I have mixed feelings typing this as I have been away running this weekend and have returned to read so many sad posts bringing tears to my eyes about just how cruel this disease is.
However I was encouraged by another member the other week to post good things here too despite all of the terrible experiences of others to bring enocouragement to others about not giving up until you have no option.
My current position is that I have been on Abirateone since January which seems to be doing its stuff although I await the results of my latest PSA test which I get on Wednesday, fingers crossed.
So today's post is to encourage those who are able to push themselves, I have just completed a 100k ( or 62 mile in old money) off road running race along the ridgeway. It took me just over 13 hours which is an hour faster than last year despite the last 12 months of zoladex and abiriterone so it goes to show there are times with this disease when it really is up to you ( there are of course sadly times when it is not) and I would encourage those newly diagnosed to not give up on anything just because of a rubbish diagnosis, I was diagnosed 20 months ago PSA 342, Gleason 9, T4n1m1a. I have spoken with several oncologists and urologists recently who can not believe how much I have run since diagnosis however we came to a conclusion that it was not I who is special but others who give up so please never give up until the large lady is belting it out.
I have loads of more adventurous running challenges planned and I know at some stage I may have to cancel them indefinitely but for now I am living as much as I can
Thanks for reading
Kev
Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019 |
User
Great post Kev....attitude counts for a lot fighting this insidious disease
User
Kev with an attitude like yours you deserve to be around for the next forty years but anything is better than nothing and flipping heck you are taking life by the horns and riding it.
Long may it continue and I hope your PSA result is a good one
Keep at it strong minded person! Regards Chris/Woody
Life seems different upside down, take another viewpoint
User
Well done Kev.
What an inspiration !
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We can't control the winds - but we can adjust our sails |
User
Hi kev
Truly truly amazing and thank you for posting such an inspirational post. Long may you continue loving life.
Lesley x
User
The power of positive thinking. We all have it, but in some it is locked away from ready use. It does make a difference and if we survivors can banish negative thoughts and go for out goals despite this damned disease, then maybe the medics and their doom-laden Partin table thinking will rethink their approach. Well, done, keV.
User
Well Said Kev,
I will bet when the Grim Reaper smiles on you, you will smile back and walk away!!!!!!!
Barry
Edited by member 17 Jul 2016 at 20:06
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User
Kevin,
I believe that the more we do each day, the better we will feel about ourselves, whatever treatment we are enduring ,is part of coping with this disease.
But your achievements are just amazing and inspiring.
Thanks for sharing your post with us.
John ( who re-stained his 2 sheds today, having put this task off for several months and was mighty pleased with himself for completing this today).
User
Kev
You are an inspiration. What a bloke! Well done and here's to many more runs.
Love
Devonmaid
Edited by member 17 Jul 2016 at 20:51
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User
Amazing, well done Kevin. Keep on running...
All the best,
Arthur
User
Hi Kev,
Congratulations, once again for another great achievement.
You are a hero to me and many others on this site for your courage and determination in everything you do and every challenge you take on.
You help so many others here. Thanks Kev.
Steve
User
Amazing stuff Kev. What an inspiration you are!
User
Kev
As usual you post at the right time for me ie when I'm waning and needing encouragement.
I'm suffering the fatigue and breathlessness from 20 months on HT and Enzalutamide and have reduced my running to spasmodic 4 miles if I'm lucky.
Having read your post I'm going to get out there again and try and get back to my distances.
Thanks so much and I wish you well with your many challenges.
Paul
User
So results of PSA test today, down to 0.28 which is the lowest it has been from the heady heights of 342 20 months ago on diagnosis. A celebratory beer in order me thinks. Next test 2 months, lots of running to be done before then :-) . Never give up my friends.
Kev
Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019 |
User
Kev,
Great news - enjoy that beer !
John
User
What a result! Brilliant!
Arthur
User
Great results Kev... will raise a beer for you tomorrow mate
Bri
User
Hi Kev,
Great PSA result. Well done.
Steve
User
That's fantastic news for you !! And encouraging for others
Viv X
The only time you should look back is to see how far you have come
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User
Kevin,
CONGRATULATIONS on your stunning PSA result. You really do deserve a big celebration after finally seeing that tiny figure.
I just love to see the odds being defied and 'terminal' prognoses proved WRONG. You're becoming very adept at that.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-tongue-out.gif
As always, you are a huge inspiration to us all. THANK YOU.
George
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