I'm interested in conversations about and I want to talk about

Know exactly what you want?

Show search

Notification

Error

Rising PSA post RP

Email this conversation Print this conversation

User

Posted 16 Apr 2018 at 15:50

Brill

User

Posted 16 Apr 2018 at 16:48

David

Great news,hope it continues.

Thanks Chris

User

Posted 16 Apr 2018 at 16:50

Great News Hammersbest keep it up

Good luck on the 3rd Ann

Cheers

Bill

User

Posted 16 Apr 2018 at 22:15

Thank you - with you guys on my side I feel the force is with me!!

User

Posted 16 Apr 2018 at 22:20

That’s fantastic news !!! 😁😁😁

Viv
X

The only time you should look back is to see how far you have come

User

Posted 17 Apr 2018 at 08:06

Hammersbest

Thank you for posting this good news.I complete my SRT (20 sessions) this afternoon.I saw the oncologist last week who has twice used that great word 'curable' .We don't half cling on to their adjectives don't we.Like you I aim to relax and enjoy the summer as I don't see him again till October.I will also be raising a glass this evening to us all. All the very best mate.

Paul

User

Posted 20 Sep 2018 at 08:15

Hi, everyone and apologies for the lack of action and reaction on my part concerning this extremely worthwhile site. Since I last made a post I have enjoyed the wonderful summer and my wife and I are lucky to be currently residing in Spain as I attempt to make this latest Post.

Fortunately, I have had two PSA readings (April and July) since SRT was completed in December 2017 and both were good with undetectable figures. However, in recent months I have had difficult bowel problems ... constipation, diarrhoea, painful movements, intermittent rectal bleeding, a little pain in the rectum area and a very unclear bowel movement pattern. I’ve upped my fibre intake in an attempt to soften my stools, but the sometimes rectal bleeding continues unabated.

Was talking to a fellow PC sufferer who said that a condition called radiation prostitis might be the cause. Would really welcome any comments from you guys regarding this. I see the Oncologist in October when hopefully the PSA reading will be good again when I will, of course, inform of her of what’s been happening to me in recent months. However, before this appointment I really would welcome any views from Members who might also have exoerienced my problem(s).

As said, I apologise for always being a receiver rather than a giver concerning this site and, of course, I continue to wish all fellow suffers and their carers every good vibe, but any help or advice given would be most appreciated from you.

User

Posted 20 Sep 2018 at 18:58

Certainly sounds like radiation proctitis. Rather than wait for your consultant appointment, perhaps ask your local doctor about the possibility of being prescribed Colifoam?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 21 Sep 2018 at 06:59

Once again, thank you for your quick response, Lyn. As said, lucky me is enjoying the good life in sunny Spain at this time and our anticipated return to the UK won’t be until early October. I contacted my son to book me an appointment with my GP asap when we do return and the earliest he could see me was 8th October. Before then I might try to obtain Colifoam at the local pharmacy and, if I succeed, will give it a try in the hope that it will ease my symptoms. Failing that, guess I’ll just have to grin and bear it. Hope all well with yourself and hubby.

User

Posted 25 Oct 2018 at 15:22

Hi, Everyone - hope all OK with you guys and that you are all as well as can be expected whilst battling this nasty illness.

It’s another me, me, me Post I’m afraid, but I feel I must share with you the good news my Oncologist gave me at my local hospital this morning. For the third PSA reading in a row, since finishing SRT in December 2017, she was delighted to inform me that my reading is currently undetectable on the machinery they use. You can imagine how happy I was to receive this fantastic information.

In my file she was sorry to see that I had recently undergone a Colonoscopy procedure (18/10), because for the past three months my bowel actions have been very urgent, unpredictable and often accompanied with blood. The guy who did the procedure cut out nine polyps which were then sent for biopsy. To date I have received no news on the biopsies. He also wants to do another Colonoscopy session in the near future because there are two polyps still to be dealt with. Lucky me!!! However, the good news was that on his camera reaching the bowel, his trained eye could see nothing too sinister. There was radiotherapy damage showing in the lining of the anal tube and he said this was the nasty side effect of the radiation and hence my current ‘number two‘ problems. My Oncologist sympathised but wasn’t too peturbed by this side effect. She is hopeful that, in time, the problem will clear up naturally and so told me to keep on using the steroid cream that has been prescribed. If it doesn’t heal, then she also told me that other sufferers, who have experienced the same complaint, had been helped with laser surgery. So this mght be a future option for me.

However, this didn’t deter from the grateful feelings I’d had from my very good PSA reading. I have to see the Urologist in March 2019 and if the good news continues then the Oncologist will next see me in the September.

Best wishes to you ALL - David

User

Posted 26 Oct 2018 at 16:16

Well done!

Sorry to hear about the bowel issues. I hope they get it sorted!

User

Posted 26 Oct 2018 at 16:59

Thanks. Just hope your post radiotherapy PSA readings will be as good as mine.

The hospital phoned me this afternoon informing me they will complete the second colonoscopy procedure on 20th November. Fingers crossed the removal of the last two polyps will do the trick. Someting to look forward? to but fingers crossed nevertheless.

Good luck.

David

User

Posted 05 Mar 2019 at 05:45

Concerned to say the least. My wife and I had our annual winter break in our apartment in Spain and returned to the UK early March. The weather was truly wonderful throughout our 11 week stay. However, my daily walks were curtailed this time because whenever I attempted them I had severe breathless problems. Saw a Doc in Spain who prescribed anti-biotics but to no effect. The symptoms persisted and I saw my own GP yesterday who immediately sent me for a chest x-ray and I now await its result. Yes, I think the word 'concerned' is an understatement at this time.

User

Posted 15 Oct 2019 at 18:41

Haven’t posted in a wee while but still keeping tabs on this worthwhile site from time to time and enjoying the good Posts from members and feeling deflated and sad at the not so good ones. Thought I’d just do a quick update on my own situation for anyone interested... When we arrived back from Spain in early March this year my breathing was extremely poor and I couldn’t walk 50 yards without having to stop and it got so bad I was eventually hospitalised at the end of April. I’d never had heart problems before but after being transferred from my local hospital to the excellent St Bartholomews in London, I was diagnosed with severe aorta valve damage and it was eventually decided that I should have a TAVR procedure where the clapped out aorta valve is replaced with a mechanical one. Unfortunately, whilst carrying out the surgery in late May, the femural artery was damaged and subsequently I still can’t walk very far because the blood flow to my right leg and foot is restricted and so cramps up causing a fair bit of pain. But enough of the bad news because since the procedure my breathing has been 100% better. The amazing outcome of all this is that I am now seeing Oncology, Cardiology, Urology and Vascular experts which obviously makes me a real professional in the hospital visit stakes. But I digress because what I’m also really delighted about is that after seeing my oncologist in late September my PSA reading is still considered as undetectable. It’s been a really difficult year for me but hopefully I’m finishing it with the best possible news.

User

Posted 16 Oct 2019 at 10:18

Glad to hear your PSA is still undetectable, that’s great.

Also very positive news on sorting out your aortic valve problem.

All the best,

Ido4

Email this conversation Print this conversation

Join the online community now.

Click through to become a member and gain access to support, information and real time replies.