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A New Chapter

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User
Posted 17 Aug 2016 at 15:04

Hmmmmm. Can understand your concern since it's risen every time. Easily said but try not to worry too much.

*****

We can't control the winds - but we can adjust our sails
User
Posted 19 Aug 2016 at 14:29

Hi

Still none the wiser why my PSA is still rising.

I spoke to PCUK and the nurse said it was fairly unusual in view of having a negative CT and Bone Scan in June.

I have tried to speak to my cancer support nurses but I'm waiting to hear back from them.  I expect it will be Monday before they respond to my message.

Has anyone else had the same thing happen?  I would really appreciate some advice.  Fuller details are on my previous post.

Thanks

steve 

User
Posted 19 Aug 2016 at 15:19

Hope somebody can help you Steve. it must be very worrying for you.

****

We can't control the winds - but we can adjust our sails
User
Posted 19 Aug 2016 at 15:30
Hi Steve,

Hoping and praying for a positive answer for you.

Best wishes,

Arthur

User
Posted 19 Aug 2016 at 16:40

The rise to 0.07 is still lower than it was in May 2015 and you were on HT then. It may just be your healthy prostate cells recovering - you still have a prostate so you are not really expected to go down to undetectable and then stay there. Look at Ray's profile for reassurance. My guess is that the onco will be more interested in seeing what happens once the HT is out of your system - if it rises rapidly or goes above 2, then there may be some cancer cells left that are too small to see on the scans. Even if that was the case, you know from others here that oncos have very different views about where the threshold is for re-starting HT on a longer-term basis - some say 5, some say 10 and some wait until it gets to 20.

Even if that is what happens to you in the future, this opportunity from September onwards to get your body clear of the chemicals makes sense.

Edited by member 19 Aug 2016 at 16:40  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 19 Aug 2016 at 16:44

Steve.

Your onco is on the ball requesting scans. Most likely PSA too low to show, if there is anything to show, or scan needs a more thorough investigation.

Good luck and my fingers crossed for you its just one of those blip periods I've had

Ray

Edited by member 19 Aug 2016 at 16:46  | Reason: Not specified

User
Posted 20 Aug 2016 at 10:28
Hi,

Thanks for the replies and info.

Lynn, I think the only thing that was bothering me was that I didn't expect the PSA to rise while still on HT. The figure you mentioned from May last year was taken when the RT was still working and the PSA was falling but I didn'the expect it to rise until I stopped HT.

I'm not worried at this stage, just curious as to what's going on.

Have a good weekend.

Steve

Edited by member 20 Aug 2016 at 10:29  | Reason: Not specified

User
Posted 24 Aug 2016 at 17:28
Hi,

The day I've been waiting for has finally arrived. After two years and two months, I ended my Zoladex hormone treatment at 5.20 this afternoon. Just have to wait anything up to a year for it to leave my system.

I'll celebrate with a few beers at our local prostate support group's summer social this evening.

Please to have reached this point, at last.

Steve

Edited by member 24 Aug 2016 at 17:28  | Reason: Not specified

User
Posted 24 Aug 2016 at 17:42


Well done Steve

A milestone indeed. Enjoy that beer or two !

Best Wishes

Sandra

*******

We can't control the winds - but we can adjust our sails
User
Posted 24 Aug 2016 at 17:43

That must be such a good feeling,
Enjoy your night tonight Steve I think you more than deserve a pint or two after all you have been through 🍻🍻🍻
Viv

Edited by member 24 Aug 2016 at 17:44  | Reason: Not specified

The only time you should look back is to see how far you have come
User
Posted 24 Aug 2016 at 18:52
Enjoy your pint

I'll raise a glass for you tonight Steve

Cheers!

🍺🍺

Arthur

Edited by member 25 Aug 2016 at 06:30  | Reason: Not specified

User
Posted 24 Aug 2016 at 18:55

Steve

Good to reach a goal, it has been an eventful couple of years, lets hope the next couple are less eventful.

Thanks Chris

User
Posted 24 Aug 2016 at 19:04

You've been through so much Steve. I'm sure the future will be brighter and more relaxed. All the best

If life gives you lemons , then make lemonade

User
Posted 24 Aug 2016 at 19:43

Enjoy your pint Steve. Nice evening for it.

 

Kevin

User
Posted 24 Aug 2016 at 20:42
Well done Steve...

A pint or two well deserved!

KRO...

User
Posted 25 Aug 2016 at 06:34
Hi Steve at last you have reached your target date. I really hope you had a great evening and had a pint or two with no hangover today 😊
User
Posted 25 Aug 2016 at 07:23

STEVE,
Your inbox is full !!!!

 

Edited by member 25 Aug 2016 at 10:17  | Reason: Not specified

We can't control the winds - but we can adjust our sails
User
Posted 25 Aug 2016 at 23:26
Hi,

Thank you for all your messages.

I had another very special day today as we went toour youngest daughter's school to find out her GCSE results. She did really well. I'm so proud of her achieving outstanding results, especially with all she's had to cope with in the last two years.

Had a good time at our local prostatecancer support group's Summer Social on Wednesday evening, I even won a nice raffle prize which hasn't happened for as least twenty years.

So a pretty special week.

Steve

Edited by member 25 Aug 2016 at 23:53  | Reason: Not specified

User
Posted 26 Aug 2016 at 06:17
Hi Steve, really glad you have had a good week - it really is about time 😊. Lovely news about your daughter. Have a good weekend. Jayne x
User
Posted 26 Aug 2016 at 07:55

Phew ! Glad that worry is over now anyway.

Well done to your daughter. It isn't easy for our children to have to cope with studying at the same time as putting up with the rubbish bits of our lives

*****

We can't control the winds - but we can adjust our sails
 
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