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My ED journey - next chapter, injections?

User
Posted 10 Jun 2016 at 22:27

Hi Ducati, generally in the UK a man is advised not to use caverject again once he has been to A&E twice with a priapism, especially if it had to be resolved by drawing blood, so protocol must be a little different in the States. In our case, the nurse had already provided J with letters to take to hospital if necessary, so he didn't have the embarrassment of having to explain over and over. We were lucky that the consultant agreed to prescribe the antidote on a private prescription.

Edited by member 11 Jun 2016 at 00:33  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 11 Jun 2016 at 19:24
Having had two close run things, my OH just uses the viridal in the morning. As long as he gets up and about (pun intended) afterwards, it seems to go away of its own accord. It's when he's lying down or sat down that the problems start.

He also takes phenyldrine afterwards. Most supermarkets do a generic 'blocked nose relief'

User
Posted 30 Jun 2016 at 18:20
It was just under 4 weeks ago I was able to administer an injection myself under medical supervision on hospital premises. Today has been the first opportunity to try at home on my own. The delay has been mainly due to the pressures of life I am afraid.

Anyway I managed to do it and I coped! The needle is so fine that surprisingly it doesn't hurt. It's the thought of sticking it down there that is worse. I used the same dose as last time as I thought that as I was at home I would have no delay travelling.

It did produce quite a good result although I think the previous erection was slightly better. I won't go into too much detail but suffice to say my wife and I made a start but I was unable to finish. I think next time I will have to up the dose to see if that will be better.

Side effects have been quite tolerable. I have probably been been over cautious so far but the thought of a trip to A and E fills me with horror. I do though have a letter typed ready just in case.

Another thing I have learned it probably would be better if I had a bit of a shave down there. I must have wasted about 5 minutes trying to find a suitable site and the old todger kept shrinking within himself (probably anxiety). Next time will be a challenge as it will be the left hand side turn and I am not good with by left hand! I would give my right arm to be ambidextrous.

If there is anyone out there considering injections I would say without doubt go for it. It really isn't as bad as it sounds. It has taken me over 3 years to pluck up enough courage and to say that. If you can learn from my mistakes then all the better.

I am still not there yet but I have an option to go to 7.5, then 10. If I am honest the ED is still eating at me so unless a miracle happens it looks like injections are my last resort.

Sending my best wishes to all.

Amended to correct grammar.

Edited by member 30 Jun 2016 at 19:24  | Reason: Not specified

User
Posted 22 Jul 2016 at 10:43
A further opportunity arose today for me to administer another injection.

Once again I coped with the procedures. I increased the dose to the next level but sadly the outcome was just like the last occasion - just not quite enough. Side effects manageable.

However, I think my mistake was that I got down to business too soon. About 30-40 minutes later the erection was much better but I had already lost my opportunity. Whether it would still have worked I do not know but I suppose my anxiety is not helping. Anyway, I mention this so that anyone else going down this path can learn from my mistakes.

I am disappointed of course but I will soldier on. I am not beaten yet. One of these days I will have some good news to report...

Thank you all for your support.

User
Posted 22 Jul 2016 at 12:04

Hi Mr Tweed
Try not to be too despondent. I use a full 40mg dose and still don't have a full erection but normally enough for the job. I am NOWHERE NEAR a dangerous priapism but have pain that's indescribable. I've gone off injections but may be trying something completely new on the 1st Aug with luck. As for timing , you'll just have to tie her down ....
Not literally obviously !!

If life gives you lemons , then make lemonade

User
Posted 22 Jul 2016 at 15:05

Generally, you shouldn't need a time delay between injecting and using - it isn't like the tablets. Nor should anxiety have any effect - the injections are totally independent of emotion. Are you vigorous enough with the rubbing? And are you storing the injections somewhere where they don't get too hot (ie not on the window sill)?

The fact that you are getting a reaction is a great sign - you simply need to find the right dose and get the technique down to a fine art. The people for whom injections don't work tend to have absolutely zilch response so all is looking good for you :-)

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 22 Jul 2016 at 17:22

Originally Posted by: Online Community Member
A further opportunity arose today for me to administer another injection.

However, I think my mistake was that I got down to business too soon. About 30-40 minutes later the erection was much better but I had already lost my opportunity. Whether it would still have worked I do not know but I suppose my anxiety is not helping. Anyway, I mention this so that anyone else going down this path can learn from my mistakes.

Thank you all for your support.

RT

Although I use Muse I have had exactly the same experience as you have had with the injections, the instructions with muse are a thorough 10 second roll between the hands followed by 10 minutes walking round and keeping active. Although the instructions say erection in 5-10 minutes I doubt I will ever see it standing to attention but the swelling is impressive. My own experience with Muse is that stimulation is the key and does give far better results, laying on my back does not get the same results as on top or a standing position. I have had to have cold showers after the event to reduce the swelling. 

