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Dad's oncology appointment

User
Posted 06 Mar 2018 at 23:03
Not a bad habit to get into. One day after chemo and all going well so far which is great. I noticed that they've only given metoclopramide for sickness for 3 days after treatment. Did anyone experience sickness past the 3 days?
Miffy
User
Posted 07 Mar 2018 at 01:37
My partner was given sickness tablets but never took them as he did not feel sick at any point. I got him to take his temperature about every four hours through the day. I think the days that they are most open to infections are between the 5th and 10th days. Apart from the temperature there was no other sign, thankfully they caught it very early and got him on antibiotics, think they kept him in so long because it was over weekend and they did not want us to have to go into a&e on a Friday or Saturday night if he had to be readmitted. I presume they gave your father a card to carry with him saying he is on Steroids and is having chemo? It is important to take it wherever you go.
User
Posted 07 Mar 2018 at 10:06

I took the sickness tablets for the first three days after each treatment as I was advised that prevention was better than cure. I was given a full pack each time initially until I said I didn’t need anymore. So yes I did get more than three days worth but I never took them longer than that. I had bouts of retching quite regularly but not bad enough to do anything about.

As for temperature - I took that twice a day.

And just to add to Kita’s advice about the card. If your dad is unlucky enough to have to call the NHS out of hours service he must make them aware he is on chemotherapy. This all sounds a bit scary but is important.

Dave

Edited by member 07 Mar 2018 at 10:13  | Reason: Not specified

User
Posted 07 Mar 2018 at 17:35

Jiffy, I think three days might be tad optimistic. It could run into four or five if you unlucky.. I found the nausea effect diminishes gradually and not dramatically. On the fourth and fifth days, fewer tablets anyway, but hopefully none!

AC

User
Posted 07 Mar 2018 at 18:28

Ok, I'll have to get him to get more then just in case. The tablets must be doing their job as he still seems ok today. Thank you all so much for your input. It's good to have somewhere to ask questions and get answers from people going through it. It's very much appreciated!

Miffy
User
Posted 11 Mar 2018 at 20:39
Muddy how is your Dad doing? X
User
Posted 12 Mar 2018 at 17:36

I hope your Dad is doing well.

When on docetaxel, I experienced very mild, almost non-existent, side effects. No sickness etc, Only slight aches in some joints for a few hours for about 1 day on say day 3 after an infusion. These aches were easily dealt with by taking paracetamol.

The worse bit was self inflected: I choose to wear a cold cap and the first 5 mins gave me a frozen headache that I’d only ever had when scoffing an ice lolly as a lad. But I soon learnt to take a couple of painkillers 30 mins before wearing the cold cap and the cap meant I kept what little hair I had!

The routine at my hospital is that locals come in over 2 days and those from far away enjoy the one stop treatment. Bloods were taken and checked 1-2 hrs later and decision made on whether I returned the following day for the infusion.

My main advice is to hold onto the yellow card notifying medics that your dad is on chemo and therefore potentially vulnerable to infection. If your dad gets a sore throat,  raised or lowered temperature or any of the other warning signs, check with your hotline and if you need to go to A$E for antibiotics make sure that the triage nurse reads (and understands) the yellow card, which essentially notifies medics that they are required to follow an emergency protocol that you get seen immediately. No waiting!

Best wishes. I hope this is of use.

User
Posted 13 Mar 2018 at 09:49
Originally Posted by: Online Community Member
Muddy how is your Dad doing? X

Hi PenP,

It was a week yesterday since dad's first chemo and so far so good. Got that taste people talk about but that's been it really. The nurses said days 7-10 usually the worst so I think he's a bit apprehensive but he's coped ok up to now thank goodness.

Miffy
User
Posted 13 Mar 2018 at 09:53
Originally Posted by: Online Community Member
I hope your Dad is doing well.

When on docetaxel, I experienced very mild, almost non-existent, side effects. No sickness etc, Only slight aches in some joints for a few hours for about 1 day on say day 3 after an infusion. These aches were easily dealt with by taking paracetamol.

The worse bit was self inflected: I choose to wear a cold cap and the first 5 mins gave me a frozen headache that I’d only ever had when scoffing an ice lolly as a lad. But I soon learnt to take a couple of painkillers 30 mins before wearing the cold cap and the cap meant I kept what little hair I had!

The routine at my hospital is that locals come in over 2 days and those from far away enjoy the one stop treatment. Bloods were taken and checked 1-2 hrs later and decision made on whether I returned the following day for the infusion.

My main advice is to hold onto the yellow card notifying medics that your dad is on chemo and therefore potentially vulnerable to infection. If your dad gets a sore throat, raised or lowered temperature or any of the other warning signs, check with your hotline and if you need to go to A$E for antibiotics make sure that the triage nurse reads (and understands) the yellow card, which essentially notifies medics that they are required to follow an emergency protocol that you get seen immediately. No waiting!

Best wishes.I hope this is of use.

Hi Mickey,

Thanks for that. Dad's in a similar position he hasn't experienced any sickness as of yet which is great. He's not worried about the hair he's lucky in that he shaves it all off anyway says will save him from doing it! Sense of humour is important, if we don't laugh we cry. I had a look in his pack the other day and couldn't see the warning cards people have been telling me about. I'll have to check again. Thanks for reminding me!

Miffy
User
Posted 13 Mar 2018 at 11:37
Miffy sorry I called you Muddy :o)
User
Posted 13 Mar 2018 at 14:10

Miffy, the warning cards could well be in the steroids packs as I seem to remember that is what they should be carried for rather than actual chemotherapy.

Dave

User
Posted 13 Mar 2018 at 15:15

Hi Miffy

I should have said that my hospital uses a yellow Alert card, but other hospitals may use different coloured ones.

Essentially the wording is something like that shown in the images in this article. ..

 

https://goo.gl/images/Vs2vvp

 

Show it if you have to go to A&E.

 

Best wishes

 

M

 
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