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Salvage radiotherapy

User
Posted 19 Feb 2021 at 10:08

Fantastic news, what a relief for you.  Long may this continue.

Angex 

User
Posted 01 Mar 2021 at 15:33

HI , I'm a member of the community since 2012 I joined in a panic when diagnosed however only posted once or twice. My wife passed away after a battle of ten years with Breast cancer in October last year. Here  I am now 9 years later after having had a Radical Prostatectomy. Having just been told I have a small tumour in the prostate bed. I'm on hormone treatment at the moment and due to begin RT to the prostate bed at the end of next month . Basically I'm looking for advice. The Plumber 

User
Posted 01 Mar 2021 at 16:42

Hi The Plumber, I am really sorry to hear your wife passed away last year. 
Have you had your planning scan for the radiotherapy?

I had a planning scan where I had to drink a fixed amount of water after emptying my bladder. They added three dot tattoos to help the radiologists line me up on the treatment machine.

Not having a prostate makes lining up slightly trickier so I was given a cone CT scan on the treatment machine every day to make sure I was in the right place with the radiologist able to make slight final adjustments before blasting me! 
I also had to use a micro enema for the first ten treatments to get rid of any gas in the bowel. 
I was advised not to use normal shower gel or any creams for the 4 weeks of radiotherapy as these can contain metals which can affect the X-rays as they enter your body.

I was also given a dietary sheet telling me to eat white bread, peel apples etc to reduce fibre during treatment but I believe different centres have different protocols.

The radiotherapy was straightforward, I arrived at least 30 minutes before my appointment time to allow use of the micro enema and empty my bladder.

The team were fantastic. I received 55 Grays over 20 sessions. I did find I got pretty tired at the end of each week but it passed quickly. I remained on hormone therapy for 2 years post radiotherapy.

I hope that helps, all the best with the treatment.

 

 

 

Ido4

User
Posted 01 Mar 2021 at 16:46

The plumber, probably best to start your own thread..

Sounds like good news they have found the recurrence and can treat it..

User
Posted 01 Mar 2021 at 20:07
Thanks for the info I.T. not my best subject . It has taken me long enough to get started here .

Ido4's posts got me thinking this all sounds very familiar . I'm interested to get my head round what I may expect by the way of side effects.

I understand everyone is different however its great to find a place to discuss and learn from people like yourselves who have been through it and or are going through it.

I will have a look at starting my own thread as you suggest.

My planning scan is set for 26/03/21

What are Grays ?

I was working for any Asian gentleman when I discovered I had PC and had to tell him I couldn't finish the work as I had a personal problem I had to deal with. He offered to help if he could. I said I dont think you could help with my particular problem but thanks anyway.

When I had my first consultation he said well Mr T it looks like I will be doing your plumbing work.

I will have a try at a thread thanks for now

User
Posted 02 Mar 2021 at 00:50
Grays are the dose of radiotherapy - so a man might have 37 fractions (sessions) of 2Gy totalling 74Gy or might have 19 or 20 fractions of 3Gy or 3.2Gy or similar.

It sounds like men who have 20 sessions at 3Gy are getting less than their peers who get 37 sessions but research a few years ago showed that fewer sessions at a slightly higher dose was just as successful but with fewer side effects. Oncologists use either your diagnostic data or their personal preference to decide how many Grays to give you over how many fractions

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

 
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