Brachytherapy going forward

User

Posted 26 Sep 2017 at 07:04

Great news John - enjoy that extended holiday!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 26 Sep 2017 at 07:05

We are John. Like you to some extent age (probably) has affected ED but then John is 77 soon so only to be expected.

Other than that, he takes no Tamsulosin and hasn't for a couple of years I think it is now, and doesn't appear to have any problems.

PSA still 0.2 so that's good

We are grateful for what we have

Keep safe, keep well

We can't control the winds - but we can adjust our sails

User

Posted 26 Sep 2017 at 09:45

Hi Lynn,

Thanks for reply wishing you both well,

John.

User

Posted 23 Jan 2018 at 12:18

Hi Guys,

I rang my Macmillan nurse for my latest PSA results today after a six months gap and it has dropped a little to 0.44 and she said it looked good.

I am pleased but don't know how fast it should drop and over what time span, has anybody that had brachytherapy have any comparisons or ideas on time scales etc.

Regards John.

Edited by member 23 Jan 2018 at 12:20 | Reason: Not specified

User

Posted 25 May 2018 at 10:33

Hi All,

Just a small update on my 20th month since Brachytherapy with only a month to the next 6 monthly blood test and oncology meeting. I must say i am still feeling a little nervous about the results and still feel a little anxious about the next PSA level result and I am trying to think of questions i should ask at the meeting as a lot of questions were not answered at previous appointments when i saw other members of the team.

I seem to have been down graded to an Oncology nurse for the next meet so maybe that means they are happy with the PSA drop so far but only time will tell.As to general health i am getting a better nights sleep but can still get up two to three times a night but that used to happen long before my operation not with any urgency but if i wake up i tend to go. As for ED i think we are winning with help from the little blue pill but i think age must come into it at 72 next month.

John.

User

Posted 26 Jun 2018 at 08:53

Hi all

I was 21 months on from my brachytherapy operation yesterday and today i have my six monthly meeting with the Oncology team at Lister hospital and i must say a little nervous about the results but also what questions i should ask the team apart from are we winning.

It seems that i am meeting a member of the team and not the Specialist,should i take this as meaning i am on the mend, lower risk or he has more important people to see.

I will report in later on the results.

John.

User

Posted 28 Jun 2018 at 08:56

Hi PC Family,

Good news from my Oncology nurse my PSA is down to 0.39 and she seems to thinks we are going the right way and has extended my next blood test to January 2019 so maybe i can relax a little.Still have none of the old questions answered so maybe i must concentrate on the future.As for the rest of the body,Bowels ok and regular,waterworks not gushing but not slow but still getting up two to three times a night but with no great urgency, just going helps me to go back to sleep.ED not so bad some erections in mornings but still using the blue pill that are prescribed at four a month for how long i have no idea at the moment.

Good luck Pc buddys,

John.

User

Posted 28 Jun 2018 at 12:29

That all sounds very positive John. Long may it continue like that.

enjoy the summer.

Ido4

User

Posted 28 Jun 2018 at 13:02

Hi Ido4,

Thanks for that I wish you well with your treatment.

John.

User

Posted 30 Jun 2018 at 12:00

Hi John ..so pleased to see your positive progress. Long may it continue

My next PSA measurement is due in about 2 weeks time and I am hoping that it will be lower than the previous one of 3.4 ug/l in April!

Hopefully, I am experiencing the mysterious "flare"?

My current side effects seem to be very similar to yours. 3 to 4 nightly visits to the loo but can always get back to sleep. Little blue pill needed but experiencing dry orgasms?

But looking to the future with confidence.

Regards Tom

User

Posted 01 Jul 2018 at 07:50

Hi Tom,

Thanks for your reply,sounds like you are winning too long may it go on.I must say in general i am feeling a lot better over the last year and less tired and apart from returning from our trip to Spain early last December to sort out an elderly 98 year old mother in law but that is another story all is fine.

Keep in touch with your next results and good luck.

Regards John.

User

Posted 01 Jul 2018 at 08:16

Well done on your results John.

Best Wishes for future success in them

We can't control the winds - but we can adjust our sails

User

Posted 25 Sep 2018 at 13:06

Hi all,

Today I have reached two years from my Brachytherapy operation at Mount Vernon and all is well with my Psa dropping slowly from 2.19 in September 2016 to 0.39 in June 2018.with my next blood test due in January 2019.I still get up a couple of times a night for the toilet but with no great urgency but this is much the same as before my operation.

ED is much the same but i still get four blue pills a month on prescription but it could be age related at 72 and don't expect it to improve much.

Regards John.

User

Posted 24 Dec 2018 at 12:52

Hi Guys & Girls,

I have just got my latest blood test PSA results and the my PSA is down to 0.22 from 0.39 in June 2018 not a bad Christmas present.I was a little worried about this result so got it in before Christmas as the last test had only dropped from 0.44 to 0.39 and i was worrying about a possible bump.

I can know relax until the oncology meeting on the 8th of January and have a few beers and wines.

Wishing all the members and families a peaceful Christmas & New Year and thanks for all your support.

John & Pat.

User

Posted 24 Dec 2018 at 15:12

Great news John and Pat. Have a relaxing Christmas. Best wishes, Ian.

Ido4

User

Posted 24 Dec 2018 at 16:08

Yes great news John and Pat ... Have a great Christmas and New Year.

I have an appointment on 8th Jan at The Christie with my Urologist to discuss the next stage of my journey.

Will post the results when available.

Regards Tom

User

Posted 24 Dec 2018 at 16:19

Great result John, enjoy Christmas!

Barry

User

Posted 08 Jan 2019 at 04:13

Hi campers,

Just had telephone call to cancel my appointment with my oncologist tomorrow and given a new date for next week and at the same time given a new member from the oncology team.Ok my PSA is down and it was good to get the results before Christmas but I do seem to get a few dropped meetings does that mean they are happy with my progress so far or is it i live to near to the hospital.

John.

User

Posted 08 Jan 2019 at 07:18

Sounds more like your onco has left and patients are having to be fitted into other oncos' diaries.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 08 Jan 2019 at 08:18

I had one meeting with a different consultant oncologist last year and one with a registrar before returning to my original consultant. On both occasions my usual consultant was in the clinic. Not sure why.

Hope appointment goes well next week.

Ian

Ido4

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