Thanks Chris

 

User
Posted 22 Jul 2016 at 21:15
Thank you Chris, Lyn and Chris for encouragement and advice.

Out of Vitaros, Muse and injections there is no doubt the injections have worked the best so far. Not quite enough for full job but getting close. I have stored the drug correctly but agree probably not vigorous enough with rubbing. I will try again in due course.

It is such a shame the Vitaros or Muse were insufficient because I can handle the procedures quite well. I have coped more than I ever expected with the injections but it has been the last resort.

I have coped with the side effects today. No priapism and no pain. Just some discomfort but tolerable, also been very tired.

Another tip - probably best to to leave phone off hook. I wouldn't have had the energy even if there had been time to seize the moment after 30/40 minutes anyway but the phone rang and my wife was on it for ages, lol! It is good I can laugh about this.

I am not despondent yet and will keep trying!

Thank you again.

User
Posted 05 Oct 2016 at 21:01

I just thought I would post my experience with getting from soft to hard and using injections. 3 months after surgery my surgeon finally responded directly to my question " did you manage to spare the nerves at all" with a NO! Up to that point he had always replied with vagaries like to soon to tell if it has worked and initially "that's not a question you should be asking yet"

Anyway once I had the bad news I was at least in a position to stop wasting my time with Viagra and the pump in the hope that life might be discovered in the old man and push for an appointment at the ED clinic.  Unfortunately this took some 4 months to come through, so in the meantime having been advised by my specialist nurse that the first treatment would be Vitaros, I proceeded to order a pack from an internet pharmacy (Yes, I know you have to be very careful! I checked their Pharmacy registration number against the UK database to verify their authenticity first) Well what a let down - literally, a slight swelling followed by an ache and the swelling lasted 20 mins, the ache over 2 hours.

Buying the Vitaros though proved to be the best waste of money ever as when I finally got to see the ED specialist I was able to say that the Vitaros was no good, so with that the specialist said the best thing for you is the needle. At this point I was ushered into the treatment room where thank goodness there was my own specialist nurse moonlighting in the ED clinic. He gave me the necessary advise and then it was down to "now let's see how you cope with a needle" and then horror of horrors the specialist came in saying do you mind if I watch I've never seen how John handles this part of the treatment. A bit surprised I said yes, after all I didn't have much he hadn't seen before.

So, I sat on the chair, pants around ankles with an audience of 3, The nurse, the specialist and my wife. Whilst I was ok with this unfortunately the star of the show got stage fright at this point and tried to disappear into the innermost recesses of my groin (a bit like a frightened snail) So, it was down to me with shaking nervous hand try to coax the little fella to a size where I could push the needle in. I did and I felt proud! It was only a small injection 2.5mg of Caverject which caused a slight rise and proved that I was able to "do the deed" and I was sent on my way with a prescription to try it out in my own time and the instruction to start with smaller doses and increase until I got the desired result.

Well, I did and it works. 10mg does the trick but I accept I will never be back to pre-op performance but, just having the knowledge that I can if we want has helped with the mental loss of worth and manliness that so many men seem to experience.

I now use my pump before injecting as I find that by increasing the size a bit makes it a lot easier to see a good place to inject, it also helps a bit with the overall size as I did lose a bit post op, doing this does increase the chance of a bit more bruising around the injection site but so what? it works for me. Downside is 2 hours plus erections and the aching which everyone seems to describe, my solution 20 minutes on a cross trainer! it usually speeds up the subsidence. I am really interested in the idea of using medication containing pseudoephedrine to reduce the effects and will be giving that a try very soon.

Mike

 

Mike

"We know what we are, but not what we may be."

W Shakespeare.

User
Posted 05 Oct 2016 at 23:13

Great news but now that it is working, you could try dropping back to 7.5mg to see whether you can sustain an erection long enough for the deed but without the 2 hour trauma afterwards!

Usually, when a man has ended up in A&E with priapism they will not prescribe any more Caverject but we were lucky and John's consultant issued a proper antidote - the downside was that we had to get it on a private prescription. Never needed to use it (after the priapism the injections didn't always work very well) but he appreciated the peace of mind of knowing he wouldn't have to go to hospital in the middle of the night again!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 11 Oct 2016 at 22:04

Thanks LynEyre, I haven't been too concerned about a possible trip to A&E, it does seem to subside happily by itself after a couple of hours. I'm more inconvenienced by the discomfort and the darned thing being in the way http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif . I tried with a couple of Sudafed capsules the other night and the time to subsidence was definitely reduced so happy days!

