I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

<123>

getting ready

Email this conversation Print this conversation
User
Posted 09 Jul 2016 at 09:03

Yes but Siam only had his catheter removed 4 days ago ... It might be a tad early to start?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 13 Jul 2016 at 10:17

thank you all for taking to reply. Just over a week since catheter removal and still leaking but I think last night was the best night so far so hopefully improving. One thing today is I am seeing blood in my urine. Its not a lot, just pink and only noticed it late yesterday and this morning Not sure if I should go and see doctor or just monitor it.

Edited by member 13 Jul 2016 at 10:18  | Reason: Not specified

User
Posted 13 Jul 2016 at 11:28

I would say just to monitor it for now. Lots of stitching etc. If you are over doing it or straining or overfilling your bladder it can cause tiny tears.
If you start getting pure blood , time to go to A and E
Chris


If life gives you lemons , then make lemonade
User
Posted 19 Jul 2016 at 14:46

I thought things were getting better with the incontinence. Have been using 2 tena pads level 2 in the day and one level 3 at night. Today seems as bad as the first day when the catheter was removed having used 3 pads already and this morning the overnight pad was soaked.This is the first time the over night pad was this wet. Please tell me this is normal and nothing to worry about.

User
Posted 19 Jul 2016 at 16:06
S

Don't start to panic I was originally 99 percent dry after 4 days so not sure what the "norm" is. There could be numerous reasons scab or debris in the sphincter or urethra that is keeping the urethra open. A bit to much activity too soon. Possibly what and when you are drinking. Don't stop drinking, that will not be an overall benefit. Some guys limit what they drink at night.

It is only a couple of weeks so still early days. How wet are your pads in the day and when do you leak.

Thanks Chris
User
Posted 19 Jul 2016 at 17:07

the day pads were not soaked but today they have been.The night pad was never soaked until this morning and I had been to the toilet a couple of times in the night. The leaks are when i move. As long as I could get the toilet within about 30 to 40 seconds there was no major leak. Today I do not have time to make it to the toilet.

Edited by member 19 Jul 2016 at 17:09  | Reason: Not specified

User
Posted 19 Jul 2016 at 17:17

Possible explanations:
- you have reintroduced caffeine too soon
- the bladder is irritated - are you plenty of drinking cranberry juice?
- you are sleeping more heavily as your body starts to heal
- you are overdoing things

My guess would be that all four apply. Your body is having to relearn bladder control, just as it did when you were a toddler. It takes an enormous amount of concentration at this stage, which is very tiring. When you are tired, bladder control falls apart; if you have ever had children you may remember when they were first potty trained - things would be okay as long as you reminded them to go to the loo regularly and even then, if they got engrossed in a toy or a TV programme, big puddles and wet pants. That's where you probably are right now - slow down, cut out the caffeine (or worse) and rest more perhaps!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 23 Jul 2016 at 09:07

as for cranberry juice, do you think it is good to drink as on some websites it says it can make incontinence worse?

User
Posted 23 Jul 2016 at 09:56
S

Although not leaking as much as you in this hot spell of weather I have been drinking alot more fluids including 1.5 litres of coke,coffee and lots of water each day and now only getting minimal leakage.

I think the idea of cranberry juice is to settle any bladder irritation that might be causing the incontinence.

Thanks Chris

User
Posted 24 Jul 2016 at 10:01

well apart from the incontinence so far the process so far has not been as bad as I feared, no pain at all just a little tender at times.The incontinence does get to me at times as I have always been very active and now the more I move the worse the leaks are so I tend to do very little.

Having first post op blood test a week Monday and see the surgeon a week Wednesday so fingers crossed for good news. one question, has anyone any opinion about taking Turmeric tablets? A friend of mine swears by their benefits for all types of health problems including help fighting cancer.

User
Posted 24 Jul 2016 at 10:20

It's only just about 5 weeks post op Siam isn't it. I would think you were still healing


My Husband has turmeric tablets and has done for some time now, ever since we saw it recommended on here.


I also add powdered turmeric to spag bol and curries so he gets a bit extra. Haven't tried to persuade him to do the turmeric drink though!


Does cranberry juice increase incontinence. Well I'm sure I read somewhere that it increases urination so probably would increase incontinence but that has to weighed by the good it is supposed to do.


Good luck Monday Week. I shall be on holiday so unlikely to have wifi to wish you good luck at the time.


Sandra


 


PS. Just had another look at where I saw the bit about cranberry juice so have copied it for you in case it helps


"CRANBERRY JUICE"


How does it work?


