Surprised to be here

User

Posted 25 Oct 2016 at 18:43

A lot has happened in a short space of time Walter and the fact that you had no symptoms makes it harder for you to understand why there is the sudden change.

It takes a lot of getting used to so feeling grumpy and out of sorts isn't unusual and tiredness can just be the result of the stress. Are you sleeping OK?

Sandra

******

We can't control the winds - but we can adjust our sails

User

Posted 25 Oct 2016 at 19:38

Thanks Sandra. Yes, I'm sleeping OK. In fact, I'm probably sleeping too much. I'm a teacher, so on half-term. I feel tired and withdrawn but don't think it's because I've got PCa, I think that even though I'm not actively worried, I'm still emotionally drained. Maybe I'm feeling a bit hard done by and need to get my act together. I haven't had a day off work for sickness in over ten years, so this really is bizarre. And now knowing that somewhere in a hospital images are going to be looked at to determine if I have cancer is a trial - waiting is hard.

I think I'm kind of using this forum as a diary to record my actual and emotional journey. Hope no one minds.

Walter

User

Posted 25 Oct 2016 at 20:00

Hello. I thought I would add that my OH had no symptoms either. He went to the GP about something else. Had blood tests done, they also did a PSA test which came back as 3.7. Slightly raised. He had this prostate felt with no abnormalities. MRI showed nothing. Biopsy came back with a Gleason of 3+3
So I think it may be quite common to have no symptoms. I'm sure all the worry is draining you too. I don't think you can help it. Even if you feel that you aren't worrying. Sounds like you have a speedy hospital too which is helpful.
All the best.

User

Posted 25 Oct 2016 at 21:26

"I think I'm kind of using this forum as a diary to record my actual and emotional journey. Hope no one minds."

Of course we don't. We are a sounding board, a listening ear, a kick up the backside sometimes, but most of all supportive because we've all (to some extent) been there, done that and know what it's like.

Please never feel that you don't know where to turn. You found us.

Sandra

*******

We can't control the winds - but we can adjust our sails

User

Posted 28 Oct 2016 at 11:24

A quick update.

I had my mpMRI scan on Tuesday. Got a call from the hospital this morning telling me I have an appointment on 9th November. That's two weeks from the scan. I assume that will be to get the scan results and decide what sort of biopsy is needed, if any? Do you think if they haven't found anything they'll still do the biopsy? I'm 46, no symptoms, PSA 6.6.

Walter

Edited by member 28 Oct 2016 at 15:19 | Reason: Not specified

User

Posted 28 Oct 2016 at 14:58

In many areas, an apparently clear scan would still be followed up with a biopsy - my husband's scan was perfectly normal but the biopsy picked up G7. With a bit of luck, they are planning to do the biopsy on the 9th - did they say anything about it in the phone call?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 28 Oct 2016 at 15:18

Lyn - I seem to be getting very quick service but it's all getting confusing. I am getting phone calls, texts and letters and now have 3 separate appointments coming up in two different hospitals and haven't got a clue what each of them is for. I've phoned the Macmillan Uro-Oncology Clinical Nurse Specialist at the main hospital and the urology waiting list coordinator but had to leave a message. Hopefully someone will call back today. It's just baffling not knowing what each appointment is for, and if one of them is for a biopsy, there are no instructions enclosed. I'm just one of those people who likes to know what's going on.

One thing I can't criticise though is the speed. It's only been two weeks since my GP did the PSA test and I've already had my scan. I think that's pretty impressive.

I haven't had any symptoms and I'm usually as fit as a fiddle. I haven't had a day off sick in over ten years. But this week, lower back pain. I've never had a sore back in my life. Is this a symptom, a coincidence or just me bring paranoid?

Walter

User

Posted 28 Oct 2016 at 16:46

Yes, it's not great when all the appointments come without any explanation. We knew what John was going to be told at his diagnosis appointment because the bone scan apointment arrived a couple of days before - oooops!

The back pain is most likely due to you being tense and/or not sleeping as soundly as usual.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

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