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Roller coaster Ride

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User
Posted 17 Apr 2017 at 08:01

OH is now on a waiting list for Robotic Surgery (8 weeks), surgeon hopes to do nerve saving on one side and has made no promises on the other, pre-assessment tomorrow. Has started doing his pelvic floor exercises, can anyone recommend an app as he sometimes forgets, he does keep himself quite fit by doing Pilates, swimming and various things at the gym.

Looking for any advice for when OH gets out of the hospital, thanks

User
Posted 17 Apr 2017 at 09:54
L

Prostate aerobics is the app I used, has alarms, variety of routines and audio prompts.

Tips post op, do not get constipated, take it easy,keep mobile but no marathons.

Hope all goes to plan.

Thanks Chris

User
Posted 17 Apr 2017 at 10:28

Hi Lynda

You seem to have things in good order and a strong relationship. Once decision made then issues actually tend to get easier.

- see my profile.    I have a great wife to 'rein' me in from doing too much, post op.    From a man's perspective and only 'guessing' how hubby might be feeling :-

Some tips :  Get him (GP ? )  to sign off / book off 6 weeks recovery ?!   Chill out and enjoy yourselves.  Obviously catheter is in for a min. of 7 days .  I was so so fortunate and dry immediately.   I caught up with gardening and DIY, as we were also moving house,  so we were both pleased. The only main problem I had , as Chris has posted, was major constipation ! I think I should have taken far more laxative, however I  think the aesthetic and pain killers had 'paralysed' the gut, and tummy was well blown up.   I should have seen GP looking back, however I didn't want any bother.  Thankfully just before catheter came out, everything started to move ...  lol ..  

I do joke, however pre op - NHS was excellent. Post op, it's very much on your own from my experience  (apart from the PSA tests). We basically read the release notes and got on with life.    

Post op , is very unpredictable and obviously different for everyone,  tiredness for some reason suddenly creaps up (mentally and physically) and disappears as quick.  No different +2 yrs on, I have learnt to ration and control energy supply.

Also - check out with consulate/GP re. flying, ie pressure changes.  :   DVT  - Although I stayed in just one night , seems standard practise to prescribe self injecting Fragmin (deltaparin), blood thinning.  I was 95% active/ mobile after about a week and actually didn't self inject the full course (naughty naughty) .  Logic being I was walking steadily 2 or 3 miles a day , not sitting around.   I wasn't bothered about self injecting, however I was on zero meds and never keen to use chemicals I don't perceive I needed.  

Just a 'heads up' in case hubby feels like jet setting ..   there maybe will be company Insurance / HR  implications anyway   (I'm assuming he's not self employed).    

All the best for 18th. 

Gordon

Edited by member 17 Apr 2017 at 10:43  | Reason: Not specified

User
Posted 17 Apr 2017 at 12:09

Hi all.

Good luck, Lynda! I hope we both can breathe after de operation.

I have a questions for Gordon.

After op, you stopped gardening or you continued to garden?

Sorry, I can't get the idea in English.

Any more advices for those who are shortly going to theatre. I would appreciate them.

Best wishes,

Lola.

User
Posted 17 Apr 2017 at 15:26
Hi.

For Lola.

I've just finished planting potatoes this morning. So love gardening.

Both vegetable and flowers. I have dug for about 2 hours and clearing weeds. Only about 10c here this morning so comfortable.

At 62. I just tend to pace myself. No problems with any leakages !!

I consider I have been very fortunate and surgeon took great care..

All the best to yourself...

Gordon

User
Posted 17 Apr 2017 at 17:11

Thanks for your reply, Gordon!!

I'm glad to know you are doing so well at the same same I become encouraged. Right now I'm going to tell my OH.

Actually, he was going to dig today in order to plant a nice glycine that I had bought yesterday at the village fair. as we were afraid he couldn't do when back from hospital in Madrid.

Continue to be ok.

Lola.

User
Posted 09 May 2017 at 07:05

Surgery date confirmed in on 30th May, operation on the 31st and hopefully out on the 1st June,

User
Posted 09 May 2017 at 07:21

Good luck to your other half for the 31st. Hope all goes well for him.

We can't control the winds - but we can adjust our sails
User
Posted 10 May 2017 at 16:03
Hi Lynda

Not long now. All the best.

Had 2 year psa last week. . <0.01 . time flies. So fortunate we feel.

Gordon

User
Posted 01 Jun 2017 at 18:44

OH has had his surgery and is now at home, all went well and nerves where saved, doing really well but taken it easy, he's not a fan of the catheter. Just relieved to have him home.

User
Posted 01 Jun 2017 at 19:23

Great news , so pleased for you both. Can't stress enough to make him recover. Not much pain but major op internally. Don't even let him put the bags out !! Best wishes and well done

If life gives you lemons , then make lemonade

User
Posted 01 Jun 2017 at 19:35

Glad that's done and dusted for him .

Now it's "just" the recovery time.

As Chris says please tell your husband to be careful. Healing inside will take a long time and it's easy to over exert yourself after the op partly due to relief that it's all over and partly to prove to yourself that you are strong enough to recover quickly.

It's not a race, he'll do better in the long run if he takes it slow and steady, gradually increasing his activities without exhausting himself.

Best wishes for a speedy recovery

******

We can't control the winds - but we can adjust our sails
User
Posted 01 Jun 2017 at 19:53

Best wishes on OH recovery
Debby

User
Posted 03 Jul 2017 at 15:59

Saw the consultant today and was given the news that the cancer had broken through the prostate, Gleason now (3+4)=7, T3a, nerves saved, no spread to lymph nodes . Waiting for first PSA test after surgery to see if OH will need further treatment. Consultant told us although it had broken through, it was well with the margins that she had removed. Bit shell shocked, but incontinence is good and there is movement on the ED front.

User
Posted 03 Jul 2017 at 17:17

Phew.
That's a bummer. Good luck with the first PSA.

Great news that nerves were spared.

We can't control the winds - but we can adjust our sails
User
Posted 01 May 2018 at 17:02

11 months after OH surgery and PSA is undetectable, ED not where we would like to be so being referred to ED Clinic

User
Posted 09 Oct 2018 at 17:19
Just a wee update,16 months on and PSA is undetectable, still waiting to be referred to the ED Clinic which they are going to chase up, but things have started to get better on that front with the help of meds over the last two months so we are very happy
 
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