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So here we are ....

User
Posted 05 Oct 2016 at 06:04

I hope today goes as well as it can Marje.

I do know what hospices are like and my experience is all positive. It seems odd in a way to say that (in my opinion anyway) they are the best place to be at this stage.

Tony will be well cared for as you know and I am sure he will relax and be more positive for you when he no longer has to ask you for help. It will hopefully make this remaining time together more memorable for the right reasons rather than the stress of caring for him at home.

Now you can give him 100% of you without the constant nag of seeing him suffering and struggling and it has to be better for your own health, although I am certain you would have continued at home if that is what Tony said he wanted.

I am thinking of you as I am sure are we all.

****

We can't control the winds - but we can adjust our sails
User
Posted 05 Oct 2016 at 08:27

Marje, you know that I completely understand what you are going through, our journey these last few months have been so similar.

I remember Phil being taken by ambulance, first to hospital and then to the Hospice a week later, knowing that it was probably the last time he would see his home, it's surreal, and it was only a month or so ago.

Once in the Hospice Phil and I knew he was in the right place and not once did he hanker to come home. The care is second to none, things such as bathing, there were always 2 Care Nurses to ensure things were done smoothly, quickly and with minimum discomfort. Phil was in such a lot of pain near the end and it couldn't have been managed at home. The Doctors were round a couple of times a day and you know that any medication required is immediately available.

The end is never easy but I do think it was easier him being in the hospice as we could concentrate on just being together and not getting bogged down in caring/medical duties.

It's heartbreaking. You don't want them to go, but then you do to end the suffering and I know that Phil didn't want to live just confined to a bed and totally reliant upon others.

Phil's funeral is on Friday at Skipton Crematorium, so that is my next focus, and things are all sorted. I'm trying to focus on the positives and coming to terms with living a different life now. I'm only 54 and Phil was 61, so far to young to lose him.

Take care and keep strong.

Glen

x

 

 

User
Posted 05 Oct 2016 at 18:36

Hi piglet
No words just prayers and (( HUGS)) for you both 🙏🏼

The only time you should look back is to see how far you have come
User
Posted 05 Oct 2016 at 21:04
Your pain and bravery is here for all to see Piglet. For what it's worth this is the right decision and I'm so glad it's been made. John has said he wants to go into the hospice when the time comes for the same reasons really, havgin seen how hard it is to look after someone at home these last few weeks (and our situation isn't as bad yet) I doubt I could cope, being honest.

We are all holding you both in our hearts.

With love

Devonmaid xxxxxxx

User
Posted 12 Oct 2016 at 20:49

It was so quick. A week after moving into the hospice, my darling Tony has passed away. It was in the early hours of this mornng and I was with him. His death was utterly peaceful and his pain was well controlled right up to the end. The hospice staff were truly amazing, and the care he - and I - received was loving, patient and tender.
I may post more about this later, but it's been a long day. My two daughters are with me now, and we have spent the evening drinking wine, reminiscing, crying and laughing.
Good night, all my forum friends.
Marje

User
Posted 12 Oct 2016 at 21:03
My thoughts are with you ..... no words are adequate ...you were there xxxx

Leila xx

User
Posted 12 Oct 2016 at 21:05
My sincere condolences, thank you for sharing this sad time.

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 12 Oct 2016 at 21:07
M

So sorry to hear of your loss, please accept my sincere condolences.

Thanks Chris

User
Posted 12 Oct 2016 at 21:19

Sincerest condolences to you and your family

Bri x

User
Posted 12 Oct 2016 at 21:24

love to you and your family x

User
Posted 12 Oct 2016 at 21:37

So very sorry. Love Eleanor

User
Posted 12 Oct 2016 at 21:51
I've followed all your posts, many heartbreaking to read.

So sorry to hear of your loss, I wish you and your family well.

Arthur

User
Posted 12 Oct 2016 at 21:54

I am so very sorry for you and your family. You have put so much into caring for Tony. Now it is time to be kind to yourself.

Take very good care

Big hugs

Rosy xxx 

User
Posted 12 Oct 2016 at 22:19

So sorry to hear this. Take care of yourself.xx

Max

"You can only play the hand you're dealt"

User
Posted 12 Oct 2016 at 22:44

So sorry you have lost Tony to this rotten disease. You knew it was coming but still a shock when it happens so I hope and trust you get good support at this sad time.

Barry
User
Posted 12 Oct 2016 at 23:15
Marje,

So very very sorry to read this.

My sincere condolences to you and your family.

Take care of yourselves.

KRO...

User
Posted 12 Oct 2016 at 23:20
So sorry to read this.

Take care

Linda

User
Posted 13 Oct 2016 at 00:06

Piglet, I am so sorry to read this. You are all in my thoughts and prayers tonight x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 13 Oct 2016 at 00:23
I'm so sorry to hear this, my thoughts are with you at this sad time.

Steve x

User
Posted 13 Oct 2016 at 05:55

:-((
Thoughts are with you. So sorry x

If life gives you lemons , then make lemonade

 
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