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Prostatitis or pelvic radiation disease

User
Posted 18 Nov 2016 at 21:41
Actually. Just looked at the tablets and it says increase to 75mg if symptoms don't stop.
User
Posted 18 Nov 2016 at 22:41

I think your mind is closed so it is a shame you couldn't go to the appointment. He was referred to the pain clinic because they couldn't find anything else wrong with him. He feels it as burning but they don't believe it is burning at all - it is simply the nerves jangling. As they presumably explained, the nerve damage could have been caused by the prostatitis so he is left with the pain even though the infection is long gone. But blocking the pain is the best way of calming the damaged area and giving it a chance to heal.

Even if the instructions say 75mg I would be checking with a chemist. He may not have been warned - or he may have forgotten to tell you - that these meds can have some pretty serious side effects for some people.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 19 Nov 2016 at 06:43
Thanks. The urologist did say there are some tests he wants to do to check why it burns. So I'd have rather he had all the tests first. This medication is very strong. Looks like he will be staying on for a while. Do the drugs heal the nerves then?

Looking at the symptoms for prostatitis and looking on a prostatitis forum my OH has near enough every single symptom. Burning when he wees which extends to up his bottom. Pain when he sits. Pain on ejaculation. Frequent urination. It's all the same symptoms. I will find out if I'm correct when we finally see the urologist for MRI results. But I doubt we will get an appointment for a long while yet. All the urologist was concerned about was the OH's slow flow. He wants to do a TURP but I don't think that is a good idea while the burning is a problem. OH isn't bothered about the flow speed just the burn.

Diet seems to play a big part also. Caffeine flares it up. He bought a Pepsi max a while back and was quite bad for a few days. Spicy food makes it worse too. Also alcohol. So he's been on caffeine free tea and no alcoholic for almost 2 years Again these things irritate prostatitis. But maybe irritates the nerves too.

He won't reduce the medication as he thinks it's great that he is sleeping all night. The next appointment to discuss the medication is mid December and it's a phone consultation so I won't get to hear that either.

We seem to keep getting 4.30pm and 5pm appointments recently at the hospital. So I hope the urologist appointment won't be at that time. Had an appointment myself recently at the same time. One of us has to do the school run.

User
Posted 19 Nov 2016 at 07:16
I just read the leaflet in his tablets. I had looked through it briefly. But didn't read doses. It says the usual dose is 25mg up to 4 times a day. Or may be given once a day with a maximum dose of 150mg so he's only halfway there. Personally I hate any medication. I avoid any at all myself. Obviously sometimes it has to be taken. But if there is another solution I'd rather try that.
User
Posted 19 Nov 2016 at 07:49
Hi sjtb,

I have severe nerve pain in one leg caused by a spinal problem. Do not underestimate the intensity nerve pain can generate. I find it seems more real than normal pain. For 15 years my leg feels as if it is having boiling water poured down the outside.

I used to faint with the pain, and wished I could when I didn't. I used painkillers for several years, Unfortunately the better effect caused me to become sleepy. In the end diclofenac( sp ?) seemed to produce a good compromise. I have learned how to switch the pain off, but that took years. So my advice would be to give the pain clinic a chance.

User
Posted 19 Nov 2016 at 08:53
Thanks. That sounds nasty. Yes my OH says it feels like he's peeing hot glass. He takes a diclofenac each day also. They give him indigestion so he takes an omperazole daily also.
User
Posted 24 Oct 2018 at 21:27

hello...my husband had prostate cancer november 2017..and had brachytherapy...in a month will be a year and he has had all the symptoms your husband has had the whole year..he got diagnosed a few months bavk with prostitis also and they gave him something for it but it hasny helped either..he still has the painful peeing..he has butt pain...your case is 100% like ours..his prostate doctor wont help anymore..referred him to urologist..everyhing exactly like your husband and mine is fed up wih it too...if u find out anyhing please let us know and i will pray for healing for your husband..if u would like to chat my rmail is spanky3970@live.com...please please keep me informed and in touch as i will also..thank you

 
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