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User

Posted 20 Feb 2017 at 08:02

Hi there.

May I ask a question?

My husband Paco, as I said before, had a magnetic resonance. They said there is a lesion in his prostate. Highly likely to be a malignant tummor. There is a possibility of minimum afectation out his prostate. Nodes, seminal channels and nerves clear. Last PSA 4'2. (Sorry that I don't know the initials in Emglish yet. If I try to use them it might be consfusing or missleading)

My questions is, in case there was any affectation on bones, had it would be seen? I'm baddly scared.

Thanks in advance.

Have a nice monday.

Lola.

User

Posted 20 Feb 2017 at 08:33

Lola,

I'm not an expert but I don't think an MRI will identify potential problems with metastases in bones. In the UK a nuclear medicine bone scan is used to identify potential metastases in the bones.

User

Posted 20 Feb 2017 at 09:30

No Lola, spread to the bones would not show on the scan. But on the basis that he has had two negative biopsies, his PSA goes up as well as down, it is only just above normal and the nodes and seminal vesicles all look clear, the chance of it being in his bones is almost zero.

They would only do a bone scan if PCa is diagnosed and that would be after a biopsy.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 20 Feb 2017 at 09:37

Thanks, Lyn.

It's comfoting that you are always there to give some hel.

I really appreciate it.

Ever thankfull to you.
Lola.

User

Posted 20 Feb 2017 at 20:02

Hi Lola,

Some reasons not to worry.

1. High PSA is caused by many things that are not cancer - PCa.
2. The fact that Paco's PSA has remained steady suggests that it is not cancer.
3. The biopsies have not found any cancer, so highly unlikely that there is any.
4. Many men over 50 have PCa but in most it will not spread.
5. Even if PCa is detected it is quite common for it to be monitored and not treated. This is because the risk of spread is low and treatment has risks.
6. Worry only spoils today and does nothing for tomorrow.

Reading my profile may or may not help but will give you a bit more insight.

Best wishes,

Adrian

User

Posted 20 Feb 2017 at 20:07

You are so nice!

Your posting makes me feel better, although I'm still afraid of cancer existing because of his MR.
The PI RADS is 5.

Thanks a lot for your support!

User

Posted 20 Feb 2017 at 20:37

Wow AfJ - brilliant to see you checking in and very pleased to see you are still below that magic line of 'undetectable'. I hope all is well?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 20 Feb 2017 at 22:42

Hi Lynn, Good to see that you are still helping people with advice. I came on line as I had a message from Richard Blain who had his op before me and is also still free from PCa.

We are two of many who have had this disease and survived, so LOLA even if Paco does have it, life still goes on. I would even argue that diagnosis actually made me appreciate life more and enjoy it to the full.

What doesn't kill you makes you stronger!!!

User

Posted 20 Feb 2017 at 22:55

You are right when you say that Lyn is caring and advising to all of us all the time. It's good to meet people concerned about this bad subject and, despite their past suffering, get the best of their experience to help others.

I was amazed a few days ago when, searching for information and sympathy, I came across this peaceful and helping site.

Thanks to all of you for being here.

I hope your recovery gets on well. Let us know.

Best wishes.

User

Posted 21 Feb 2017 at 15:25

Hi there,

Paco and I are are drivig to Madrid right now. Tomorrow he is seeing the new uro. He will have a look at Paco's background and consequently will do him a targeted biopsy since, as I've repeated to you tiredness, according to his MRI there is st highly suspicious to be PCa.

He had previously made a reservation for lunch at a nice restaurant by the highway. It doesn't seem he is anxious or scary. Otherwise, he deserves the Oscar to best actor.
I am, but this break had been a short of therapy for me, or, is it that I am trying to escape blindfolded?

I needed to share it with you, maybe because of the wine or because of my Latin blood, or just because you, friends, are all my support now. You are the shoulders I lean on.

Tomorrow morning.... I'd rather not think.

We are meeting my daughter and grandchildren and.... We will see tomorrow, and later on.
Of course, all I went is him to be OK, but in case he is not, I need to be strong enough to help him.

I've left behind my English classes these days and ,maybe, for good. So I big your pardon for H mistakes and tid dammed corrector (besides the car moving)

User

Posted 21 Feb 2017 at 15:47

Hey Lola, good to hear that you are both in good spirits today. Enjoy time with your family and good luck for tomorrow.
Make sure you have your questions for the Uro written down so you don't forget anything. Let us know how you get on

User

Posted 21 Feb 2017 at 17:17

Hope it all goes well and that you enjoy the meal and the time with daughters and grandchildren. That's what life's all about!

Take care.

Eleanor

User

Posted 21 Feb 2017 at 18:35

Good luck Lola and Paco, enjoy your family time.

As for your English. I could converse with you if all I had to say was cerveza and Hola! so well done you

We can't control the winds - but we can adjust our sails

User

Posted 22 Feb 2017 at 22:40

Hi , friends.
Just want to tell you that we had our appointment with second uro. Nothing new. Same opinion as the previous uro and as you, those who commented on my subject.

Paco will have biopsy on 7th March, two weeks from now.

I asked the uro what about suspicious PCa having broken the capsule or not. He said it was putting pressure on the capsule, might be a bit out of it. He said not sure, the biobsy and posterior scanning would say something more. (He was reading the MRI we handed on to him, and saw the PI RADS 5) and the report, etc.)

So, no news.

I am exhausted. I need deeply breath and sleep, dogs day in Madrid trying to get all the applications required and signed by doctors, some bitchy receptionist at hospitals, traffic, etc.

Again awaiting on this journey we have just started.

Scary, worried, more calmed down now , maybe because of the tiredness itself.

Thanks to all for being there.
Love,

Lola

User

Posted 23 Feb 2017 at 08:58

Perhaps the second confirmation will have eased your mind a little Lola.

You know that a different doctor has confirmed the first one's opinion.

Try and get some sleep or at least some rest

We can't control the winds - but we can adjust our sails

User

Posted 23 Feb 2017 at 09:08

Yes, it has, but honestly, since Paco's PI RADS is 5, nothing better was expected to be said. He is very likely to have PCa, we have to face that.
Driving back home.
Not only scared , sad an down too.

Thanks for ever saying something to me.

Live,
Lola

User

Posted 24 Feb 2017 at 06:45

It's frustrating that in adition to the anxiety caused by having or supposing you or your loved one to have PCa, you also have to keep in panic whilst awating for biopsies, reports, etc.

My hub biopsy will be on March the 7th.

Back home again for a while.
.
At the time people are looking forward to spring blooming, we are looking at our garden but focusing on fear.

It's not that I am complaining "why him"? Or, "why him twice? His left kidney was removed thirty years ago due to a KCa. But I can't help feeling this way.

Have all of you a nice weekend.

Lola.

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