A New Chapter

User

Posted 23 Jun 2018 at 18:12

Results sound positive Steve. Your attitude sounds pretty upbeat also which as we know is half the battle

Happy anniversary it was our 30th on the 18th also

Bri

User

Posted 28 Jun 2018 at 04:39

Just caught up with your post Steve.

Belated Wedding Anniversary wishes to you both.

Excellent news on the PSA front, long may it continue

We can't control the winds - but we can adjust our sails

User

Posted 06 Sep 2018 at 18:07

Hi,

Here we go again.

Latest PSA Test on Tuesday morning, up to 1.30 from previous results in June of 0.775 & 0.925.

I restarted my Zoladex HT implants again in March after my PSA had been doubling every 3 months while not on treatment.

Feeling rather disappointed. I've been through enough.

Steve

User

Posted 06 Sep 2018 at 18:58

Hi Steve,

Sorry to hear of this rise in PSA, hopefully it will stabilise or plateau out.

What’s your oncologist’s view on this?

Keep strong my friend.

Arthur

User

Posted 06 Sep 2018 at 20:33

Sorry to hear about the PSA rise Steve ,

But there is loads in the box yet

keep on top of your Onco

I know that you have been through the mill

Barry

User

Posted 06 Sep 2018 at 21:13

Sorry to read ths Steve. Keep fighting my friend. There are more treatments in the tool box.

Ido4

User

Posted 06 Sep 2018 at 21:28

Sorry to hear your news Steve keep going

User

Posted 06 Sep 2018 at 21:31

I’m so sorry to hear your bad news, Steve. I’m on the (hopefully) “curative RT” path myself (started HT on 17th Aug, RT due to start next Feb). It’s a salutary reminder that it doesn’t always work. I wish you the very best of luck on your future journey.

(Keen photographer myself, using Olympus OM-D E-M1 Mark II)

Chris

User

Posted 06 Sep 2018 at 21:47

Sorry to read your news Steve. As Barry says loads in the box yet.

Keep strong

Ray

User

Posted 07 Sep 2018 at 18:57

Ah Steve, just seen your update. What a b****r for you. You have definitely been through such a lot

Thinking of you and your family my friend. Don't give up yet !!

We can't control the winds - but we can adjust our sails

User

Posted 10 Sep 2018 at 21:58

Thank you, everyone, for your kind replies.

The PSA results did come as a surprise. I just suddenly thought that my journey could be shorter than I had hoped for if my main treatment showed signs of failure so soon.

I needed to let the news sink in and decide what to do for the best. I'm not due to see the oncologist until December and next week I'm should have my next Zoladex implant.

If that's not working for me then I wondered if I should change to Prostap rather then commit myself to 3 more months of Zoladex.

Anyway I've decided to have a testosterone test in the next few days to see what the situation is. Maybe have another PSA test next month just to see how things are going. I know trends are more important than individual tests so I'll see what happens. If it does continue to rise then I feel I should see my oncologist earlier.

I think at this stage, she would say let's see how things go over the next few months.

Steve

Edited by member 10 Sep 2018 at 22:02 | Reason: Spelling

User

Posted 10 Sep 2018 at 22:11

I think another injection and then another blood test is a sensible approach. You may just have had a bad batch last time that didn't last quite long enough.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 10 Sep 2018 at 22:12

Hi Steve have you thought about a psma scan to try and locate the recurrence? If it's still localised you could be a candidate for more local treatment??

User

Posted 18 Sep 2018 at 01:22

Hi,

Just had my testosterone test result come through, which was 0.8.

In June last year, I had a result of 0.3, even though, at that time, I had ended my original hormone treatment nine months before. Does this mean that this time the Zoladex isn't working as well for me? Could this be the reason why my PSA has increased recently?

My next Zoladex implant is due tomorrow morning.

Steve

User

Posted 18 Sep 2018 at 07:27

No - you are very very close to castrate level. It may just be because you are so close to having your next jab.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 30 Oct 2018 at 19:18

Hi,

I had a PSA Test a few days ago to see if the test I had last month was just a "one off". Then the result was that my PSA had risen to 1.30 from 0.75 in mid June and 0.925 at the end of June. This was in spite of restarting my Zoladex treatment again in March when I was told my PCa was incurable as my PSA had been doubling every 10 weeks.

I was hoping that my PSA would fall again but this evening my results show that it's risen again to 1.40. Only a small rise but the trend is still upwards.

I'm not due to see my oncologist until January.

Steve

User

Posted 30 Oct 2018 at 20:09

Hi Steve ,
I know we are all different But have a look at my PSA results and treatment from

15th Nov 2015 0.6,

15th Dec 2015 1.14,

15th Jan 2016 1.2 slowed at last.

22nd Feb 2016 0.9 going down testro 16.04

Appointment at the RM back on six monthly

5th May 2016 PSA 1.11 Testro 16.6

Update on the UCLH ,in London my efforts on getting an AUS fitted takes another step this Friday 22nd May 2016
I go in for another stretch as it is closing up again

27th May 016
Had a stretch at the UCLH , when I came home I went straight into retention cathetering a couple/three times a day

10th August 2016 PSA 1.15 up .04

Oct 2016 1.73 Psa up .6

Nov 2016 1.52 Psa down .21

Jan 2017 1.40 Psa down .12

June 2017 3.2 Psa doubled and a bit

Scan results tomorrow

Had PET/CT Scan results on the 27th July

Opps not so good three hot spots
neck
shoulder
groin

Back on Hormones Prostap

User

Posted 30 Oct 2018 at 23:53

Steve

None of us like to see a PSA increase, no matter how small.

Ulsterman

User

Posted 31 Oct 2018 at 10:59

Hi Steve,

Sorry to hear your PSA has risen again, try to keep positive.

Best wishes

Arthur

User

Posted 31 Oct 2018 at 12:10

Sorry to hear this Steve. Is it worth contacting your specialist nurse or the oncologist‘s secretary to see what their thoughts are?

Ian

Ido4

Notification

Join the online community now.