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The news get worse with each hospital visit

User
Posted 06 Jan 2017 at 00:26
Dear Walter,
My OH is also G9 he was diagnosed last year. It has been one of the hardest years of our lives. He's had his treatments and is now on hormone therapy for three years, now about half way through. We have laughed cried and still do sometimes.
Although he's older than you, we are both young at heart types, love travelling, we've back packed around SE Asia, Greek islands and other places too.
Both of us have lived in different countries.

Our lives have changed, and we are adjusting our nom, I say 'we' as it has been a journey shared one we had no intention of taking.

We are beginning to look forward, we still have times of anger dispair and fear, but they are getting less.
David is beginning to work again, he's a musician, and he's looking at a new project... singing and playing every day.

We are planning our veg garden, we grow all our own veg. I'm beginning to do some more work I'm self employed too, and I've started some art projects.

Hey, we none of us know how long we have, this blasted illness has kicked our arses big time, and made us think.

This forum has give us great support hope and vision.... so many here have given us comfort and knowledge.

Book your trip, dear man, we are going away next week.

This blasted disease can't stop all our fun now can it.

Leila x


User
Posted 06 Jan 2017 at 06:13

"I see in your eyes the same fear that would take the heart of me. A day may come when the courage of men fails, when we forsake our friends and break all bonds of fellowship, but it is not this day. An hour of wolves and shattered shields, when the age of men comes crashing down, but it is not this day! This day we fight!! By all that you hold dear on this good Earth, I bid you stand."


King Aragorn: Battle speech at the Black Gate.

User
Posted 01 Feb 2017 at 21:35

Walter I know how you are felling,


Have a look at my profile


I am from your neck of the woods


left in 72

User
Posted 02 Feb 2017 at 16:50

Dont know if i qualify for this conversation, but it is only my second posting,when i was diagnosed in 2013 with a G7 3+4=7 PT2B psa was 7.4 prostate confined,surgery failed as pathology post op pt3a G9, Joined Radical trial, raidiotherapy 2014, psa post radiotherapy 3.9-6.0-8.2 then almost 10.0, still no sign of spread after scans, started hormone therapy 2015 quickly brought psa down to 0.07 , 0.06 next one 7th Feb, question to anyone out there is would i maybe have had better success with hormone therapy as well as radiotherapy in 2014, i am still very positive but the side effects from the three treatments do not seem to be lessening and now am getting pain twinges in small of back and ribs ,thanks for listening.

User
Posted 03 Feb 2017 at 14:44

Wando


 


we are very similar.  Just before surgery, my PSA was 7.8.  After surgery, I was upgraded tp pT3b and Gleason 9.


I'm currently trying to weigh up my follow on treatments.  My onco is suggesting radiotherapy without hormone therapy.  We'll decide after my April PSA test.


Walter

User
Posted 03 Feb 2017 at 16:38

Hello Wando,

Wondering now whether you would have been better adding HT to the radiotherapy can't turn the clock back so since you are positive maybe let those thoughts go.

There are any number of men on here that say choose your treatment carefully and be happy with what you decided, without looking back.

If you want to get more replies it might be best to re-post your questions under a separate heading, in your own name.

There isn't anything wrong with posting on somebody else's page it's just that sometimes it might get missed and you may wonder whether you are being ignored. You're not - it just might not have been seen

Best Wishes

Sandra

We can't control the winds - but we can adjust our sails
User
Posted 05 Feb 2017 at 12:50

Ulsterman i too have a gleeson score of 9 and t 4 i'm 57 got diagnosed about 5 weeks ago, stay strong mate, i have just had my first chemo it went better than i thought,  I,m sure that we will have good days and bad days but stay strong and you will be fine.


 


Pete 


 


 

User
Posted 05 Feb 2017 at 12:55

Hiya both


 I'm  a new comer to this 58 yrs old   diagnosed 5 weeks ago already had first chemo, gleeson score 9  T4  240 PSA ?  ive got a good family around me and thats important  to me your comments will also help to keep going with the fight, stay strong 


 


 baldyman

 
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