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User
Posted 16 May 2017 at 15:33

I'm just typing this message to push this thread to the top of the recent messages in case Eleanor pops in so that she knows that we are thinking of her and Tony xxx

User
Posted 16 May 2017 at 15:57

Nice one sallyyy.

User
Posted 16 May 2017 at 16:24

We all think of them.

Let them know.

User
Posted 16 May 2017 at 20:12

Thanks Sally and all...really do appreciate all your thoughts and good wishes. Have been popping in occasionally to catch up on how people are doing but have been a bit too overwhelmed to contribute much. Hope to do so again soon - the forum remains a special and helpful place for me. And you are a special and helpful set of people!

The terminal prognosis has been a lot to get our heads around (odd since we knew that this was the destination we were heading for) and we are only just maybe/maybe not/tentatively sticking our heads out of the hamster hole and realising that it isn't actually over yet. We are getting superbly intelligent, compassionate and thoughtful support from the palliative care team. And Tony continues to be extraordinary.

E

xxx

User
Posted 16 May 2017 at 20:28

When you come here Eleanor it should be a time for taking, all your giving is now for Tony.

User
Posted 16 May 2017 at 21:38

Thinking about you Eleanor x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 17 May 2017 at 20:24
Ruth the old saying ! It's not over till it's over ! and certainly not until the Fat Lady Sings is so true . When any of us is handed the terminal card our first instinct is panick and terror , then we learn to live with the diagnosis ( it takes awhile ) but we do learn to live with it because staying in that terror moment is so draining .

Th second phase of emotion is what I call the hope acceptance stage where we understand the predicament we fully accept the reality of what is happening BUT we aren't giving up hope just yet.

I did a poem ages ago about the train journey ( apparently it's on page 2 ) (thank you Lyn) some of us take the scenic route with a few stops on the way and even a bit of sight seeing , others take the non stopper but all of us with the T ticket arrive at the same station .

Thinking of you X

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 20 Jun 2017 at 12:23

Such beautiful words x

User
Posted 21 Jun 2017 at 19:41

Eleanor, just wondering how you are both doing?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 06 Aug 2017 at 21:06
Eleanor,

Please accept my sincerest condolonces on the loss of your partner just over a month ago.

With your usual dignity you decided to share this sad news by quietly updating your profile.

Take care.

User
Posted 07 Aug 2017 at 13:57

This is terrible! How did we miss this? Eleanor, I am so, so sorry to know that Tony has gone and that a whole month has slipped by without us twigging - and there you have been, quietly supporting others and sharing your experience. You have such a good heart; my love and thoughts are with you xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 07 Aug 2017 at 14:38

Thank you Mona, and Lyn.

Didn't want to post the news at the time. So many good people on this site fighting hard to stay positive in spite of all the horrors that this disease throws at them, I though I'd wait until I had a bit of perspective (probably several decades at this rate) rather than unleashing a flood of misery on all you kind souls. A couple of people guessed and have sent me messages so I haven't felt forgotten. And it's been good to read some of the recent updates from Julie, Paul and David, and others who have been so supportive of me.

The loss of my dear soulmate is as absolutely awful and painful as I thought it might be. No help for it I suppose. But at least Tony died at home and wasn't in pain, two aspects that will eventually be a huge comfort.

And I've learned some things that might be useful to others at some point - about palliative sedation, Dignitas and Exit, and about D-I-Y funerals. I'm currently learning, to my cost, about how not to do a probate application. And about the fried egg theory of grief: https://www.funeralzone.co.uk/help-resources/bereavement-support/the-grieving-process/tonkins-model-of-grief which seems to sum up my current state of despair but also to offer some future hope.

Would have been nicer to have been able to remain in ignorance but none of us have been given that choice sadly.

Love

Ruth / Eleanor

xxx

 

 

 

User
Posted 07 Aug 2017 at 14:40

Still sending love Eleanor. Tony was very lucky to have you - and I know you felt very lucky to have him xx

User
Posted 07 Aug 2017 at 15:16
I am so sorry to read of your loss, my sincere condolences

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 07 Aug 2017 at 16:55

Please accept my sincere condolences too Eleanor.

What a strong, brave wife you have been. The love of your life is now at peace and out of pain. Life will go on for you and I really hope that all those lovely memories will give you strength and heart to continue, just as Tony would have wanted you to, I'm sure.

Best Wishes

Sandra

****

We can't control the winds - but we can adjust our sails
User
Posted 07 Aug 2017 at 18:15

So sorry Eleanor for your loss , but always comforting to hear that there can be a calm and painless exit when the time comes , so thank you for sharing with us as ever.
The fried egg theory was a good read. I hope truly your white will spread in good time , and that the yolk won't seem such an ocean xxx

If life gives you lemons , then make lemonade

User
Posted 07 Aug 2017 at 20:41

Ruth ,

I am so late at catching up with your loss, please accept my belated condolences. Though Tony will now be at peace but you have to deal with all the issues which are left. You will I hope have lots of supportive friends to help you through and there are us bunch on here that try to do the same. Thinking of you at this time.

Edited by member 07 Aug 2017 at 20:42  | Reason: Not specified

User
Posted 08 Aug 2017 at 06:16

Thinking of you at this sad time
Best wishes
Debby

User
Posted 08 Aug 2017 at 09:32

Dear Ruth,

I am so sorry to read of your loss of your dear Tony. I can imagine how you are feeling now - it is now over seven years since I lost my husband, Mike, in similar circumstances.

The fried egg theory is a good one, I have always heard it referred to as 'balls in a jar' but it is similar. Initially the theory goes the grief is all-consuming but as you start to change your life the ball of grief reduces as other balls enter the jar.

As you say we are all different but if the fried egg theory has resonated with you you may take a similar route to me. I can say for me over time the grief has softened and little pockets of happiness started to creep in. Initially life had no purpose at all and I felt completely lost, but I hope it helps you to know that I am now almost always happy. I think of Mike often, he is really still, and always will be, a part of my life. But my memories have become comfortable and comforting. You may think this is impossible for you now, and it does take time, and as long as it takes, there is no timescale. But the overwhelming feelings you have now will reduce.

Initially there is so much to do, but slowly when I was ready I found I took up new interests and met new people. I also took up volunteering, which put some purpose back into life. It was really one foot in front of the other and several steps backwards to begin, but I am now fortunate to be living a good happy life, with Mike tucked away quietly in my heart forever.

I hope my story helps just a little to give you hope. Now your mind and body must be exhausted and you need to take care of you as you start to heal. Please take any offers of help, people like to help but don't always know what to do, and just little bits of practical help can help you so much.

I wish I could make it easier for you, but as I was told at a similar time, it is a tunnel we go through and eventually we reach the light at the other end.

Take care, Janet, x

User
Posted 08 Aug 2017 at 11:10

I am so sorry to hear of your loss, I hope you can take some comfort that everyone on here is thinking of you

Take care
Viv
X

The only time you should look back is to see how far you have come
 
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