I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

<12

From Enza to Cabaxitaxel, an update

Email this conversation Print this conversation
User
Posted 15 Jul 2016 at 21:28

Your post made me laugh out loud - twice!!!

Now you have mentioned the subject of difficult conversations, it may also be time (if you haven't done so already) to apply for the benefits Tony may now be entitled to. The hospice will probably have someone that can advise and help you get all the paperwork sorted.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 16 Jul 2016 at 06:56
P

Sorry to hear you things are not going as you would hope and just to let you know we are thinking of you both.

Thanks Chris

User
Posted 16 Jul 2016 at 08:28

Hi Marje just catching up on your latest news. Despite the efforts of the hospital you are both facing the difficult period where treatment ends and palliative care takes over. Others have said how much you can get from good hospice care and getting medication for pain relief is vital. Hope you can find plenty of times in the coming months to have some good times together, eat cheese and sod the patio. Thinking of you both.

User
Posted 16 Jul 2016 at 21:07
Hi Marje

Just popped in and saw your update and my heart sank into my boots too. There really isn't anything anyone can say to console you both but I just wanted to say that I am thinking of you and hoping that you will both get to enjoy a little fun this summer, you honestly deserve it.

With much love

Devonmaid xxxx

User
Posted 18 Jul 2016 at 16:07

Hi, really sorry to read your update. My OH has just started Cabazataxel so he's half-way through first cycle and I think it's going to be a rough ride. I totally empathise with everything you are going through and send big hugs.

 

Glen

x

User
Posted 18 Jul 2016 at 22:23

I was wondering how you and Phil were getting on, Glen. Tony didn't find the first infusion of Cabazitaxel too bad, no major side effects, but his second dose is due to be six weeks from the first, as his blood counts were too low to have it as scheduled. It is still a risky business, and the dose is going to be reduced this time, for safety's sake - he is much weaker than when he first had chemo 18 months ago. Hope you and Phil are still managing a decent quality of life. Big hugs all round!
Marje

User
Posted 19 Jul 2016 at 06:05
Hi Marje.

The main side effect Phil has was major constipation impacted and laxido is like wallpaper paste so I'm told! 2nd infusion due 29th. As he had 2 units prior to 1st chemo hope boosted blood count. Like your situation though he is a lot weaker this time and gets very tired and worn out and therefore very down. I'll update my thread after chemo 2!!

Take care

Glen

User
Posted 19 Jul 2016 at 10:00

Tony thinks Laxido tastes like gin and tonic! He denies that his sense of taste has been affected, but who knows? The codeine-based painkillers also add to the constipation,but he seems to manage to balance it with the Laxido (so far at least).

User
Posted 21 Jul 2016 at 17:40

Marje (piglet), Glen, Lesley (Harmony) and Max

I'm so sorry to hear your latest updates about Tony, Phil, Bob and Kev. I'm a little behind them but I'm on the same road as your OHs. I hope for them what I hope for myself, that is that there will be good days to counter balance the bad ones before the end comes.

David

User
Posted 21 Jul 2016 at 17:51

I know David and thanks for your kind thoughts. The thing with this disease is that you can never tell how u are going to feel from one day to the next. On the good days you have to take advantage of it to do the things you want to do. As they say "don't put off until tomorrow the things you can do today". Definitely very appropriate where pca is concerned!

Max

"You can only play the hand you're dealt"

User
Posted 21 Jul 2016 at 17:53

Good to hear from you, David, and good that you are dragging your heels a bit in this race to the finish - the race that no one wants to win! Sharing our experiences and good wishes here won't change the outcome, but it can be a great comfort. Your avatar suggests that you're still managing to enjoy the good things of life while you can, and we're still doing the same as far as possible.
Best wishes,
Marje

User
Posted 26 Jul 2016 at 21:30

We saw the oncologist today. I shall start a new thread, as this header no longer applies.
Marje

 
Forum Jump  
<12
Email this conversation Print this conversation

Join the online community now.

Click through to become a member and gain access to support, information and real time replies.




MenuTop ▲
©2025 Prostate Cancer UK