Intraductal

User

Posted 02 Nov 2019 at 22:27

Thanks Lyn for trying and the good wishes.

i think Intraductal is poorly understood because it’s usually associated with other tumours there are very few people with what may be called pure Intraductal, I think the medical view is there’s a tumour in there somewhere and we will biopsy till we find it. It seems Differential diagnosis isn’t easy or highly reproducible between pathologists. Patient numbers are probably too small for trials unless done continent wide. There’s not a lot of money to be had from treating it either.

On Tuesday If there’s a tumour then game over. If there’s no tumour yet then they will probably want to go perineal to look even more.

I’m 73 have no symptoms, low PSA, have had several brushes with my mortality at 50 and 60 so maybe have a different perspective. I have lots of questions to ask Tuesday from what I have read if there is nothing - hope I get chance to ask them.

best wishes

User

Posted 02 Nov 2019 at 22:48

I think if you were my dad I would want to ask about the DRE finding, which doesn’t fit with everything else. Specifically, the position of the 2 positive cores would be useful / reassuring perhaps?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 05 Nov 2019 at 13:53

Well it’s acinar not Intraductal so all my research goes to waste.

2 of 22 second set of cores had 5% of acinar so it’s Gleason 6 and probably active monitoring for me depending on CT scan, but bone scan negative and MRI says no lymph nodes affected. I suppose it’s great news or at the least the best news I could expect.

Thanks for listening to the trials and tribulations.

Best wishes

User

Posted 05 Nov 2019 at 16:16

Brilliant - I am tee total but in your shoes I would probably open a nice bottle of red

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 06 Nov 2019 at 09:21

Good news that it isn’t intraductal.

All the best,

Ido4

User

Posted 06 Nov 2019 at 10:26

Thanks Ido

Just waiting for CT scan results for sign off. A lot better than expected. It seems like the original samples were unclear as they haven’t said it’s acinar plus ID. Shows the foibles of intraductal pathology.

Have now seen a debate as to whether Gleason 6 should be called cancer as 98 % 15 year survival matches 99% for RO and Radiotherapy and NICE suggests it’s better not found.

It’s been some journey. Hope things go well for you. Best wishes

User

Posted 07 Nov 2019 at 12:42

Well this is a roller coaster. MRI scan now assessed as T3 so watch and wait not an option. Have asked for second opinion and appts with surgeons and oncologists being made. Not such a happy day!

User

Posted 07 Nov 2019 at 18:29

Unfortunately if it is T3 you will have to decide on a radical treatment option.

Ido4

User

Posted 07 Nov 2019 at 21:08

Looking that way!

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