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User

Posted 22 Jun 2016 at 19:29

Hi Chris
Thanks for this !! this is just what I was looking for, I will write some of these questions down for tomorrow, He's gonna feel like it's question and answer time by the time I'm finished lol But it's important and I'm sure the consultant will understand our concerns
Thanks once again
Viv

The only time you should look back is to see how far you have come

User

Posted 23 Jun 2016 at 04:44

Hello Vivienne

I just wanted to send good thoughts out to your dad and you.today. My OH had has bone scan last week, is booked in for his MRI on Saturday and we have the app to discuss results and treatment plan on the 30th so we seem to be at similar stages right now. I too came away from the first app feeling annoyed with myself for not getting all the info I needed and the guy we saw was not the greatest communicator and only really responded to questions rather than offer up information, so like you I hope to be more prepared this time so the questions posted will be a great help.

Ithe waiting is so awful isn't it, I don't know about you but my mind just does overtime and a good nights sleep is a thing of the past but as someone else said at least we are close to knowing the full picture and getting the all important treatment plan which from reading a lot of the posts on here will lead us straight into the next phase of decisions and, for me anyway more sleepless nights.

I will be thinking of you today,

User

Posted 23 Jun 2016 at 07:35

Hello Vivienne,

Just to let you know that my thoughts are with you and your family today, my OH was told he at PC in March and we get the results of his MRI tomorrow. So I understand every emotion that you are going through right now. Hope all goes well x

User

Posted 23 Jun 2016 at 12:28

Hi just a little update on my dad

We seen the consultant today for results of his MRI/Bone scans and to discuss dads treatment plan, He told us my dads cancer has not spread (could have cried with relief there and then !!) My dad has opted for surgery which the consultant stated would be non nerve sparing and will also be taking lymph nodes away too, It's the best news we could have been given under the circumstances, Surgery will be within the next six weeks, so we have a little bit of a breather for the time being

Viv x

Can't help feeling a bit guilty writing these positive comments about my dad when others aren't so lucky :-(

The only time you should look back is to see how far you have come

User

Posted 23 Jun 2016 at 12:57

Good news that there is no spread, hope all goes well with the treatment.

Thanks Chris.

User

Posted 23 Jun 2016 at 13:01

"Good" news Viv.

Enjoy the next 6 weeks or so.

Tell dad to start his pelvic floor exercises (Kegal) to strengthen those muscles.

Hope all goes well for him

We can't control the winds - but we can adjust our sails

User

Posted 23 Jun 2016 at 15:42

Viv that is so great. Don't feel guilty. I am keeping everything crossed for my oh results on the 30th - seems ages away though 😱

User

Posted 23 Jun 2016 at 16:05

Good News on no spread Viv..

Now that the treatment plan is known try and enjoy the time beforehand (I went on holiday before my op!) and hope all goes well with your Dad's op.

KRO...

User

Posted 23 Jun 2016 at 16:23

Hi
Thanks everyone for your comments,
Mountain stream I pray you too will have good scan results for your OH I feel for you as the waiting is just awful,
Take care
Xxx

The only time you should look back is to see how far you have come

User

Posted 23 Jun 2016 at 16:33

Hi Lyn

I will be thinking of you and your OH tomorrow and pray you get the news you want to hear

Take care

Viv x

The only time you should look back is to see how far you have come

User

Posted 23 Jun 2016 at 17:44

Hi Viv

Such a relief to have the results as you can then move on to the next phase.Take time to chill as apart from reading up on what to expect there is nothing to be achieved by worrying now.

There are many of us on this site who have had the op and although each experience will be unique we will all be happy to help with any questions you may have.

Today was my last day of salvage RT so I am also feeling pretty good this evening.

Hope you all have a lovely weekend.

Kind regards

Kevan

User

Posted 23 Jun 2016 at 18:10

The best you could have hoped for and nothing to feel guilty about - we all love it when someone gets good news.

