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Choices?

User
Posted 17 Oct 2016 at 18:10

Hi Paul
Yes it happened to me a few time and also a little discharge around the penis end of the catheter, and yes you are never warned to the full extent which is frustrating as forewarned is forearmed.
How long will you keep the bag?
Mine was nearly three weeks (removed today yippee) but am getting incontinence issues which hopefully will not last too long.
I too had open RP but did not know until I woke up post op, hell of a shock but I am sure it was worth it.
Good luck with your recovery
HappyH

User
Posted 17 Oct 2016 at 21:22

Will keep the catheter for 3 weeks comes out on the 24th, hooray, glad you are OK,

Paul

User
Posted 18 Oct 2016 at 05:50

Don't be surprised if you do leak when the catheter is removed. I was a bit shocked especially when the nurse said it was normal and would be ok after a while.

My wife then had to rush off to the local chemist to get incontinent pads and I also purchased some tight underpants, which has helped but it is a bit alarming just how easily and continuously my urine is flowing, just hope I can get it under control. But it is still better without the catheter being attached to me.  

Just another step on the road to full recovery and also makes you understand just how big the full removal is, which is something i don't think I really understood before the op.

I think we have both had very similiar operations and experiences, I am just turned 65 and this has been the first major operation of my life, so it has been a huge shock to me, but having others who have experienced this on this website is such a help.

Good Luck for the 24th

User
Posted 18 Oct 2016 at 06:26

Hi Paul, because my prostate was puuting a squeeze on me and causing chronic retention issues I was only given two choices. Remain on Active Surveillance put up with my existing symptoms that would undoubtedly get worse as my prostate continued to grow or have it removed by robotic surgery whilst I had age on my side to aid my recovery!
I chose to have the surgery which was performed on Monday 10th October!
My only advice it not to have any regrets about your decision and take everyday as it comes. Good luck.

Brian.

User
Posted 18 Oct 2016 at 08:00

I am expecting to leak a lot when the catheter comes out, I already have a supply of pads, going to be expensive I think, yes I think our OPs and recovery are very similar and I am also 65 and this was also my first major OP and only my second in my life, had a hernia OP about 15 years ago,

best wishes

onwards and upwards, one day at a time,


Paul

User
Posted 18 Oct 2016 at 08:07
Think positive mate.. we are all different - but some on here, me included, did not leak a lot and were dry relatively quickly.

KRO...

User
Posted 18 Oct 2016 at 09:51

That would be nice

Paul

User
Posted 18 Oct 2016 at 14:36

My leaking is a lot better today and I seem to be able to pass urine when I feel the need to go and only have a few leakage issues, although there is also some blood discharge, but not sure if that is because I am still very sore where the catheter had been inserted.

Had my first shower today and it was heaven, never thought I miss showering as much as I have done. Drove my car for the first time in three weeks so all progressing nicely. 

Will continue to use pads at night and during the day but hoping the progress continues to be rapid.

Good luck

User
Posted 18 Oct 2016 at 16:12

great news, I hope I get on as well as you when I have my catheter out on Monday,

best wishes

Paul

User
Posted 18 Oct 2016 at 17:43
P

My surgeon is convinced my problems all started from the trauma caused by the nurse swiftly pulling the catheter out when it got stuck. One of my Uro Nurses said when she was on the Urology ward many years ago, if catheters got stuck they made guys walk around until they dropped out.

Thanks Chris

Edited by member 18 Oct 2016 at 17:43  | Reason: Not specified

User
Posted 18 Oct 2016 at 18:19

Ouch!!! I bet that really hurt.

Thankfully mine was a little uncomfortable but not really painful. But then the waterworks started which was a shock, but it does seem to be settling down.

Sorry to hear about your problems Chris I hope you make a speedier recovery from now on

User
Posted 21 Oct 2016 at 16:51

Hi , I'm a bit wound up about the catheter 'event'.....I had a flexible cystoscope once, and I was not impressed to say the least.....especially going to the toilet fir the first time.....it was an experience of pain I do not wish to repeat.....so.....how bad or not is the catheter experience.....just uncomfortable or a real pain?......it sounds all a bit cumbersome and difficult....then again I was wound up about the biopsy and to be honest it was a non event and nothing to it.....Help! Paul.....

User
Posted 21 Oct 2016 at 17:43
Hi Paul

I have to say that I didn't find the catheter to be a problem. Perhaps I was lucky but there was no pain or discomfort from it. We are all different and I guess we all tolerate these things in different ways. Hopefully you'll be fine.

All the best.

Kevan

User
Posted 21 Oct 2016 at 17:46

Hi Paul the catheter was a relief when I had it removed as it did cause discomfort and a bit of pain but nothing you can,t live with and is only in for about two weeks if all goes well ,so stop working yourself up .Andy

Edited by member 21 Oct 2016 at 17:48  | Reason: Not specified

User
Posted 21 Oct 2016 at 17:51
Hello Paul, the catheter experience for me was a non event, it was a nuisance ,no pain, just in the way, especially when having a bath. If you have a shower in your home then it would be much easier to wash.

Going out was fine, the catheter is strapped to your leg just keep an eye on the level, you would need to empty it quite often though, and at night you use a bigger catheter on a little stand and empty it in the morning. The catheter was strapped to my left leg and sleeping on the left side of the bed it was easier at night, be careful, try to sleep on your back or side otherwise you could kink the pipe and stop the flow of urine into the bag.

I had no pain only iritation only where the catheter entered the penis, however keep this clean , when I had a bath at night I made sure I washed the entry point with cotton buds with simple soap.

Hope this is reassuring and calms your fears.

James

User
Posted 21 Oct 2016 at 18:32

Thanks to all for the prompt responses, I hadn't thought about sleeping.....I tend to sleep on my left side....if I lie on my back I just don't go to sleep....so would the bag be best on my right leg?......Paul....

User
Posted 21 Oct 2016 at 19:36
P

Have a look at my post from the 20th August in "treatment experiences" by faffar888 there is quite a comprehensive description of my catheter experiences and care.

I wore pyjama bottoms to save things getting tangled and used an additional strap around the ankle to save the pipe being pulled.

None of my many numerous catheter removals have been painful or even uncomfortable,feels slightly weird, even the trauma caused by the swift removal of the first catheter was not uncomfortable. As others have said it is a non event.

Thanks Chris

Added,I sleep on my left side and had the bag on the left leg.

Edited by member 21 Oct 2016 at 19:38  | Reason: Not specified

User
Posted 21 Oct 2016 at 19:53
Paul,

Your night in hospital after operation with catheter fitted will give you some experience of which side to have catheter strapped, also good tip from colwickchris about pyjama bottoms.

James

 
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