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Good news- so far

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User
Posted 26 Feb 2017 at 15:56

Nice one Brian. Just the result everyone wants. Best wishes

If life gives you lemons , then make lemonade

User
Posted 27 Feb 2017 at 02:19
Great news, Brian.

Just the type of news we want to hear.

Good Luck.

Steve

User
Posted 27 Feb 2017 at 11:48
B

Good news hope it continues that way. Be interesting to hear how the trial has gone.

Thanks Chris

User
Posted 27 Feb 2017 at 12:45

Great to read good news.

 

The best for you, Brian.

 

Good luck!!

 

Lola.

User
Posted 28 Feb 2017 at 16:32

Hello again and thank you all for your kindness.

Chris
A quick update on the VANCE01 trial. Whilst at the Churchill Hospital today I discussed progress with one of the leading research nurses. Unfortunately there is nothing they can make public but on the positive side they have not been told to stop their work and the trial has also been extended to men on Active Surveillance as well as those undergoing surgery for localised PC. I will continue to ask at my future follow up appointments.

Lola
I hope that all goes well for you your husband and family in the future.

As for my progress the Prof is very pleased but disappointed that the has been no progress with my erectile function especially as he performed nerve sparring surgery. He is going to refer me to the ED clinic.

Once again thanks to all and best wishes for the future.

Brian.

User
Posted 28 Feb 2017 at 17:18
B

Four months post op is still quite early for ED recovery some guys have taken three years. What do you call the maximum dose of sildenafil ?

As regards the trials I was looking for something instead of RT for recurrence, but there does not seem to be anything.

Thanks Chris

User
Posted 28 Feb 2017 at 19:37

Brian you will get there I hope. Just be patient. Four months is nothing and I'm getting great recovery but only at 18 - 20!months. Well worth waiting for. !!
Chris please research your recurrence and effectiveness of RT. You could just go HT if cure is unlikely etc. So sorry for you especially that this has happened.

If life gives you lemons , then make lemonade

User
Posted 28 Feb 2017 at 22:01

Thanks for the encouragement Chris and Chris. I am by no means down in the dumps, if someone had said I would have made this much progress after 4 months I would have snapped both their hands off. By maximum dose of sildenafil I mean a 100mg tablet, l understand they are supplied as a 25mg,50mg or 100mg dose.

Brian.

User
Posted 28 Feb 2017 at 23:34
B

Is that 100mg sildenafil daily or have you been restricted to 4 or 8 per month.

Thanks Chris

User
Posted 28 Feb 2017 at 23:58

Oh my!!! 100g daily would kill the average bloke after a while!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 01 Mar 2017 at 09:37

Sorry should have made clear it is a maximum prescription of 8 per month.

Brian.

User
Posted 01 Mar 2017 at 16:32
B

About 12 months after a supposedly non nerve sparring RARP and me getting some stirring in my penis,my consultant prescribed daily 100mg sildenafil.It did not give me full tumecence but has helped keep things healthy. It also had a beneficial effect on my incontinence.

I have taken a few breaks from it when having numerous dilatations and Catheters and I do sometimes cut the pills in half to reduce the dose.

Sildenafil do list sudden death as an additional side effect on the package leaflet, but then say it was not possible to determine that the deaths were related to sildenafil.

Let's hope I am not an "average bloke".

Thanks Chris

User
Posted 07 Nov 2017 at 22:21

Hi all.
I must first apologise for not posting on the site for so long. My only excuse and it is a poor one is that I have been trying to find out some information to update you all on the VANCE01 trial that I took part in before my operation in October 16. At a follow up appointment today I was told that the chaps taking part have shown very good tolerance to the trial vaccines and the trials are going very well with some very promising results. The next stage is to open up the trial to those with more advance cancer.
On a personal front my latest PSA result is less than 0.01 and I now only have to go to a follow up and have a PSA test once every 6 months. I still have ED but have had very good results using a 7.5 micro gram injection of Caverject. I have also developed a hernia above the central stomach scar where my prostate was removed. I have an appointment with a surgeon next week.

Good luck to everyone.
Brian.

 
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