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"The road ahead"!

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User
Posted 09 Oct 2019 at 13:33

Good Luck, I hope it all goes well for you.

User
Posted 09 Oct 2019 at 13:35
Sending my best wishes.
User
Posted 09 Oct 2019 at 14:58

All the best Valleyboy. Hope the treatment works in your case.

Ido4

User
Posted 09 Oct 2019 at 15:05

VB


All the best, hope it is a success.


Thanks Chris

User
Posted 09 Oct 2019 at 17:04

Hi Valley Boy 


Good news your on your way at last the very best wishes from another valley boy fingers crossed all will be well with you


Keep the Faith


R

User
Posted 09 Oct 2019 at 17:15

All the best Valley boy, here's hoping it goes well. 


Sandy

User
Posted 11 Oct 2019 at 07:07
Well it’s the morning after the night before!!
Had my Lutetium treatment in Windsor yesterday, and so far no issues.
3 hours to Windsor in private hire car. Approx 4 hours in treatment room, (Inc. lunch), 3 hours back. So long but relaxing day.
Constipation also cleared this morning which is another bonus.
Don’t know if it psychological but on waking I currently have no pain at all? No chest, leg, hip, or rib pain which has been bugging me for over a week.
Just had my morning tabs with the addition of 4 times deximethazone, which I new take at 4 per day for 3 days, the 3 per day for 4 days.
Also supplied with some antibiotics to take if I develop any water infection.
So at the moment it’s onwards and upwards? With full bloods required in 2 and 4 weeks time to check if I’m still eligible for infusion 2 in approx 6 weeks time.
Anyway just off for a jog and a game of golf, neither of which I’ve been able to do since March??(only joking)!! Gonna take it easy and see how things develop.
Thanks for all the good wishes and I ll update as/when applicable.
Keep the Faith
J.
User
Posted 11 Oct 2019 at 08:27

Good to hear your news Valleyboy.


Interesting that you are taking Dexamethasone.  They have not prescribed anything in my case


Your lack of pain also mirrors my experience


Delighted to see you are back on the golf course.


Regards


Dave


 


 

"Incurable cancer does not mean it is untreatable and does not mean it is terminal either"
User
Posted 11 Oct 2019 at 11:58

Good to hear you have finally started the treatment and that the pain you were having has deminished. I contacted Bristol today to see if they are still recruiting, but they have now filled all available places so that's no longer an option for me. Fingers crossed for you that it gives the cancer a good kicking.


All the best


Roy

User
Posted 11 Oct 2019 at 18:17

Hi Valley Boy 


A very busy day but you are through the first hurdle and a six week break till the next keep on going J 


Very best wishes and keep the faith


R

User
Posted 14 Oct 2019 at 10:04
Ok. Quick update day 5 after 1st Lutetium 177 infusion.
After first day when everything seemed to calm down there’s been a bit of a change—since then Heavy cold sweats at least 4 times a night, necessitating complete change of bed and sleeping clothes. Also bit of a dry mouth but nothing that can’t be controlled by a drink or a boiled sweet.
Some pain in lower back area, but then again as my regime at the moment is mainly bed, sit down in chair, bed, that’s hardly surprising. Hoping to get back to a bit more exercise next week but very lethargic at mo.
Still staying at least a metre away from missus and dog as advised for 7 days. Then at least able to sit in same room for limited time during week two. Weeks 3-6 should be back to normal but we ll just wait and see.
Full Bloods to be taken after 2 then 4 weeks to check on kidney plus bone marrow impact to see if ok to go back for infusion 2 in about 6 weeks. But still awaiting full details of same from Windsor.
All in all whilst I’ve got something to do, eg watching rugby and footie all over weekend, it’s not to bad, and whilst I will no doubt watch a bit a day-time tv later, I hoping to get stuck into my new Sam Warburton book today for a bit of escapism?,
So unless anything untoward crops ups I ll update you all again as applicable.
Keep the Faith
J.
User
Posted 14 Oct 2019 at 17:59

You are going through the mill again stick with it let’s all hope you make good progress hey Wales are through to the quarter finals something to look forward to on the weekend.


keep the faith


very best wishes


R


 

User
Posted 14 Oct 2019 at 19:06
Valleyboy,

1st 2 weeks are the worst when the radioactive substance in your body is doing what it says on the tin.

Week 3 should be fine if my experience is anything to go by.

Regards

Dave
"Incurable cancer does not mean it is untreatable and does not mean it is terminal either"
User
Posted 14 Oct 2019 at 19:28
I hope it all settles down soon, VB
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 14 Oct 2019 at 20:07

Hoping things improve ValleyBoy, keep on posting and living your life xx

User
Posted 25 Oct 2019 at 10:08
Ok. Day 15 post 1st Lutetium 177 treatment, and what a “horse” this is to ride!
Still having cold sweats nightly, necessitating 5 x changes last night?
Also this morning my left eye is well swollen so need to check that out.
Cold sweats mean that my back aches on waking from lying in damp sheets whilst sleeping!
No problems with appitite and drinking plenty of water so hopefully kidney function ok when I get my 1st post treatment blood results today.
However, PSA spiked 200 to 2228, but ALP down over 100 to 188. But I was told that this might happen and that blood test 2 in two weeks time should be more indicative of where we re going with this treatment.
Anyway, I ll sign off for now and update as when I’ve got more info to share.
Keep the Faith
J.
User
Posted 25 Oct 2019 at 10:58
Thanks for the updates

Are the sweats like those associated with anti hormone therapy or "something else" that is associated with the treatment??
User
Posted 25 Oct 2019 at 13:55
Not sure. But they are just like the ones I used to have when I started on hormone treatment, 1st Degaralix then Prostap/3 some 2 1/2 years ago!
Ps
They are a noted side effect of Lu177 treatment. So just gotta go with the flow.
Keep the Faith
J.
User
Posted 25 Oct 2019 at 17:14

As you say your having a rough ride valley boy hope all this settled down for you soon 


keep the faith 


best wishes 


R

User
Posted 25 Oct 2019 at 18:18

Seems lifting you up in prayer is in order.  Will do so and again appreciate you sharing your journey.  


SP, Minnesota, US

 
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