I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

<12

Husband diagnosed please help

User
Posted 01 Jul 2017 at 20:37

Hi Peggy, Even if the cancer has spread there are treatments than will help. My husband is only 3 months in and his has spread to bones and lymph nodes. He's on Hormone Therapy and has just started Chemo this week. So far no noticeable side effects and has managed to go to work each day since Chemo started. So don't worry there can be things that will help. We did guess right from the start that his was advanced as his PSA was over a thousand. I do understand the worry and all the waiting for scans and results are difficult to cope with.

User
Posted 01 Jul 2017 at 20:39

If you click on someone's photo you can read their profile. My dad and father-in-law both had prostate cancer and then my husband was diagnosed when he was 50. Dad had it when he was 60 and he was one of the first to have what was then experimental nerve sparing surgery - the cancer came back about 3 years ago but for the time being he doesn't want to have any more treatment. Stan was 79 when he was diagnosed and rejected all the advice about having some treatment - he died 4 years later. My husband had the operation but it failed so he had to have salvage RT - now it seems that has failed as well.

Supporting that many men, I have been a member on here for a long time and I am a researcher by nature so I read everything that is published but ultimately just a wife like you. You will quickly come to learn all these things about the different treatments and scores as well.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 01 Jul 2017 at 20:58
Ladies you are an inspiration throughout the day reading these posts I am hopefully realising when the nurse said he will be with you for years wasn't something to make me feel better .I thought last week when he was diagnosed that was it but now I know there's treatment and although it's going to be as the nurse said a tough few months and our lives will never be simple you ladies have helped so much . I can't believe some of the PSA levels when my hubby's was 6.4 . My hubby has said he hopes it hasn't spread and its Radiotherapy but I said which ever it is it' we have to get through it but just asking is the chemo regime the same for all if so do you know sessions etc and hiw far apart they are or does it depend on different factors .

Xxx

Edited by member 01 Jul 2017 at 21:08  | Reason: Not specified

User
Posted 01 Jul 2017 at 21:27

Chemo is normally Docetaxel for Prostate Cancer. If done early with Hormone Treatment then it is likely to be 6 sessions at 21 day intervals. Each one will depend on blood tests beforehand which need to be OK for treatment to go ahead. There are a number of people on this site who have posted information as they were having treatment. I found these really helpful but I would suggest that they would only be applicable if that was the course of action suggested. Hopefully your husbands will be contained within the prostate.

User
Posted 03 Jul 2017 at 08:02
Morning lovely people MRI done yesterday feel a bit anyhow this morning .We haven't been apart since diagnosis and this morning he has gone back work . Why am I feeling so low it's not my illness and he's acting as everything's normal . One thing I want to ask we have 5 grown up children and hubby doesn't want to tell them until we had holidays in a few weeks and they have all had holidays which will be end of August as he says he will only be on HT for 3 months so why tell them yet tell them before whichever treatment it is . I agree to some extent as they all havethings going on at minute as well and so what's best .3 of the children are mine 2 hubby's and due to issues they don't always get on and we know if we tell them all together reactions will be so different .I know it's a horrible thing to say but the most upset will be my 2 girls one whiich has been through chemoradiation and the other one is the one that's always the one that steps up when needed and I know it will upset hubby so advice please keeping it from my two girls is not easy and I found myself biting my lip on Saturday when with one of my girls . He's got bone scan tommorow and treatment available so why won't this awful feeling in my heart go away .

Edited by member 03 Jul 2017 at 08:25  | Reason: Not specified

User
Posted 04 Jul 2017 at 11:57
Sitting waiting to return to hospital for hubby's bone scan and phone rings woman says our financial advisor has ask her to give us a ring after a conversation earlier in the year . Nearly blew a gasket she said that she had been told we were thinking about updating our wills 😱😨😰 I said you couldn't have phones at a worse time anyway want to ask a question please. .Rightly or wrongly I have read different posts on here one saying about terminal diagnosis can I ask how can they say what treatment they are going to do without the scan results ? And how if it has spread where it has gone to will that change treatment options One thing that popped into my head was when consultant say hubby was still young enough for treatment . So do they know by type of C that or will they change minds on results I'm sorry but I'm so worried your posts here gave me calm but now reading about spread to lungs etc and the word terminal on top of phone call .Please guys tell me to stop it
User
Posted 04 Jul 2017 at 15:13

Peggy,

You will have realized from the replies you have received and members histology that are recorded that Prostate Cancer (PCa), is highly complex and with outcomes that can be quite different, even where two men have similar PSA, Gleason score and staging. Some types of PCa respond differently to various treatments for example. Surgery may not be suitable or the best treatment option for some men for example due to other problems or the cancer having advanced beyond the reach of the knife. Some PCa is radio resistant and other treatments may be better but the majority of men at least have surgery or radiotherapy as primary treatment although in the case of radiotherapy, of which there are several types, Hormone therapy is usually started prior to the RT and continued after it. The consultant should discuss suitable treatment options with the patient which can mean it being left to a patient to choose which one to go for. (All treatment options have pros and cons an potential adverse side effects). Therefore, it is worth researching treatments and generally learning more about this disease. A very good place to start is by going to the publications section on the main part of this site and obtaining the 'Tool Kit'.

