I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

<12

Advanced Local PC so young

User
Posted 26 Aug 2016 at 19:28

Belated congratulations Sebastian on the new addition.

As you say, he'll be a boost to your desire to get a good result.

Very pleased for you and Mrs Sebastian.

Best Wishes

Sandra

*****

We can't control the winds - but we can adjust our sails
User
Posted 26 Aug 2016 at 21:08
Congratulations and thanks for update. I took me about 6 weeks to get back to full energy levels.
User
Posted 26 Aug 2016 at 22:55
Thank You Sandra.

Rob, my step dad also needed 6 weeks, so another two weeks for me then.
User
Posted 30 Aug 2016 at 00:26

Originally Posted by: Online Community Member


You spoke about your step -dad.   Does biological father had/have any PC problem or do you have sons or brothers.  ?   As siblings are proved to have an increased risk.     



Robgsr, this is not quite right. Less than 10% of prostate cancers have a proven genetic link, being associated to the BRCA genes. For everyone else, the research is murky to say the least. There is a known increased risk if a man has a father, uncles, brothers who were diagnosed at a young age - but if a male relative was diagnosed in his late 60s or 70s then there is no evidence that his sons or brothers will be at more risk. Nor is it proven that these risks are genetic - they may just as likely be environmental ... they have usually lived in the same place, drunk the same water, eaten the same food.  


 


To put the stats into perspective, a huge piece of European research (on post-mortem of men that had died from all causes including accidental) showed that 60% of men in their 60s, 70% of men in their 70s and 80% of men in their 80s had prostate cancer, even if they never knew it. If the familial link was as straightforward as a gene, then 100% of men would have PCa by now :-( 

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 30 Aug 2016 at 09:43
The urologist and oncologist said it could be genetic or bad luck :(

A genetic test can be done if asked.
User
Posted 30 Aug 2016 at 14:48
Hi thanks. . A genetic test on the nhs. .I didn't know that. . Regards
User
Posted 30 Aug 2016 at 17:53
Hi Lyn, Yes. A lot more research needed. However the statement I made is 100% correct in my opinion . Ie siblings. It is either right or wrong. There is an increased risk from the research I've read. Also I understand it could be inherited via the x chromosome on the mothers line. I do agree with your statement and not being pedantic.
All the best.. you contribute a great deal to the forum. ..
User
Posted 01 Sep 2016 at 08:46
Not sure if you can do this with NHS. I am a private patient. But I will let you know.

Sebastien
User
Posted 01 Sep 2016 at 12:38

If you have sisters, mother, blood aunt or grandmother who had breast cancer, and/or brother, father, blood uncle or grandfather who had early onset PCa (generally considered for this purpose to be before the age of 60) then you should be able to get genetic testing (BRCA) on the NHS. But you would probably have to go for genetic counselling first as it is important to understand what the implications could be. For example, I had genetic counselling before being tested for a familial brain tumour gene but once it was explained that if I did carry that gene, my children might not be able to get mortgages, life insurance etc I (unsurprisingly) decided not to go ahead.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 04 Sep 2016 at 20:04

Hello Radar


my husband was diagnosed with t3b just over 10 and half years ago (still going strong) his had escaped to the seminals and was told he would not be able to have his prostate removed as even if he did he would still have to go the radiotherapy hormone therapy route the sams as you have. he has been on and off ht since he was first diagnosed, when his psa drops to the almost undetectable he is taken of ht and then when it starts rising to much he is put back on it, so far this seems to be the way to go.


regards barbara.

User
Posted 04 Sep 2016 at 20:10

hi radar, meant to say he was t3b gleason 9.


barbara

User
Posted 04 Sep 2016 at 21:38
Hi Lyn,

I received the letter from my oncolgist, she would like me to do a BRCA.
I will discuss that with her.

Thanks for your advice.

Sebastien
User
Posted 04 Sep 2016 at 21:43
Thanks Barbara, you has just given me more hope...

Best wishes to your husband.

Sebastien
User
Posted 04 Sep 2016 at 21:44
Thanks Barbara, you have just given me more hope...

Best wishes to your husband.

Sebastien
User
Posted 08 Sep 2016 at 15:37
Hi Sebastien

I am just catching up on posts, I was 38 when my OH was diagnosed ( he was 62) and I was 8 months pregnant at the time.

So I understand from your perspective of being a young person with a baby and the different challenges and feelings this involves.

Best wishes

Alison
User
Posted 08 Sep 2016 at 16:43
Hi Alison,

Thank you for your post.

Now I am back at work it's much better.
My colleagues, managers and HR are giving me a lot of support.

I hope your husband is feeling much better too.

All the best.

Sebastien
 
Forum Jump  
<12
©2025 Prostate Cancer UK