It's funny you suggest going back down to 7.5, it's something we had discussed ourselves. I just don't want to go back and have a potential failure in "live action" so I am considering doing a solo dummy run to see how 7.5 works out.

Mike.

Mike

"We know what we are, but not what we may be."

W Shakespeare.

User
Posted 12 Oct 2016 at 07:31
M

I use muse which I suspect from stories on here is not as intense as caverjet. I would run my penis under cold water to ease the throbbing and reduce the swelling.

Thanks Chris

User
Posted 12 Oct 2016 at 10:31

I'm off to Christies in the middle of November to try caverjet. On one hand, it's exciting to think I might eventually have a usable erection - on the other, well..............

Paul

Stay Calm And Carry On.
User
Posted 12 Oct 2016 at 14:19

P

I know what you mean, please don't be put off by my comments. yes, it's uncomfortable. Yes, changes feeling during "the act" and yes, it aches afterwards but, no way would I want to be without my little stock of caverject! it is helping me in more ways then just the physical, the mental confidence it gives can't be discounted. Like all things following Pca it is just a new normal to be accepted and dealt with.

My personal list of Pro's and Cons of using Caverject:

Pro:

1. I can at long last be intimate with my wife again

2. Unlike before my ca I am now confident that I will stay the course without going limp at some point

3. I no longer have the fear of needles that has plagued my entire life (lets face it, if you can stick one there you can cope with one anywhere)

Con:

1. Limits spontaneity (but see one above so not a problem really)

2. The erection doesn't just "go away" (but see 2 above for the benefit)

3. It aches for a while afterwards (So does going for a long run / swim / cycle ride but I don't see people saying no to any of those things because it aches a bit)

Mike

Mike

"We know what we are, but not what we may be."

W Shakespeare.

User
Posted 12 Oct 2016 at 19:03
Thank you Mike Pencil Case for your contributions to this conversation. I have found your comments most helpful and encouraging.

I am still persisting with the injections and have coped with the procedures more than I ever expected. I was offered these almost 2 years ago but I hesitated and concentrated on Muse and Vitaros (which were both insufficient) instead and I wish I taken up the offer earlier.

I confess that I still get myself a bit nervous with each injection and I tend to make a meal of it but I am determined to make them work - they are my last resort - they have to work!

The maximum dose I have been prescribed is 10. I am confident this will give me that elusive 100%. However, my problem has been actually injecting that amount. Let me explain...

With some recent injections I have noticed an air bubble in the cylinder and for some reason no amount of shaking it seems to make it rise to the top. I then push the plunger up too high to get rid of it but in doing so I have reduced the dose to less than intended. Can anyone give me any tips please? How dangerous exactly is an air bubble? I suspect I am probably being a bit too over cautious and as I said I am making a meal of things.

I would add that anything up to about 8 does give a result (quicker and better than Muse or Vitaros) but not quite enough for full job. I would also add that so far there has been nothing to indicate there would be a priapism.

One of my injections had absolutely no response whatsoever and there were no side effects either. I can only assume it was a dud medicine or perhaps a placebo was slipped in?

On another occasion when I did actually get the right 10 dose for some reason I couldn't press the plunger - it simply wouldn't budge. In my fumbling I withdrew the needle and felt nervous about injecting the same needle twice so I gave up. I just mention this so others can be better prepared and learn from my errors.

Having ED almost 4 years down the line I do get moments of despondency but I haven't given up yet. I have to confess I have lost some confidence performance wise as well as losing some length and width. However, I cannot complain because I am alive and I still have a wonderful wife. I just need to remind myself of life's priorities sometimes.

I joined the forum in March 2013 and am not sure how I would have coped if I hadn't. So thank you all for your help, support and understanding. This is appreciated more than words can say.

Sending my best wishes.

Mr T

User
Posted 12 Oct 2016 at 20:52

Hello friend
Whilst I'm hearing some of your injection probs ( no effect , plunger not moving etc ) , I can't understand the air thing ??!! You point the needle directly upwards after all the drawing and shaking etc and gently push till a few drops come out. All done. Also I assume you using caverject 20 ?? I ended up needing 40mg so moved to Viridal.
If you using 10 of a 20mg injection , don't squirt 10 out first before injecting. Stick the whole thing in and use half. If it won't push then withdraw 4mm of the needle.
I've given up as the afterpain extraordinary but am getting super results now on daily Cialis and regular pump exercise. In two weeks I am taking the latest injection which apparently gives much less after pain. Will keep in touch

Also , you are your own boss. You can alter your dose at your own risk yeh. Live a little. Go 12 or 15 if need be. I didn't react to 10 , and frankly 30 mg more didn't give a linear advantage. But I've never needed hospital.

Edited by member 12 Oct 2016 at 20:57  | Reason: Not specified

If life gives you lemons , then make lemonade

 
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