It would be great if dad could get away for a holiday now - he may not feel like it for a good few weeks or months after the op. Also, if he is still sexually active, lots of opportunity to do what couples do, but he perhaps wouldn't want to discuss that with you!!! Also, time to start on the shopping list - there are a few threads on here with helpful suggestions but I would start with:

- tracksuit / jogging bottoms with a drawstring waist in a dark colour (M&S make some in navy or black sweatshirt material)
- pyjama bottoms with drawstring waist or loose elastic
- underpants (not boxers) in a size larger than he normally wears
- a bucket to stand the night bag in
- a waterproof sheet for the bed (preferably not PVC - they make a decent one in terry cotton at Dunelm) - or disposable bed pads
- incontinence pads, unless your GP / district nursing team confirm that they will provide these - most seem to rate the Tena for Men as most comfortable and Tesco, Asda etc often do BOGOF. Don't buy the ladies version by mistake - very uncomfortable and all the padding is in the wrong area

Others will come along with their own thoughts on what to buy

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 23 Jun 2016 at 19:15

Thanks everyone for your comments, I will be following each of your journeys with hope for you all,
Thanks Lyn
That list will come in very handy

Think my mum and dad are going to get away from everything for a week or two
I have a family holiday booked abroad with my husband and son smack bang in the middle of the time scale given for my dads op, :-( !!! Not going to even think of what to do about that for a little while
X

The only time you should look back is to see how far you have come

User

Posted 25 Jun 2016 at 20:12

Ooh things progressing a little quicker than expected, The six week wait for dads op has turned into two weeks!! (letter in post today) so the little breather over the summer isn't happening, so straight into the next phase of dads cancer Journey !! we aren't complaining though, The sooner the better, Going to have to get my dad on overtime with his pelvic floor exercises now !! yes I am bossy but only cos I love him, :-)
X

The only time you should look back is to see how far you have come

User

Posted 25 Jun 2016 at 20:34

I can well imagine that your Dad might be feeling a bit relieved that the date has been brought forward as even though the planned break would be welcome, it only human nature to still be on a countdown.

Thinking of you all and I feel confident that the op will be fine.A step at a time following the op and if Dad or any of you have any further questions that we can help with then please say.

Kind regards to all,

Kevan

User

Posted 30 Jun 2016 at 15:03

Good afternoon

My dad has been for his pre op assessment today which also included a treadmill test which my dad did manage (he's a pretty healthy 71 year old)
Dads having his op next Thursday
Was just wondering if anyone has had this op at this age or older please ? I'm starting to worry about him having the op now,
I've gone from praying that the cancer is operable to now worrying about cardiac complications in surgery and not wanting my dad to have the op !! Think I'm loosing the plot at the mo,
Viv x

The only time you should look back is to see how far you have come

User

Posted 30 Jun 2016 at 15:37

Hi Viv
The pre op assessment does exactly what it says on the tin. Many older men are not candidates for surgery because of other health conditions , but your pop has passed with flying colours. You're all bound to have doubts but I'm sure it will all be ok Good luck

If life gives you lemons , then make lemonade

User

Posted 30 Jun 2016 at 15:50

Viv, I'm sure from a pre-op point of view your dad will be fine.

No surgeon is going to risk his reputation operating on a man with other health problems. If dad is deemed fit enough by those who know then relax.

Nag him about the pelvic floor exercises by all means, but try not to fret over the success of the op. I'm sure he will be fine.

We can't control the winds - but we can adjust our sails

User

Posted 30 Jun 2016 at 16:18

Thank you both for helping put my mind at ease, I know I'm looking to much in to things yet again, lol I was never a worrier and was always so optimistic until that ugly C word turned up :-(

What would I do without the fab ppl on this site,
Thx
Viv x

The only time you should look back is to see how far you have come

User

Posted 03 Jul 2016 at 17:12

Hope things go well Thursday, below are links to conversations about pre op shopping lists and post op catheter use.

My number one tip for post op is no straining to pass that first motion, our hospital now gives movicol or senna a few days before the op to keep things lose Anesthetic and tablets can easily cause constipation. Keeping mobile will help but no marathons, I would twist from side to side when sat on the loo and I probably tried to pass a motion a few times before I had any success, remember no straining.

Drinking lots of water is an occupational hazard of prostate removal. Find a suitable drink Dad likes, he is going to be drinking lots of fluid. Hospital water can leave a lot to be desired.

To Dad are you doing your pelvic floor exercises ? I was told no PFE while the catheter is in. There is an android app called prostate aerobics that is a good aid. I have lost faith in PFEs but if you do them and they work it will be a bonus.

Post catheter removal I went to bed with a pad in my underpants and a pair of tenna4 pants over the top, if the tenna4 does not get soiled it can be reused. As I travelled around and stopped in hotels etc it saved any mishaps. There are some tips about catheter straps etc in the links.

Thanks Chris

http://community.prostatecanceruk.org/posts/t11307-Operation-29-Dec#post139160

http://community.prostatecanceruk.org/posts/t11534-Long-term-catheter---any-tips-on-living-with-this

http://community.prostatecanceruk.org/posts/t9992-Awaiting-Robotic-Surgery

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