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prostate operation

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User
Posted 30 Oct 2018 at 15:31
My surgeon told me that lymphodoema occurs after 3% of prostatectomies, and can happen years later.

Sorry you have the problem now. Best of luck.

Cheers, John.

User
Posted 30 Oct 2018 at 16:49
Eddy, maybe the occurrence of lymphoedema depends on how many and which lymph nodes are removed. In my case 18 were taken to be checked for PCa and all were cancer free. I suffered swollen legs, mainly my left. This happened immediately and six years later it persists. I believe it to be permanent and incurable. There are things that lymphoedema specialist nurses may be able to suggest - Nora Batty stockings (useless) and massage (nice at the time but short lived) were things I tried six years ago, but maybe there are new ideas around.

Good Luck.

AC

User
Posted 30 Oct 2018 at 17:44

Cheers Auld Codger.

The problem has just started in early September about 12 weeks after my op, it seems to come and go but some times the swelling is quite bad, I have no pain at all but a bit of tingling and a heavy feeling in my leg. When I raise my leg up it helps and I have been told to wear stockings as well. Just another problem to cope with but it could be a lot worse.

thanks Eddy.

User
Posted 05 Nov 2018 at 19:51

Coming up to 5 months since my op and after a terrible start with my incontinence I have had my first completely dry day. Not a leak at the gym, washed my car and did some gardening, and not to forget I took the dog for a walk. I am hoping this is the start of things come and the end of using pads. Back to the hospital next week for my second PSA test fingers crossed it's clear again. 

 

User
Posted 05 Nov 2018 at 21:07
Fantastic - hope all goes swimmingly from now on
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 05 Nov 2018 at 21:52

Brilliant news - very pleased for you as it makes a huge difference to quality of life. 

Kind regards

Kevan 

User
Posted 05 Nov 2018 at 23:02

Great news. Hope the PSA stays undetectable.

 

Ido4

User
Posted 16 Nov 2018 at 15:07

The weeks fly by 5 months after my op and I have  just had my second check up and this time asked all the right question. The good news is that my cancer was down graded to T2 from T3a, and the Doctor implied he would not expect any further problems with the cancer (fingers crossed). I discussed my ED with the Doctor and I am having an appointment made for me at the ED clinic regarding a vacuum pump to help keep my length!! .I found out today that I did not have nerve sparring surgery so this is the only down side to the operation. I had my blood test today but am waiting for the results of my PSA the last two were undetectable so I will update on that when I get them. I have been pad free for two weeks now, but I am still hitting the pelvic floors daily so recovery going really well in that area. My mood swings have been all over the place lately some days very happy then the slightest thing and i'm off on one, I mentioned my mood swings to the doctor and he recommended i visit a support group to see if this helps, has anyone else been to one and did it help. 

Edited by member 16 Nov 2018 at 15:09  | Reason: Not specified

User
Posted 16 Nov 2018 at 15:55
Sorry you are still not quite right Eddy,

I’m lucky, inasmuch that I haven’t needed any pads since about three weeks post-op, five months ago. I never bothered with any pelvic floor exercises, although I did download a phone app for that, which someone here recommended, that I have since erased, as it was not required.

I think I would need a turbo-charged, latest model, Dyson mains-powered pump to regain the length ‘stolen’ from me my by surgeon, albeit to save my life😉. Am I bovvered? No. I’m just getting the manual one off the NHS.

I have not had any mood swings or depression since my diagnosis, as I researched the statistics about PCa and its morbidity rates. Others here who have lost family and friends to it, think I am callous about the matter, whereas I think I am being pragmatic.

One oncologist told me I am ‘cured’, the little liar, so I’ll go with that for now. I hope your PSA stays ‘undetectable’. If there is an increase in the future, it’s by no means the end of the world, just a load more hospital visits, drugs, ray-guns, etc., that’s if you can be bothered with any of it!

Best of luck for the future.

Cheers, John.

User
Posted 28 Nov 2018 at 11:59

Just received my latest PSA tests and after two undetectable tests this one is <0.02 ug/L. I was a bit concerned at first but I think this reading is still very good as it seems to be very low indeed

Edited by member 28 Nov 2018 at 17:25  | Reason: Not specified

User
Posted 28 Nov 2018 at 12:26

great news, kept it up

andy63

User
Posted 29 Nov 2018 at 00:29
If it's got the < sign it means it's undetectable the number just indicates the sensitivity of the test
User
Posted 17 Jan 2019 at 17:43

appointment at the ED clinic to discuss my impotence and have decided to try a vacuum pump to keep my equipment healthy just in case I recover my ability to have a erection. not that I need a running commentary (haha) but I would like to know if anyone has used this method and how did they find it and did it help.

User
Posted 17 Jan 2019 at 20:40
John was advised to use it 3 times a day, with 5 bursts of pumping each time. This is to go some way towards replicating what used to happen naturally - erections on waking up, during your sleep, in the shower etc. He didn't enjoy using the pump but the fear of atrophy (the death of the spongy tissue in the penis that fills with blood) meant that he did use it regularly when he wasn't feeling down.

When you get the pump, it may be accompanied by a DVD, or there are videos on Youtube. It is important to get a good seal, so trimming the pubic hair short helps as does using lots of lube on the inside and edge of the tube. After such a long time, your penis may be out of practice on engorging and it can be quite uncomfortable; the trick is to pump slowly and steadily, releasing the vacuum and starting again after a few minutes. When John started he could only get engorged to the E of Esteem on the side of the tube but with practice, was able to get much higher up the tube At least you can see the progress before your eyes.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 17 Jan 2019 at 20:52

Thanks Lyn for your reply, I was given a run though on how to use it so after a bit practice hopefully I will get there.

User
Posted 12 Feb 2019 at 16:38

The time has arrived had my regular PSA test today hopefully it's good news again when I visit the consultant  next week.

On a different note I had no nerve sparing when my prostate was removed so have no ability to fire up down below, I decided to try the vacuum pump to keep my equipment healthy so after 3 weeks of use I would totally recommend this to anyone else out there with the same problem, it's not the same as getting a normal erection but it's a great feeling seeing your manhood standing erect again, so anyone thinking about using one don't be put of by the thought of manually getting a erection give it a go and take it from their. A big thanks to Lynne for her advice.

 

 

 

User
Posted 21 Feb 2019 at 08:02

Hospital appointment today for my 3 monthly check up and hopefully my results stay the same, it's a funny thing but I haven't really given it thought, but when I went to bed last night all I could think of was what would my PSA be today. I was asked at the last appointment if I could get my tests done at the doctors so they could go discus  up to date information. 

User
Posted 21 Feb 2019 at 08:10
Good luck
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 21 Feb 2019 at 12:36

Appointment went well PSA undetectable again, pretty much totally continent just the very odd leak now and again. Off on holiday on the 4th March so will be able to relax it's my Wife's 60th I think she  needs a break, we forget that this affects other people in the family and some times it's easier for the person with the cancer to cope with it.

User
Posted 21 Feb 2019 at 13:43

Great news. I hope you and your wife have a fantastic well deserved holiday.

Ido4

 
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