Anyone been refused nerve sparing?

User

Posted 09 Dec 2016 at 04:40

Hi Walter,

Good luck. No there was never any intention of nerve sparing. I am home now, which is nice, however despite saying they would not send me home until I had performed a bowel movement, they have. I am currently working on that,

I am sure all will go well - see you on the other side.

Mark

User

Posted 09 Dec 2016 at 07:00

Originally Posted by: Online Community Member

Hi Walter,

No there was never any intention of nerve sparing.

Mark

Mark

I was told my op would be NNS and although I was told they were not sparred I do get some stirrings and a about a 70 Per cent swelling without any medication. I do not expect to ever get a natural erection but with chemical and mechanical help I can get a pre op size penis.At 30 months post op things are still slowly improving but as I often say you do not need an erection to have vaginal intercourse, just the right technique a good relationship and double glazing so the neighbours cannot here the noise.

No straining to pass that first motion, another guy on here was taking senna and was still bunged up his GP told him to double the dose. I used senna and movicol, obviously get advice from you GP or Uro Nurse if you have one.

Thanks Chris

User

Posted 09 Dec 2016 at 14:18

Thats good to hear Chris, there is hope for me yet. I must admit I didnt know how I would take nns and still dont because it is such early days. I was thinking of the vacuum pump as somehow the thought of injecting into the shaft of my penis wasnt appealing.

I understand though it is rare to have any erectile function after nns, so in that respect you have been lucky. From your profile though you havent had much luck in other respects. I hope all your problems get fixed.

I havent really tested whether I have any erectile function left, I am still sore from the op and dont fancy an erection while catheterised anyway!

Update on constipation, I had the op wednesday first thing, still havent been Thursday afternoon. Problem for me is that I have always suffered constipation anyway, so this is nothing unusual. I am trying movicol, senna, lactulaose and prune juice!

I think when I finally do go I will have to evacuate the house.

Cheers

Mark

User

Posted 10 Dec 2016 at 00:13

Mark

I hope no one finds this disrespectful - I'm farting away tonight (had surgery today for those who don't know!) so hoping my bowels will move tomorrow. Hope you're sorted soon mate.

Walter

Edited by member 10 Dec 2016 at 01:40 | Reason: Not specified

User

Posted 10 Dec 2016 at 01:36

Mark it would be a b****y miracle for you to get an erection at this point - I think the woman (or man) in your life is safe right now

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 10 Dec 2016 at 06:49

Walter,

Good to hear from you, I trust the op went well! I still havent had a bowel !movement , plenty of farting myself. Three days without going is not unusual for me, the unusual thing is the amount of laxatives my body has managed to resist!

Let us know how you are getting on when you feel up to it?

Mark

Edited by member 10 Dec 2016 at 06:52 | Reason: Not specified

User

Posted 10 Dec 2016 at 10:00

Mark

Just met one of the surgeons - no nerve sparing, but told I would be eligible or penile implants because of my age if all else fails. A robotic willie! What a perk!

Walter

User

Posted 10 Dec 2016 at 11:33

Walter

Robodick - cool, I will have to ask about that one 😃
Sounds like you have come through well especially if you are already enquiring about ED at this stage

Mark

User

Posted 10 Dec 2016 at 13:52

Mark

My catheter is killing me - how's yours?

Robodick - look up penile implants - there's one where they put a pump in your scrotum. Push the button and hey presto. When you've had enough, you deflate yourself. I think I'm entitled to it if the injections don't work.

Walter

User

Posted 10 Dec 2016 at 14:55

Catheter is horrible. When I walk around I shuffle around like a 100 year old, its uncomfortable rather than painful though, a bit sore at the end of my penis at times.

I saw your post on the catheter pain thread, sounds like you are having a really bad time with yours. Hope you get it sorted soon.

I am feeling a lot better all round today, I havent taken any pain killers at all today and I am feeling fairly comfortable, if they can sort your catheter out you should feel a lot better very soon.

My problem is still constipation, I still havent been and I am on 4 different laxatives!

Mark

Edited by member 10 Dec 2016 at 14:56 | Reason: Not specified

User

Posted 10 Dec 2016 at 16:45

Mark

Just to clarify I usually describe myself as "supposedly" NNS. I think logic would say if the nerves have been removed you are unlikely to get an erection or movement. My surgeon said either some of my nerves may have survived and there is a network of nerves that may be making a connection of sorts.

In my opinion think long and hard about implants, I believe it is a one way journey. Give yourself lots of time to recover, Lyn's OH is an example of how long recovery can take.

Thanks Chris

User

Posted 10 Dec 2016 at 16:51

Guys

Some instilagel might help with the soreness at the end of the penis, you can get at most pharmacies. Make sure the catheter is fastened to the leg strap correctly and not pulling or straining.

Thanks Chris

User

Posted 10 Dec 2016 at 16:56

Chris,

Don't worry, it would be a long time before I even considered anything like implants. My first priority is to get continent and test whether there is any erectile function left at all.

I was concerned reading on here about penile shrinkage. At the moment there appears little if any loss of size, but having read some threads on here this could come later. Also, of course, I have no idea how it has affected my erection size.

Mark

User

Posted 10 Dec 2016 at 17:03

Loss of length usually apparent as soon as the swelling goes down and is linked to how much urethra was removed. So if you had a long enlarged prostate of 2" that would have an immediate impact. Some men are lucky to only lose a little bit of urethra or the bladder just settled into a lower position than before.

Loss of girth comes later as the cells die off through lack of oxygen if erections aren't happening.

The pump can help pull the bladder into a lower position and draws oxygen into the cavernous cells to keep them healthy.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

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