Possible Prostatitis but concerned. Advice welcomed.

User

Posted 26 Feb 2018 at 17:31

LynEyre I would be inclined to agree but the problem I seem to have is that there are two types of feelings. The first is in the bladder higher up where you feel that you could go to the bathroom but because in my case it's a "bladder" feeling then I can quite happily hold for a while sometimes a few hours. The feeling that gets me every time though is the urethra feeling which is far lower down, almost like a chill which you just can't hold and when you can end up going every ten minutes for hours or every ten minutes two or three times then you are fine for a bit. That's the feeling that I would say would be very difficult to retrain.

User

Posted 21 Apr 2018 at 08:39

Hi all, Sorry to be back but not quite sure where else to go as it seems most other forums re bladder and urinary issues are mainly regarding women's symptoms.

Saw my urologist again last week because the meds haven't worked a great deal and my bathrooms visits are still quite frequent, so much so that I am trying to get an excusal from Jury Duty due to the fact I would have to put my hand up every 15 minutes!! There is still discomfort in the urethra as well from time to time which as explained above makes retention more difficult.

The urologist has sent a letter to my GP regarding "urgency and discomfort around suprapubic region" and he is forwarding me for a flexible cystoscopy and has advised me on possible botox injections into the bladder as a possible treatment considering the fact I am on the highest meds available although as many will know on here no surgery is without risks.

The thing is I am still not convinced that it's 100% my bladder. I have noticed that after 6 hours sleep I will produce around 550 mls of urine. I'll go back to bed for an hour and when I get up I'll pee another 2-300 mls, now that doesn't seem right to me, it seems somewhat excessive a mere hour later. Apparently we produce a certain hormone that stops you going as much at night so could I be low on that> ? The urologist seems to think that's a difficult procedure to look at that possibility?! I also am surprised that they haven't as yet looked into whether my kidneys are working properly or once again if this really is a prostate issue which my previous GP whom has now emigrated thought it was.

So has anyone gone down the road of asking to see a different urologist for another opinion and it that a good idea as I don't want to disagree with this current guy but something just doesn't give me much confidence in him?

User

Posted 21 Apr 2018 at 09:35

I think you need to have the cystoscopy and then go from there. Not much point seeing a specialist and then preferring to believe Dr Google.

I understand that the botox injections are often very successful. If the cystoscopy is clear you could also ask for a referral for bladder retraining?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 21 Apr 2018 at 16:59

Max

Because I have a suprapubic catheter and bag I am aware of how much urine I produce. Over night I get between 300 and 1000 ml depending on intake. In the the morning I rise, empty the bag, drink about 250 ml and return to bed until the household had cleared the bathroom and gone, in that time, about an hour, I produce between 300 and 600 ml. When I was working and before RARP,I would void on getting up, get ready go out and drive for as much as five hours without the need to urinate. So I think going back to bed is the issue.

I have CK3 and it seems to have little effect on my urine output, it was only picked up by blood tests.

As suggested get your cystoscopy and take it from there.

Thanks Chris

User

Posted 11 May 2018 at 19:22

Hi Guys,

Well I had the cystoscopy and the results which I post below.

All ok'ish which is good obviously but I am still a tad concerned about this "pigmented prostate". I sort of remember during the procedure my prostate flashed up on screen (which surprised me as I was pretty sure they can't see the prostate on a cystoscopy?!) and it was covered in what I can only describe as purple pimples, and I sort of remember the consultant saying some of the pain could be caused by crystals that I pass (bladder, prostate stones?) but I wasn't quite "with it" so it didn't all go in.

The description of this pigmentation is not particularly detailed with the comment "might indicate prostatitis" and I am reluctant to consult Dr Google!! Obviously you have to trust your consultant but just wish they had been a tad more clear on what this mottled pigmentation actually is.

"Further to ******* underwent a flexible cystoscopy due to symptoms of bladder over activity and slight dysuria/penile pain.
The urethra was normal, the prostate was pigmented all over which might indicate prostatitis, but I am delighted to report there was no bladder pathology and both ureteric orifices looked normal.

I fully explained the findings to ***** and there is no doubt he does not need Finasteride because his prostate is not really enlarged (normal size) and if he does experience dysuria or penile pain, which can be an ongoing problem, he just needs to use some Ibuprofen.

His nocturia is variable from zero to twice (between 12 midnight and 6 am), passing a fair amount of urine between 300 and 400 mls each void.

I strongly advised him to stop drinking three hours before bedtime to avoid getting up at night. However, if he gets up two to three times every night despite this, he may benefit from a small dose of Desmopressin Acetate before going to bed.
At this stage he does not need any further investigation or treatment. Therefore I have reassured him and discharged him back to your care."

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