People used to think that cranberry worked for urinary tract infections by making the urine acidic and, therefore, unlikely to support the growth of bacteria. But researchers don't believe this explanation any more. They now think that some of the chemicals in cranberries keep bacteria from sticking to the cells that line the urinary tract where they can multiply. Cranberry, however, does not seem to have the ability to release bacteria which are already stuck to these cells. This may explain why cranberry is possibly effective in preventing urinary tract infections, but possibly ineffective in treating them.

Cranberry, as well as many other fruits and vegetables, contains significant amounts of salicylic acid, which is an important ingredient in aspirin. Drinking cranberry juice regularly increases the amount of salicylic acid in the body. Salicylic acid can reduce swelling, prevent blood clots, and can have antitumor effects.


********


 

Edited by member 24 Jul 2016 at 10:39  | Reason: Not specified

We can't control the winds - but we can adjust our sails
User
Posted 24 Jul 2016 at 14:56
Have a look at this thread

http://community.prostatecanceruk.org/posts/t10704-Trevor-and-his-Turmeric#post129265
User
Posted 04 Aug 2016 at 08:25

well had my first blood test results yesterday (just over 6 weeks post op) and PSA read as 0.008 which the doctor said was very, very good for the 1st result so I am happy so far.


 


She also referred me to a therapist to help with the incontinence which is my biggest problem at the moment. This is six seasons of exercises, has anyone done anything like this before and if so what does it consist of?


She also gave me a course of tablets to help me with needing to pee so often.


 


Another test in 3 months so fingers crossed.


 


Thank you to all who have taken time to reply in the past, you have all been a great help.

Edited by member 04 Aug 2016 at 08:26  | Reason: Not specified

User
Posted 05 Aug 2016 at 21:28

S


Good news on the PSA hope it continues that way. I would be interested to know what exercises your therapist gives you to do. 


Thanks Chris

User
Posted 06 Sep 2016 at 19:10

Originally Posted by: Online Community Member


S


Good news on the PSA hope it continues that way. I would be interested to know what exercises your therapist gives you to do. 


Thanks Chris



 


sorry about the delay in replying. Mainly it has been 2 times a week about 40 minutes a time of having all kinds of things stuck up my back passage whilst I constrict my pelvic floor muscles. The main part is electronic  simulation which lasts for about 15 minutes . Also lots of breathing exercises. Not great but I must say that my incontinence has really improved over the past two weeks. I can now go all day and night with only one pad and at night I am completely dry. The only time I leak now is when I stand or move around for a long time but it is nowhere near as bad as before.


 


One problem I have now is a weak urine flow. Should I have this checked out and what could be done to make it better?


 


 

User
Posted 06 Sep 2016 at 19:32
S

Thanks for the reply, anything that works is worth considering. If you have read my profile you will know what caused my slow flow. It is worth getting it checked as weak flow and not voiding the bladder can lead to water infections and UTIs.

What tablets were/ are you on to decrease the frequency as some tablets should not be used if you have a slow flow rate.

In our area the incontinence nurses are able to do a flow test and bladder scan, or the district nurse service can also do it.

Thanks Chris

Edited by member 06 Sep 2016 at 19:34  | Reason: Not specified

User
Posted 04 Nov 2016 at 18:22

had results from 2nd blood test and all OK. I have had a very weak flow since the op so the doctor inserted a thin catheter to see if there was any blockage. She said all seemed fine but there must of been something blocking the pipework as from the next day I am now peeing at full flow. 


 


The joy of being able to do this after 4 months is heavenly http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif


 


Almost completely dry before she used this catheter but now getting a little leakage but hopefully this will get better with time.


 


Next test is after Christmas so hopefully things will remain OK:

Edited by member 04 Nov 2016 at 18:24  | Reason: Not specified

User
Posted 04 Nov 2016 at 19:58
S

Great news on the bloods.

I had some similar experiences where after a camera or the pressure test probes were inserted I would be back to a full flow for a few days, then it would start to drop again. My consultant thought my Clip and then the scar tissue is what made me regain my continence so quickly. Just got a copy of my last clinic vist, the flow rate is reported as 67 mls/ second, it should have read 6-7 mls/ sec.

Thanks Chris
User
Posted 07 Nov 2016 at 18:03

seems to be a lot of misinformation around regarding what is classed as an undetectable PSA level. Any one know the right answer?

User
Posted 07 Nov 2016 at 19:41
S

My understanding is, less than 0.1 is undetectable, I was referred to my consultant when mine breached the threshold of 0.1,but some hospitals do not act until 0.2 is reached.

Thanks Chris
 
Forum Jump  
<123>
Email this conversation Print this conversation

Similar Topics

Getting ready for robotic surgery by Shelle
in Being diagnosed with prostate cancer

Join the online community now.

Click through to become a member and gain access to support, information and real time replies.




MenuTop ▲
©2025 Prostate Cancer UK