Treatment does not work well in every case but as it improves, along with early diagnosis, men with PCa are overall living longer and advances mean this should continue to be the case.

Barry
User
Posted 04 Jul 2017 at 15:35
Thank you for reply hubby can't have op nurse said as he had triple heart bypass 7/8 years ago nurse just said if contained be HT and RT if spread HT and chemo we don't know mow till next week when get results if spread but nurse say that start HT so we thought that's what it is I just wonder do they know the type of PC from biopsy therefore know what treatment it should be . I just wonder how they can say treatment when not knowing if contained or not .Bine scan done but they sent hubby for normal X-ray on shoulder as something must have shown they ask him if he had had a fall or accident bu said could be an old fracture .

Edited by member 04 Jul 2017 at 15:39  | Reason: Not specified

User
Posted 05 Jul 2017 at 08:45

Hi Peggy,
Just to say I have seen that you sent me a message but I don't do private messages ... I think it is much safer to ask and answer questions publicly so that any errors or misinformation can be corrected by others.

As to your question above, you are overthinking and letting your imagination run wild so it would be better for your own well-being if you could try to reign it in a bit and wait for the results of the tests. However you are unlikely to get a terminal diagnosis - terminal means there is only a short time left to live and all treatments except pain/symptom relief have been stopped. If your husband'a scans are okay he will get a curative diagnosis - that means they will offer him radiotherapy because they believe it may cure the cancer (technically there is no cure for cancer and the better word for it is that they hope the radiotherapy will put him into full remission). If the scans show the cancer has spread, he will get a diagnosis of advanced / incurable cancer - it can't be cured so they will offer hormone treatment with chemo to control it. Some men on this forum are still here and reasonably healthy 10 years or more after an incurable diagnosis, some live for only a short time. Your oncologist would not be able to give a prediction of how long because he will have no way of guessing how many years the hormones will work for.

In answer to one of your other queries, the doctors can tell from the biopsy how aggressive it is and whether it is one of the rare types that don't work with hormones. The fact that your OH has already been told he will be on hormones means he doesn't have that rare type.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 05 Jul 2017 at 09:52
Thank you I will try to do as you suggest just shouldn't read certain posts as the one I read was someone who had spread to bone and was told 2/3 years but still here 8 years on I suppose trying to see why some live long and others don't but who can anwser that Is it because as you say to do with the hormone therapy success or that they have other problems .The nurse seemed positive and husband is on the whole just me xxx

Edited by member 05 Jul 2017 at 10:07  | Reason: Not specified

User
Posted 05 Jul 2017 at 23:50

"....why some live long and others don't........"

So many reasons which include how early diagnosed, how timely and good treatment is, type of cancer, age of patient, response to treatment and if cancer mutates and spreads. There is also another imponderable in that only time shows the effect of new treatments and drugs on extending the lives of men with PCa. Very difficult for even patient's consultant to forecast life expectancy as you have seen from members. It really amounts to how lucky a man is. The thing to do is try to put such thoughts aside and concentrate on enjoying the time you have.

Barry
User
Posted 06 Jul 2017 at 09:17
Thank you kind sir for reply I think all of you are right no one knows but the fact consultant say he's still young enough fit treatment and that Nurse has told us what treatment will be either way gives hope .Wish I hadn't cried so much might have ask more questions bug al, I could say was I don't want to loose him .She said you won't be here for years Mmm just hope that wasn't to shut me up crying .Anyway thank you all will know Tuesday. And then we are away for 2 weeks well that's if get insurance our Anual policy want to know if advanced before they say . You guys are an inspiration and I hope I can be same soon . I think its not knowing if spread although my hearts saying at his age I feel it's been there a long time so has they say his Tumour wasn't secreting so ? Anyway guys you are amazing .

Edited by member 06 Jul 2017 at 10:01  | Reason: Not specified

User
Posted 06 Jul 2017 at 12:39
Ok guys just had letter from the Dr hubby saw who told him he had PC I'm shaking have tried to phone the nurse at hospital but no anwser please help . it says some of which we knew PSA 6.4. DRE firm volume 32 cm IPSS 18/3 bilateral Gleason 9 and that she did urgent staging investigations .Ok spoke to nurse who explained things panic over but leaving score on door for u guys to see

Edited by member 06 Jul 2017 at 13:18  | Reason: Not specified

User
Posted 11 Jul 2017 at 13:10
Hi all thought I give you update .Been to hospital today for scan results all clear PC contained so having Hormone therapy then RT in around 3 months . Just waiting for call back from holiday insurance company to see if covered on our Annual policy . Thank you all for helping me through past few weeks much appreciated .xxxxx
 
Forum Jump  
<12
©2025 Prostate Cancer UK