral sacral insufficiency fractures.

Focal uptake in the right inferior pubic ramus, which appears more diffuse than one would expect for a fracture. Raises the possibility of a metastasis. Bone scan otherwise normal."

What the hell is one supposed to deduce from that ?

Talked to my GP who ordered the scan and he seemed pretty relaxed about it but it's not his body is it ?

He has passed the scan result on to my Oncologist who I have been chasing for a comment.

I await his opinion - somewhat anxiously.

Wow !!! And here was I thinking bone scans provided answers.

User

Posted 17 Jan 2019 at 21:39

I’m not a doctor but i think the first one is ok, simply indicating that you have had a fracture and the scan has shown that. The second one seems inconclusive and needs someone to interpret. I guess that they might want to order an MRI or some blood tests to see if there are any markers to indicate rises in ALP or other known cancer markers.

I can well understand why you would be worried, but its not certain that it is a met. i hope the oncologist can advise you sooner rather than later.

Devonmaid

User

Posted 18 Jan 2019 at 17:51

Thank you Devonmaid

Yes I knew about the first one but the second one took me by surprise.

Despite chasing it up with my Onco’s secretary I have not heard anything from him.

Maybe he’s chilled about it like my GP but I wish he would tell me so I can be chilled too.

😎

User

Posted 24 Jan 2019 at 08:27

Lol, my Oncologist wrote a stroppy letter to my GP asking why he sent me for a bone scan. Said that since my PSA is effectively zero it would be impossible to have bone mets.

Not sure about that cos nothing is impossible but interesting to witness a bit of anger , irritation or rivalry ? between the various branches of the medical profession.

User

Posted 24 Jan 2019 at 08:55

I guess your oncologist is right though really, because now there is a worry when there shouldn’t be. I was given a blood test recently that showed low iron stores and that caused tests and worry and the GP said she was sorry she’d done the test in the first place as blood chemistry can do this for no apparent reason, and so it turned out for me. Not quite the same but the point is you wouldn't have had this worry at all without the scan.

As the oncologist says with a PSA so low it'll be somthing else.

Good luck

Devonmaid xx

User

Posted 24 Jan 2019 at 18:20

Thanks Devonmaid

I tend to agree.

This is not the first time that my GP surgery has caused me undue worry and stress by assuming that every ache and pain in my body may be related to Prostate cancer.

I guess they are being ultra cautious but they don’t seem to look at all the facts and evidence in front of them before acting.

I think they are a bit prone to knee jerks.

User

Posted 10 Jun 2019 at 14:32

I don’t know if it is coincidental but since my hormone therapy expired 7 weeks ago, I am now pain-free.

No leg or back pain and I am now exercising vigorously on a daily basis.

I have also lost around 8 kilos in surplus weight since HT expired.

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