Post RP and SRT journey - Jan 2021 update - - Page 20Localised cancer

User

Posted 12 Jan 2021 at 20:12

Dave - thanks. That’s just the mind set swap I needed.

Chris 1 😂 - PROSTVAC. Looks promising but has taken a long time to get to state III. That process needs to be faster!

Chris 2 😂 - bang on. Back end of last year was very tough for health and other reasons and my confidence has taken a real knock. I’m climbing out now but it takes effort.

Thanks to you all 👍

User

Posted 12 Jan 2021 at 22:18

Peter

This trial is Rhovac-002. It is a three year trial, with multiple visits to the hospital.

Thanks Chris

User

Posted 13 Jan 2021 at 01:44

Originally Posted by: Online Community Member

Makes sense. Having one machine for each blood test is expensive.

What are your thoughts on my latest numbers?

I think that they are lower than they were a year ago and you have passed the dreaded 2 year mark at which so many men on here have had to start salvage treatment. Perhaps like John, you just have quite a high 'healthy' PSA - and if there is a problem it is very, very small and very, very slow. Don't spoil today stressing about something that might or might not happen in the future.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 14 Jan 2021 at 15:22

Lynn

Thanks. I got in my own head a bit as my confidence is low after being rather ill just before Xmas.

Chris C

Another similar trial then. Not in the CRUK trial list, which PROSTVAC is.They look similar.

Chris J

Thanks. I appreciate the supportive words.

All

Apologies for whingeing. Plenty here far worse off that are far braver. I'll look to their example.

User

Posted 14 Jan 2021 at 18:57

It isn't whingeing PP and you don't need to apologise - this is what forums do best!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 14 Jan 2021 at 19:29

No need to apologise PP, we’re all here for each other. Take care.

Ido4

User

Posted 15 Jan 2021 at 19:42

One big question now is time between tests now.

My nurse suggested four months because I am a wuss but given that I am over 2 1/4 years post SRT, I want to face my fears and increase the test gap to the maximum safe gap. Is six months viable with my numbers?

User

Posted 15 Jan 2021 at 19:46

I dunno; John is still on 3 months and we are 11 years down the line. I don't think he cares much whether it is 3 or 6 months; it is me who needs the constant reassurance!

I think NICE recently changed their guidance to 3 monthly for the first year, 6 monthly for the next 4 years and then annual from 5 years onwards?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 15 Jan 2021 at 20:25

Better get the coin and crystall ball then :)

I'll leave it at 4 months this time then see what happens...

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