Good News and Bad News

User

Posted 17 Aug 2018 at 20:46

Have just read all the posts on your thread here and as someone who is just starting on there journey of PC I can see your held in high regard on here and very understandabley so very sad for the loss of your wife how you have coped with it and your own illness is an inspiration to someone like me

Edited by member 17 Aug 2018 at 20:50 | Reason: sp

User

Posted 18 Aug 2018 at 00:10

Brilliant update Luther - my dad has also met a new partner although I haven’t asked him whether he has introduced her to the caverject yet 😂

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 28 Nov 2018 at 19:40

Ok peeps...

Just a little update from me...

I've recently been transferred into the care of the Specialist Nurses at my local hospital..

For some reason they wanted me to undergo a PSA blood test 3 months after my last consultation with the urologist which was in August 2018.. even though I currently have 6 monthly tests...
I was informed that this was just to get me onto the 'system' ..anyhow.. mine is not to reason why in this case...

My latest PSA was phoned through yesterday and ....it's still stable at < 0.01 ...so very good news for me! ...

My next PSA blood test will be around May / June 2019...which will be 5 years since my surgery... so fingers crossed for that one...

As always, I'm very aware that I'm not out of the woods yet.... but I'm very grateful for 5 years of being cancer free so far..

In the words of my surgeon before my op... " You can choose to do nothing, but you'll be in serious trouble in 4 years if you choose to ignore it"

I'm glad I didn't ignore it https://community.prostatecanceruk.org/Scripts/tinymce/plugins/emoticons/img/smiley-wink.gif

I hope this offers some encouragement to others with a similar clinical staging who have either recently undergone treatment or are about to undergo radical treatment of any kind...

Best Wishes to you all
Luther

User

Posted 28 Nov 2018 at 20:03

Luther,

Thanks for posting your positive update. See that your gleason score was upgraded after surgery...seems quite a common occurrence.

I wish you all the very best.

Neil.

User

Posted 21 Sep 2020 at 18:28

Hello everyone
It's been a while since I last posted...
I do check in from time to time ...but feel I have nothing much to contribute ..so I keep quiet! 😀
Sadly a few well liked and popular contributors have left us I see, and many new members have joined us

This is just an update on my latest PSA test result:
After more than 6 years since my encounter with the robot, I'm pleased to say that my PSA still remains stable at
< 0.01
I'm currently on annual blood tests with just a phone call from a nurse specialist to discuss results and any problems I may have
Life has returned to as near normal as its likely to .... I still suffer with ED but Mr Caverject sorts that problem out for me 😊
I also still have some degree of stress incontinence ...but I've decided to manage that with the help of a penile clamp when out and about
I was offered surgery for an AUS but declined that offer as its easier for me if the external clamp fails to chuck it away and buy a new one 😉
I guess we all see and cope with things in our own way
All in all, I consider myself to be bloody lucky!
Best wishes to you all
Luther

User

Posted 21 Sep 2020 at 21:59

Luther

Great to hear from you and what a brilliant result.

Thanks Chris

User

Posted 21 Sep 2020 at 22:46

Great news Luther x

User

Posted 22 Sep 2020 at 06:10

Lovely to hear from you mate and great result all round essentially.

If life gives you lemons , then make lemonade

User

Posted 22 Sep 2020 at 10:58

Great result Luther.

Ido4

User

Posted 22 Sep 2020 at 11:28

Great news Luther. We need posts like yours during these trying times.

User

Posted 22 Sep 2020 at 12:04

Yes, great news for you Luther. My husband had similar stats to yourself although we know everyone's situation is different. He will be 3 years on from his RARP in November so it gives us hope that just maybe he can remain recurrence free for years to come ( hopefully indefinitely) He only has a very slight leak if he is doing anything extremely strenuous although sadly our sex life is effectively ended. He cannot bring himself to try the injections so I have never pressurised him into it. We still consider ourselves to be lucky that the cancer was found when localised and at the very least it will buy him many years. Here's to your next 6 years being cancer free.

Best Wishes

Ann

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