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Catheter Pain!!

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User

Posted 23 Jun 2018 at 15:33

I came out after a Cystoscopy with a catheter I wasn’t expecting. They found a urethral stricture issue and have dilated it. Burning at the tip whenever I move. This makes my brain think I need to pee.

Never heard of Instillagel before. Just off to the chemist post haste. Hope you guys are right.

Alan

Edited by member 23 Jun 2018 at 15:34 | Reason: Not specified

User

Posted 06 Oct 2018 at 12:12

I’ve been home three days with my leg bag and changed it over today. The one they fitted at the hospital sat on my calf but this one has a shorter tube designed to sit on the thigh. I’m really not getting on with it. It seems to rub the tube against the tip of my penis much more than the one fitted lower down. None of us are experts in these things before going in For surgery!

I think the less rubbing of the tube you can do by whatever method must help.

It‘s heartening to know I’m not alone in finding the experience a bit of a challenge. Looking forward to it coming out.

User

Posted 06 Oct 2018 at 14:14

I had a thigh bag.

I found that the more I strapped the tube to my leg the better it was.

Still a challenge though. How long have you got to wear it. And why have you got it?

User

Posted 06 Oct 2018 at 14:37

Mike

Alan is quite right if you have got the catheter properly secured it should reduce the rubbing. I secure my catheter by putting the rubber part of the strap around the Y section of the catheter,this prevents it being pulled down. Snug fitting underwear will also stop the movement of the catheter against the penis. Go and get some instilagel, it contains antiseptic , anaesthetic and lubrication. Other lubes might work provided you are not allergic to them.

If it works the linked image shows how I secure mine.

https://goo.gl/images/BzytxB

Most pictures show the strap round the tube below the Y , I found that way quite ineffective.

Thanks Chris

User

Posted 06 Oct 2018 at 15:37

Many thanks for the insights. I’ve looked in the bag the hospital gave me and there is one thigh secure adhesive sticker in there. I had the robotic procedure on Tuesday and came home on Thursday. I should have the catheter removed next Thursday. I presume Boots stock instillagel?

User

Posted 06 Oct 2018 at 15:45

A large Boots will stock it.

My catheter was not for RP, it was after a Cystoscopy where they found a stricture.

I had mine in for ten days. Now I have to self catheterise once a week.

User

Posted 06 Oct 2018 at 16:03

Mike

Most pharmacies" should" stock instilagel, it is a standard requirement for users of supra pubic catheters. Only tried the adhesive fasteners once, by coincidence my urology nurse gave me a couple to try this week. They are supposed to last seven days, I suspect shaving a hairy area may be beneficial, but as you are just recovering from surgery you may wish to give it a miss.

Thanks Chris

User

Posted 06 Oct 2018 at 16:11

Thanks everyone, much appreciated.

User

Posted 06 Oct 2018 at 16:28

My straps were elastic with Velcro fasteners.

I think I had a different catheter system altogether.

mine had a nighttime bag or a tap during the daytime.

Thinking about it now, mine was not for temporary incontinence but to keep the Urethra open aftthe stricture has been dilated.

Either way I feel for you and all the advice here is still relevant.

If you keep on posting here and waiting for replies, before you know it will be time to take it out. 😉

User

Posted 26 Dec 2018 at 22:55

Hi, joining the conversation late I know - I am a week post op now and find the catheter pain around the eye of my penis can be debilitating. Having read earlier posts, I got hold of instillagel which has been a lifesaver. Another week to go before mine comes out ( trying not to think about that experience - codeine and instillagel at the ready) but in all honesty until then I am reluctant to move much in order to limit my discomfort. I guess it's just worse for some than others.....

User

Posted 26 Dec 2018 at 23:47

I found it was the rubbing of the tube when walking that was the most uncomfortable. I used some of the spare velcro fastenings to go around the thigh to keep it from rubbing as much.

It’s a relief to have it out so focus on that. Many don’t have any pain and I can tell you from experience if you do feel anthything it is over in seconds.

The first 24 hours can be a bit of a challenge controlling everthing but then it usually starts to settle down.

I hope the discomfort gets better and all the best for the removal.

User

Posted 27 Dec 2018 at 08:33

The secret is to keep it as still as you can.

As already mentioned, I used Velcro straps to keep it in place.

No need to worry about taking it out. It is out in a split second with little or no pain. The relief is immediate. just a little soreness and peeing pain for a short while.

Because of a Stricture I got from radiation damage, I have to self catherterise every so often so I have become quite used to it.

Hang on in there, not long to wait and I guarentee there is nothing to worry about taking it out.

User

Posted 28 Dec 2018 at 11:24

Mark, really don't worry about the removal, I was slightly apprehensive when I went in, but it was so quick and painless, and as said by others, bloody marvellous to not have it in there any more, I will admit to being lucky and not suffering to much for the 14 days it was in, only needed one syringe of instillagel on day 3.

Hope all goes well for you.

And on another note, if anyone wants a nearly full box of instillagel, drop me a note and I'll post it on?

Edited by member 28 Dec 2018 at 11:26 | Reason: Not specified

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