Newbie...husband diagnosed in April

User

Posted 23 Sep 2018 at 18:11

Great update

Best wishes

Debby

User

Posted 02 Jan 2019 at 23:34

Hi everyone just a quick question. O/H finished his chemo is September, PSA in December 0.1

He had his latest Prostap injection in the 17th December, for the last couple of weeks he has had a really bad back, so much so he's on about going to doctors tomorrow. I know he's worrying that the cancer is spreading all over (I totally understand). But could this back ache and tiredness be due to all the treatment he's had so far this year, or should I be worried.

I'm the optimist the one who usually keeps everyone's spirits up but am having a wobble

Thanks kazzy

User

Posted 03 Jan 2019 at 00:25

With only a few hotspots on the pelvis, a recent scan and a stable PSA it is unlikely that the back pain is spinal mets suddenly appearing. Could be the ligaments & muscles softening as the HT really starts to affect his body (the HT can lead to something akin to a girl going through puberty - hips widen, muscles lose strength & tone) or he may be more restless at night or he might have a bit of an infection. Has he done any lifting / moving recently without realising that the HT will have made him less strong?

No harm in seeing the GP and getting checked for UTI.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 03 Jan 2019 at 08:45

Thank you Lynne... .only lifting/stretching he's done is putting Christmas light up outside so could be that. I've told him it's like going through the menopause like myself..I ache all over am tired, think he's still coming to terms with the fact he will never be cured.

Thank you for your quick and reassuring reply.

Katen

User

Posted 08 Feb 2019 at 18:28

I've had this a few times and put it down to the HT. I'm on Prostap too and have been for a year and 4 months. After thinking it's the cancer spreading and having my good wife try to put my mind at rest of course :-)

I've noticed that when I lower my excercise rate as you need to when having treatment (or a few lazy days) muscle wastage is so much faster now than when not on HT. With all the muscles in your back it's hard to keep them all active and he's been through a lot.

I've found falling asleep on the sofa at a funny angle, sleeping in bed funny or this week building a snowman with my son caused some real unusual back ache and weakness which can last for days.

Hope it's cleared up for him

Matt

User

Posted 08 Feb 2019 at 22:23

Hi Matt

Thank you for your reply...his backache has cleared up but he still gets the odd aches and pains and very tired, but he is working full-time and this involves a lot of traveling to Sweden so the tiredness can be caused by this aswell. Saw the consultant on Tuesday and everything still the same so she's really pleased.

Hope you are well

Thanjs

Karen

User

Posted 08 Feb 2019 at 23:10

He’s 6 months behind me with his chemo, I found the tiredness, while always there thanks to the HT, does get better over time after the treatment. I found chemo tough particularly for days 3-7 but otherwise ok, managed to work from home too.

It’s still early days. Sounds like he’s doing really well.

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