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PSMA scan for PSA of 0.023?

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User

Posted 12 Aug 2020 at 17:42

Originally Posted by: Online Community Member

Hi, I know it’s easy for me to say, being retired, but try to think of yourself when you do go back to work and don’t push yourself too hard too soon x

If only - the DfE will make sure that Ulsterman is tested to the limit and gets no rest or peace for the next few months.

Great result, by the way 👍

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 13 Aug 2020 at 05:54

I’ll be busy today Lyn - A level results day and let’s just say I really don’t like the government algorithm

User

Posted 13 Aug 2020 at 12:28

I have been providing supervision to distressed / livid HTs all week :-/

Actually, that could be said of the last 5 months!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 09 Sep 2020 at 18:06

Originally Posted by: Online Community Member

For anyone interested, this is the report on FACBC which has had great results in Italy and is now being trialled at a small number of hospitals in England (but again, with very narrow criteria)

http://www.europeanurology.com/article/S0302-2838(13)00905-6/fulltext/the-new-promise-of-facbc-position-emission-tomography-computed-tomography-in-the-localization-of-disease-relapse-after-radical-treatment-for-prostate-cancer-are-we-turning-to-the-right-radiotracer

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I accidentally came across this post and decided to have a look, only to find that they charge $35.95 for 24 hours access to this document!!! How ridiculous. Think I'll give it a miss...

User

Posted 10 Sep 2020 at 09:48

Yes strange that Lyn would share it knowing there is an associated cost.
Lyn could you give us the take home message maybe

UM great results. Keep kicking it’s butt

Bri

User

Posted 10 Sep 2020 at 15:52

Originally Posted by: Online Community Member

Bear in mind that CJ has had fancy scans at a much higher PSA than yours without any success. Having said that, if I thought I could get J an FACBC I would pay.

I posted this in January 2017 on another thread

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Posted Sunday, January 22, 2017 11:56:42 PM
It isn't a straightforward issue though, is it ChrisJ, and presumably the reason you are unlikely to be referred is that it is still in trial stage. Like John with the FACBC tracer, it seems you might not meet the narrow trial criteria :-(

This is a useful perspective from 'those that know'

http://www.birminghamprostateclinic.co.uk/prostate/assessments/pet-scans-for-prostate-cancer/

For anyone interested, this is the report on FACBC which has had great results in Italy and is now being trialled at a small number of hospitals in England (but again, with very narrow criteria)

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Please see above - I originally posted it in January 2017 when the UK arm of the trial was in its early stages and the article wasn't behind a pay wall :-/ When I quoted my own post in 2018, it still wasn't behind a pay wall - perhaps non subscribers have to pay for old papers once they are out of date?

The take home message was that FACBC (now referred to as Axumin) performed well at very low PSA levels to identify site of biochemical recurrence - not quite as well as Ga68 but cheaper to make and more stable.

Edited by member 10 Sep 2020 at 15:55 | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 26 Oct 2020 at 10:46

I’ve been reflecting this morning. It was in late October 2016 that I became a member of this forum. So, I’ve been with you lot for 4 years now. Where has the time gone? Happily, my cancer is in remission or may even be gone. My son is now at university, although his hall of residence has just been put on lockdown. Just back from a weekend to Grimsby where my daughter is on placement at a local hospital training to be a doctor (she checked first, I was allowed to visit).

so, 4 years on, things are fine. Thank you all for sharing your knowledge, your love and care. I would not have wanted to make this Cancer journey without this forum or without the PCUK specialist nurses.

User

Posted 26 Oct 2020 at 15:02

Lovely post Ulsterman. Long may you stay well.

Ido4

User

Posted 26 Oct 2020 at 15:43

Best wishes to you 🌹

User

Posted 26 Oct 2020 at 16:26

Great news bud !

If life gives you lemons , then make lemonade

User

Posted 26 Oct 2020 at 16:35

Where indeed? Your treatment and choices seem as good as it gets with the scans and RT so soon after the op and starting RT at psa 0.02.

Quite a journey, so a weekend in Grimsby sounds just the tonic. How great that your daughter is training to be a doctor.

You've been a member 1 month longer than me. My mind doesn't like to think of how my case is, all I know is, so far so good.

Long may it be for us all,
Regards Peter

User

Posted 13 Dec 2020 at 08:54

Originally Posted by: Online Community Member

One other piece of news - I’ve been approved for the penile implant. Waiting list times will have changed because of Covid 19, but at least I’m approved. My local hospital doesn’t do the operation, I’ll be off to UCLH, which I’m very happy about.

Thrilled to hear this - and wondering if you have been able to go ahead with the treatment? Maybe I missed your update, sorry if I did. Wishing you well either way.

User

Posted 13 Dec 2020 at 14:48

Still on the waiting list. Have a viewing appointment on 8th January to see the devices and choose which one I want. Don’t know how long after that I’ll have to wait.

User

Posted 13 Dec 2020 at 15:23

Ulsterman best wishes for the wait and the outcome.

User

Posted 13 Dec 2020 at 15:33

Blimey Walter,

4 years. I remember my initial post to you.

.. I had to look it up. It was a drop in 'Lions' PSA testing event ? I expect you remember the time and place. I remember it well as my cousin was discussing similar re. his Rotary club connections.

.. I was probably quite negative towards his idea at the time, a little knowledge etc etc.

You have certainly travelled a long way in 4 years, and still a youngster..

Take care and here's to 2021..

Gordon

User

Posted 17 Feb 2021 at 10:56

Four and a bit years since my prostatectomy. Two and a half since salvage radiotherapy. One and a half since finishing bicalutimide. Another PSA test result today. Still less than 0.006. Another test in 12 months.

The doctors have done a good job on me.

Penile implant surgery indefinitely delayed owing to Covid - 19. I’ll keep you all updated.

Thanks for all the support over the years. Much love to all as we continue this battle.

User

Posted 17 Feb 2021 at 11:08

Good news ulsterman

User

Posted 17 Feb 2021 at 11:10

That's great news on the PSA front Ulsterman - I would be a bit tense about waiting 12 months for the next PSA test, though :-/

Stay well x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 17 Feb 2021 at 11:31

I thought 12 months was pretty standard at this stage. Even if my PSA started to rise and they found that in say six months’ time, surely it wouldn’t rise that much as to warrant treatment or investigation. Why are you a bit nervous, Lyn? I’m puzzled. Is it about doubling time?

User

Posted 17 Feb 2021 at 14:17

Enjoy the 12 months off! You can't have a better reading than <0.006.

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