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Beware of symptons

User
Posted 25 Feb 2018 at 18:16
So sorry for your loss absolutely devastating x
User
Posted 25 Feb 2018 at 19:07

A very sad but cautionary story

Barry
User
Posted 25 Feb 2018 at 21:53

So sorry to hear about your recent sad news. It must be devasting for you and your family. It takes courage to talk about these things in such a short time after your husbands passing.Thanks for sharing your story.
Thoughts are with you.
Keithyboy

User
Posted 01 Mar 2018 at 20:31
Hello again,

My husbands death was put as,progressing pnumonitis,and advanced metatastic carcinoma of the prostrate.i keep thinking back to monday before when we went to pick up xtandi tablets at hospital,he had a nosebleed on the sunday and was still bleeding on monday at hospital,they done blood tests and said his platlets were very low 55 supposed to be 400 to 500,

In the meantime they wanted to cauterise his nose,after waiting 4 hours were told do go to A & E

Luckily nurse saw us quick.before he went in he vommited loads of brown stuff,nurse just took it away,he had his nose done then were told we could go,after going back to other part of hospital to get nose cream,by this time i had to put him in wheelchair as he was going dizzy,we did not hear anything else about his blood,and by the following sunday he passed away.

Sorry for ranting,but just seems wrong.

Debby.

User
Posted 02 Mar 2018 at 08:55

Dear Debby,

I am so sorry to read your post. Please don’t apologise for ranting - I hope it helps you to tell us and to write it down, and we understand. I remember being in a similar situation when things accelerated fast at the end of my husband’s life, and feeling I needed someone to explain what had happened and why. And going over and over in your mind what has happened is perfectly normal.

Have you a doctor you trust to talk to? Someone involved enough to explain the last few weeks and days? I ask because this really helped me. I was tortured by what had happened, why and wondering whether I could have prevented it. Although painful, and grief takes its own time,I eventually found comfort in realising the extent of the damage to Mike’s body by the cancer and by some of the treatments. The quick pace it happened at the end was kinder to him than a longer period of suffering. And only looking backwards could I realise how ill and near the end of his life he had been. But initially it isn’t easy to realise for those of us who are loved ones and left alone with the shock and reality of our loss.

In Mike’s situation I believe there were similarities towards the end - Mike actually had very weakened and damaged stomach walls in addition to the very advanced cancer which we hadn’t really processed properly, or talked about. And like you, the day to day focus was dealing with the current issue of bleeding, medication, finding a wheelchair and other such things that you are suddenly responsible for. I now realise how grateful I am that Mike didn’t suffer for longer, that we hadn’t the chance to talk about it but the thought process took time.

I think it may help you to discuss with the Specialist Nurses from the PCUK site, 0800 074 8383, they are really good and understand where our family, friends and even the professionals involved in our loved ones care often don’t. Would it help to see if your GP or local hospice can arrange counselling? It isn’t for everyone but does help some.

Please take care of you, the shock of your loss and your carer’s role take their toll on your health so please be as gentle as you can with yourself. And remember we are here to help if we can.

Love Janet, x

User
Posted 02 Mar 2018 at 09:33

Such wise words from Janet who really understands what you are feeling Debby because even though people like me offer our thoughts unless you've been there you can't really understand.

I hope you find peace in your mind and heart.

We can't control the winds - but we can adjust our sails
User
Posted 04 Apr 2018 at 12:37

Thank you everyone for your kind words,a bit late in replying as only had funeral last week,had a wait of nearly 6 weeks,
Im still mad at how long it took my husband to be diagnosed,but hopefully now we seem to be hearing a lot more on prostrate cancer men will get tested and diagnosed earlier.

User
Posted 05 Apr 2018 at 11:07

Dear Debby,

Thank you for your update, and I am sorry to hear you had to wait nearly six weeks for your husband’s funeral.

Take care of you now. As you say we seem to be hearing much more now encouraging men to get tested and diagnosed earlier which is great. But this new life is all so fresh and unwanted for you and you really do need to take gentle steps and allow yourself to heal.

Janet, x

 
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