Passed a milestone

User

Posted 09 Jul 2016 at 19:33

Kev what can I say a fellow Southender you are blowing my socks off. Get in there my man fab fab fab. .

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 10 Jul 2016 at 07:08

Hi Kevin

It is great to hear that you are starting a hormone holiday. I am 2 years 4 months into my third hormone holiday and for me each time I start a hormone holiday some of the side effects subside but others, for example, loss of muscle strength and tiredness during physical activity are still lurking in the background and can be a problem. As you will know, everyone is different. and sometimes as you progress through a hormone holiday, or holidays, you are getting older and it can be difficult deciding which problems are residual from HT and which are normal age related problems.

I don’t know your oncologist’s view on a bio chemical relapses and at what level of PSA he would want you back on HT. My clinical oncologist is prepared to let my PSA rise to 10 before thinking about re starting HT and this has worked well for me over the years.

All the best!

Alan

User

Posted 10 Jul 2016 at 08:53

Alan,
To be honest in not expecting a return to the old days but a general lifting of the normal bar would be appreciated.
My onco iscall looking at 10 as the yardstick but that is currently making me feel nervous and I'm looking at a review at around the 5 mark. Unknown territory and new found freedoms I guess. Time will tell.
As my psa was 500 at diagnosis I expect my HT holiday will not be too long, but hey, who knows the future eh?

Hey Julie what can I say, cheers me dear. Hope your socks are recoverable!

Thanks

Kevin

User

Posted 10 Jul 2016 at 14:02

Originally Posted by: Online Community Member

A sort of Yorkshire Praying Mantis :-)

Edited as I spelled Praying wrong and I didn't want jumped on

I think you may have left yourself wide open anyway Chris with the Yorkshire reference lol

Great to hear about the hormone holiday Kev

Bri

User

Posted 10 Jul 2016 at 15:39

Originally Posted by: Online Community Member

A sort of Yorkshire Praying Mantis :-)

Edited as I spelled Praying wrong and I didn't want jumped on

You thought your spelling was the biggest issue??? You took your eye off the ball my friend - I demand an apology for the insult

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 10 Jul 2016 at 18:08

Had-away and sh***te man !! I clear forgot.

If life gives you lemons , then make lemonade

User

Posted 19 Dec 2018 at 11:16

Morning all,

thought as Christmas is almost upon us I'd update my progress.

I made a conscious decision a while back to stop living my life with the PCa monkey on my shoulder. I hit a bad patch of depression a while back which I decided that living with PCa had a large part. I couldn't get rid of the PCa but I could stop living with a constant reminder by reigning in my focus on forums and the like. Apologies to all.

So, after being put on the happy pills and going on sick leave for a while changes at work offered an opportunity for retirement - snatched with both hands.

I'm still not on active treatment. Blood tests every six months, numbers continue to be on the floor. Testosterone is very low normal, not actively addressing this but there is definitely no 'kippling' on the menu ( I thank Allister & George for that superb phrase that can be used in polite company). This is still being put down to residual Zolodex effects, whatever. The boss and I can and are living with it.

I am currently having a gamut of tests relating to my backside (which I now officially disown) Since RT I've suffered from mucus events (now eased) and extreme urgency (countdown clock anyone?). So I've had cameras, balloons & digits inserted in an effort to understand the situation. I think it is nerve damage during RT but we will see.

By the way, if anyone says "you will need to take this picolax" RUN, run to the hills as if the devil is behind you. Which he will be if you take the picolax....

So, all's well at the moment, the clock is now showing 5 plus years and counting.

All the best to all of you and Merry Christmas.

Kevin

User

Posted 19 Dec 2018 at 18:44

Kevin

Can concur on picolax. The chemist who discovered it wrote the book titled "The man who's world fell out of his bottom"

Seasons greetings.

User

Posted 19 Dec 2018 at 19:04

Hi Kevin,

Great to hear from you again.

Good to hear that your PSA is well controlled but a shame that your rear-end is causing problems. I have struggled with mine at times.

Since we were last in touch, my cancer has returned and is now incurable. Not unexpected but I'm OK.

Hope you're enjoying your retirement. Any more tattoos?

Take care.

Steve

User

Posted 20 Dec 2018 at 09:37

Jasper - great book title!

Steve - damn, not the story I hoped to hear mate. Sorry to hear that it's not going too well for you, hopefully there will be plenty of drugs in the cupboard to keep things at bay. Good to hear that you are ok with the diagnosis, not a hard thing to hear.

I view my ongoing backside issues as a minor collateral issue of the RT that gives me hope. I was 'happy' to live with it but the onco suggested things may be able to be improved, so why not?

Yeah, retirement is great. Not enough time in the day to fit in all my geeking activities. Becoming a coder and linux 'expert' to keep the old brain active. Also building stuff as the ideas hit me.

Regarding the tattoos, I _may_ have had the odd extra piece of ink.... Nothing visible when properly dressed though.

Keep well guys

Kevin

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