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PSA 6.5

User
Posted 13 Apr 2018 at 23:49

Ooh look Bollinge, you got it wrong twice in one thread. Perhaps you should stop giving advice until you know more?

Lazarus, that’s a long time to wait for a biopsy - did you ask whether it could be brought forward?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 14 Apr 2018 at 05:19

Matron,

I have a particular maxim in life, which is: “If I don’t know, I don’t say”. I have only ever commented on subjects of which I have specific knowledge, and the one time where I may have “got it wrong” was when a guy wrote that his PSA was 300 or something when he meant 0.03. I deleted that post, but in the event when he admitted his mistake I was absolutely correct in my initial comments.

You seem to regard this forum as your own personal fiefdom. You have been most helpful to sufferers on thousands of occasions, and are clearly extremely knowledgeable. Yet you have prejudices like telling me to “go to America” for treatment, against any criticism of the useless TRUS biopsy, about “rogue” surgeons opening their own private clinics, and against anyone with a sense of humour.

Leave me alone to deal with my cancer in my own way. Doing very nicely, actually!

User
Posted 14 Apr 2018 at 07:44

Originally Posted by: Online Community Member

Lazarus, that’s a long time to wait for a biopsy - did you ask whether it could be brought forward?

 

Hi Lyn

Yes that is what I thought to when I opened the envelopes my spirits dropped thinking that oh god I've got wait all that time!

But then I remembered what the Nurse said at my initial Hospital appointment on the 15th March when she explained the two biopsies that they did, (TRUS and Transperineal). When asked what I thought of them I said I preferred to have the Transperineal one and I asked if in the event of my needing a biopsy would I be consulted before hand as to my preference but the Nurse was unsure as to whether I would be consulted or not, (in the event I was not) but she did say that she knew only one of the consultants performed transperineal biopsies and there was a waiting list for them. 

As I said in the event I was NOT consulted as to which type of biopsy I preferred so I am assuming that the decision to put me in for a Transperineal biopsy is for clinical reasons - so I am happy because my understanding based on what I have learned thus far is that a Transperineal biopsy after a MRI scan has two distinct advantages over a TRUS biopsy - more chance of finding the cancer if there is any there and less chance of getting an infection.

I note that on one of the letter the name of the consultant has been changed and when I looked him up on the internet the web page said that he specialises in transperineal biopsies.

No I haven't asked for an earlier appointment because I assumed that I would have been given the earliest appointment possible.

However I have subsequently been advised to ask to be placed on a waiting list for cancellations which I intend to ring up and request on Monday.

Edited by member 14 Apr 2018 at 07:57  | Reason: Not specified

User
Posted 14 Apr 2018 at 16:48

Billings, your problem is too many interventions in too many cases, leading to a tad too much assertiveness for one relatively inexperienced in this forum. I advise holding back and sticking to areas of where your personal knowledge will be helpful to the occasional reader. Over-exposure reduces the impact of your views, don't you think?

AC

User
Posted 22 Apr 2018 at 20:30
Ooh sorry AC, I think I may have accidentally reported your post. It was unintentional, and I agree with everything you have said in it.

Lazarus- best of luck - I hope your biopsy goes well. With regard to advice on this thread, you’d b3 well advised to heed what Lyn has to say. She really does know what she is talking about.

Louise

User
Posted 23 Apr 2018 at 16:14

Louise, I deserve reporting for renaming Bollinge! But he's abstained since then so point must have been taken. Must learn not to trust the inbuilt spellchecker in Android!!

AC

User
Posted 25 Apr 2018 at 17:04

Rang and spoke to a nurse today who gave me some information regarding my forthcoming biopsy and results of the MRI scan I had on March 23rd and the blood test I had on the 15th March.

The blood test I had done at the hospital on the 15th March included a PSA test and interestingly enough my PSA score has gone down from 6.5 to 4.5 - although this is still too high as I am only 52.

My MRI scan is marked as 3 and although there is no evidence of a presence of a high grade cancer there is a lesion on the upper right side parameter which is recommended to be investigated further.

Hence why I am having a template transperineal biopsy on the 5th June.

The biopsy won't be a MRI-ultrasound fusion one but will use the MRI results as a guide to where to take the samples from.

They will also take some cores from the rest of the prostate.

I get the results from the biopsy on the following week (12 June)

User
Posted 26 Apr 2018 at 16:49

Lazarus, Good news (drop in PSA) is always welcome. I hope you get some more from the biopsy! At least then you will have firm knowledge rather than fears to take you forward.

Good luck!

AC

User
Posted 26 Apr 2018 at 18:45

Originally Posted by: Online Community Member

Lazarus, Good news (drop in PSA) is always welcome. I hope you get some more from the biopsy! At least then you will have firm knowledge rather than fears to take you forward.

Good luck!

AC

 

Thanks very much!

Good or bad I will just be glad when I know the facts - all this not knowing has completely done my head in.

It's just a shame that I still have 7 weeks to wait before I get the results but I was told at my first Hospital consultation on the 15th March that there was a waiting list for transperineal biopsies on account of the fact only one of the consultants does them.

However the medical team decided that the MRI is showing a specific area of my prostate that needs to be targeted for biopsy and they have chosen a template transperineal biopsy as the best method to do this.

I have requested that I am put on a cancellation list so there is always the possibility that I might not have wait that long if I am lucky.

 

For the past few weeks I have been experiencing an aching pain in my right testicle area - could this be caused by the lesion on my prostate does anyone know? 

Edited by member 26 Apr 2018 at 18:59  | Reason: Not specified

User
Posted 26 Apr 2018 at 18:57

It's unlikely Lazarus

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

 
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