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User
Posted 15 Dec 2016 at 11:44

Well Guys the plot thickens!

Dave attended an appointment on Tuesday this week at the Royal Preston Hospital where he underwent his RT treatment. it was just a follow up etc. They said he was doing really well and were pleased with him. They took a blood test and said they would check his PSA level.

In Dave's wisdom he decided this morning to ring them and get the results, sometimes you have to be careful what you wish for. His PSA has now shot up from 10:5 ( 6h Dec) to 15:00!!!!

AS you can imagine we are now extremely worried. We have spoken to our specialist nurse at the Christie Hospital this morning who has got in touch with our onco, again she has said she is not overly worried ( wish we were as confident) as yes the PSA is a good indicator as to what is going on, however the well being of the patient was also an indicator, and Dave was doing great, working, going to the gym etc and was feeling generally very well.  

However to put our minds at rest she would arrange for a scan just to see what was going on, and to still attend the appointment on the 5th Jan as previously arranged.

So now, we are in a worse position as the PSA has gone up since last week??!!!   We will still get a blood test done on the 30th December and hope and pray that this has gone down, but who knows?

The thing is with all this, you have to be very patient and that's not one of our strong points :(           

Anyway as it goes on I will keep you updated.

Cheers

Amanda

User
Posted 15 Dec 2016 at 12:40

and did you ask about the testosterone?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 15 Dec 2016 at 13:10

Hi Lyn no did not as they were not keen on giving me my PSA over the phone. I will ask the Christie have they done this when I talk to them next

User
Posted 15 Dec 2016 at 13:19

Yes and do your best to persuade the GP nurse to add it to the test on 30th December

Edited by member 15 Dec 2016 at 13:20  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 15 Dec 2016 at 13:39
Lol NO!! It was Dave who spoke to the Secretary at Preston. ... sigh.... oh well just got to be patient now and wait.

:(

User
Posted 15 Dec 2016 at 18:22

Originally Posted by: Online Community Member

Yes and do your best to persuade the GP nurse to add it to the test on 30th December

I don't have a problem getting my Testosterone checked. However, that's because I take direct action (http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif):

1. For the last 2 years my Onco's nurse has given me bloods envelopes to take to my GP's nurse.

2. Those envelopes have the boxes for Renal, Liver, Bone, Urea and FBC checked. The box headed 'List additional tests here' has PSA written in it. I neatly add to that box the word 'Testosterone'.

3. When the results come back I get my GP's receptionist to print them out for me. My testosterone has stayed below 0.7 for a long time and currently is '<0.2'.

Nobody has given me a telling off for doing this although I admit I haven't drawn it to their attention.

User
Posted 20 Dec 2016 at 14:54

It has now been organised to get my testosterone checked when I have my bloods done on the 30th with the PSA test.
Fingers crossed

User
Posted 20 Dec 2016 at 17:24

Hope all goes well ,I actually copied coIU_FC trick and added it to garys blood form which is due beginning of January! Let's hope I don't get rumbled .
Debby

User
Posted 23 Dec 2016 at 08:10

Lucky my GP rang me to see how I was and I asked could he put it on.
Good Luck though
Dave

User
Posted 03 Jan 2017 at 15:04

Happy New Year everyone, hope you all enjoyed yourselves.

 

Well our story continues, Dave's current PSA was 15 and our oncologist advised that Dave have another bone scan to try and find out why it has continued to rise since he has completed all his chemo and RT. The scan took place at The Christie on the 22nd December, and we have an appointment with our onco again on Thursday 6th January to discuss the results. She also advised we have another blood test on the 30th December to see if it has gone down. Well, what do you know...... it hasn't gone down its gone up again!!! now it showing 21.5, testosterone level 0.6.

Any thoughts anyone?

 

So, here we are again continuing to play the waiting game until our appointment on Thursday this week, 2017 hasn't started off as we had hoped.

:(

  
     

         

User
Posted 03 Jan 2017 at 17:47

It is quite confusing when posts are duplicated - I have replied on your other thread AK

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

 
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