I'm interested in conversations about and I want to talk about

Know exactly what you want?

Show search

Notification

Error

A New Chapter

Email this conversation Print this conversation

User

Posted 30 Dec 2017 at 14:59

Another runner! I’m also a runner. Ran 2 marathons a week apart at the start of April as training runs for an ultra. Managed around 3.50 on both. Then my “groin strain” was diagnosed as adavance stage PCa widespread through the bones and the pain was caused by stress fractures of the pelvic bone caused by running on cancer weakened bones. Started HT straight away and so far it’s kept the PSA at none registerable levels (although blood tests next week may say otherwise). Took me 2-3 months to get back to running and it’s been so tough without testosterone. I’ve gone from just behind my clubs fast runners to just ahead of the slow ones! Confidence was badly affected and the stress of diagnosis and treatment didn’t help. I ran Manchester Half in October to raise money for Christies and was expecting to come in around 2.15 (1.39 the previous year) but somehow managed 1.56 and was elated. I’ve always loved my running but now I quite often find it soul destroying but I do know that I have to stick at as the exercise helps with the fatigue. How has the PCa impacted on your running?

User

Posted 30 Dec 2017 at 17:20

Good luck for the race Steve. I hope you can avoid going back on HT, keeping everything crossed for you. Ian.

Ido4

User

Posted 31 Dec 2017 at 09:35

Hi Steve
if you do have to go back on hormones don't' think that it will be necessarily for life, my husband has been on and off them for years one time it was only 6 months, as soon as his psa has gone back to almost zero he has been taken off them. He went back on them at the beginning of this year and was told he would be on them for good but this is 11 and half years from when he was diagnosed. his only other treatment was RT.
regards Barbara

User

Posted 01 Jan 2018 at 06:26

Hi,

Thanks for your replies to my messages.

Tony...Having hormone treatment definitely affected my ability to take exercise, especially running. I found it really difficult to cope with the fatigue I was suffering. I'm sure I will find the Reading Half easier to handle than the last time. I was a very active runner at one time but since my cancer diagnosis, my heart attack and ongoing heart problems I have found it so hard to continue exercise like I used to. Good luck in your races, your fitness can only help your treatment.

Barbara...Hormone treatment seems to have worked well for your husband and it would be nice to think that I would be able to enjoy "Hormone Holidays" too, but it took me over a year after stopping HT for the effect of my therapy to wear off. I think that what was disturbing was that my PSA was rising even while under HT. I know it's not the end of the road as far as my treatment goes and I could live as long as your husband but it's more of a feeling that my chance of a cure may have gone forever. I could be on a new journey which may end with my death. I would have liked to have lived to see my grandkids grow up. What's happening now could mean that would never be possible.

Steve

Edited by member 01 Jan 2018 at 06:33 | Reason: Not specified

User

Posted 01 Jan 2018 at 12:39

Good luck with the run Steve and happy new year. Your comments about seeing your Grandchildren grow up certainly resonates with me. I have a 4 year old Grandson that I dote on and found on Xmas day that I have another one due in June. It breaks my heart that I may not see the 4 year old become a teenager or the new one walk/talk etc. I hate this f%%%%%%g disease with such a passion!

User

Posted 13 Feb 2018 at 18:51

Hello Steve,

I'm sorry to hear you're feeling down.Is your PSA currently 2? Why do you believe that you may die? Excuse my naiivity.

Which health condition gives you more worry? For myself, I worry about my heart disease.

With all your problems, I admire your determination to even enter a running race! I can't run 10 yards! The only exercise I can take, is to go out walking, or use my exercise bike.

Keep pestering your oncologist and health professionals. If they give you hormone therapy once more, wouldn't that be a good thing; besides the side effects of course. And don't think that you may not be cured - have you actually been told that?

Frank.

User

Posted 14 Feb 2018 at 10:05

Steve - I got a dog to take out on long walks. Not the same as your runs, but it does get me out of the house. On another note, I'm taking a bit of a career break, so if you'd ever want to meet up for lunch or a dog walk, we're not that far away from each other. PM me if you fancy it.

Ulsterman

User

Posted 15 Feb 2018 at 11:12

just catching up with things, sorry to hear about the rise in PSA. HT is horrible, I suffered mostly with hot flushes rather than fatigue. Fingers crossed for you.

User

Posted 13 Mar 2018 at 14:25

Hi,

Two days away from my next PSA test, results next Tuesday when I see my oncologist at my first appointment since December.

Feeling nervous about the outcome of that. It could be life changing.

Steve

Edited by member 13 Mar 2018 at 14:41 | Reason: Not specified

User

Posted 13 Mar 2018 at 15:28

Best wishes for Tuesday ,
Debby

User

Posted 13 Mar 2018 at 15:32

Steve

Hope all goes well with your appointment.

Thanks Chris

User

Posted 13 Mar 2018 at 15:36

I'm currently on holiday Steve and won't always be able to log on so I'll wish you good luck now in readiness for Tuesday.

We can't control the winds - but we can adjust our sails

User

Posted 13 Mar 2018 at 15:43

Good luck for next week Steve xx

User

Posted 13 Mar 2018 at 15:53

Hope all goes well for your test Steve. Try to stay positive.

I think I seem to follow you - I’ve got my PSA Test next week followed by appointment with oncologist on 22nd

All the best,

Arthur

Edited by member 13 Mar 2018 at 22:37 | Reason: Not specified

User

Posted 13 Mar 2018 at 16:09

Me too Steve. Psa and CT Friday. Full bone scan next Monday then results Fri 23rd. Good luck to us both. My psa expected to be around 24 :-//
It’s the scans I’m worried about as I feel FINE !!!

If life gives you lemons , then make lemonade

User

Posted 13 Mar 2018 at 17:21

I will be thinking about you Steve, hope it’s better news than you expect. I had a full body bone scan Monday 26/2/18 and have a pelvis MRI next Monday to check things are ok.

Nervous about that too.

Ian

Ido4

User

Posted 13 Mar 2018 at 19:32

Good luck Steve

Barry

User

Posted 14 Mar 2018 at 06:01

Wishing you all the best, Steve, take care, Janet

User

Posted 14 Mar 2018 at 15:36

Thank you everyone for your kind messages. They help a lot.

Good Luck to Arthur, Chris and Ian with your upcoming tests and scans.

You are a great group of people.

Steve

User

Posted 14 Mar 2018 at 15:45

Hi,

I was going to have my PSA test tomorrow, Thursday (15th) but suddenly remembered it was "The Ides of March".

Anyone who studied Shakespeare at school would know why I would want to avoid that date. So I'm at the hospital now, waiting for my blood test.

Steve

Edited by member 14 Mar 2018 at 15:49 | Reason: Not specified

Email this conversation Print this conversation

Join the online community now.

Click through to become a member and gain access to support, information and real time replies.