Penial shrinkage

User

Posted 13 Apr 2016 at 20:20

Hi John, yes I agree it seems to be avoided and only the mention of loss of libido from having HT but there is no general discussion or even being told what that there might be a long term problem and what to do to prevent it. There is no linking up with the fact that HT treatment and it's side effects need to be dealt with during the treatment and that the concerns from men are as valid as those that have had a RP.

I will keep you posted with PM's John, I was going to let you know but this posting prompted my input.

Best wishes Chris/Woody

Life seems different upside down, take another viewpoint

User

Posted 13 Apr 2016 at 20:35

Chris ,

Yes my GP said that the RT patients she sees are so often overlooked and her RP patients have gold star service for ED in comparism. No one ever spoke to me about ed at all during treatment. I was told about loss of libido etc from HT but that was all. It was only from this site and a RP friend that brought it to my attention.

No mention of atrophy nor the cardio vascular problems it can cause.

I've had several natural erections but short lived - nice though ....

So better late than never. And you've only 12 months to go on HT - 24 in all ? I'm minimum 36 so my need is greater than yours !

Keep well my friend

John

User

Posted 13 Apr 2016 at 20:39

Chris J,

Keep the faith. I follow your progress - you're amazing. !

John

User

Posted 13 Apr 2016 at 21:10

Hi guys.

I am almost 2 years post da Vinci and I am prescribed daily 100 mg sildeafil. For various reasons l am only taking 50 mg a day. I use the pump when I can but never seem to find me time. I do get some tumescence without stimulation. I often see reference to stimulating the penis. I have found stimulating the base of the penis has far more effect on swelling than stimulating the end of the penis.

I have asked this question before and not got an answer, do guys who make a full recovery actually get an erect penis with strength where it joins the body, or in simple terms can they hang their hat on it.

Thanks Chris

User

Posted 13 Apr 2016 at 22:35

I have written on here before about penile health for men on HT - should be easy to find using the search function. Men who lose their libido while on long term HT should be offered a pump and should use it in much the same way as a man post-op, ie at least once each day. Daily Cialis is unlikely to help with atrophy while on HT as its purpose is to draw oxygen to the nerve bundles and on HT it isn't the nerve bundles that are compromised.

CC, I think there are men who can hang their hat on it but they are possibly in the minority. John has in theory made a full recovery but it is shorter and thinner than it was before - some positions are no longer possible for us. But no problem with firmness at the base :-)

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 14 Apr 2016 at 10:35

Lyn, any idea who I should speak to abou a pump? My GP possibly/

Shaun

User

Posted 14 Apr 2016 at 11:19

Depends where you live Shaun - in most areas, there is an ED nurse or andrology clinic so ask your GP for a referral to that. If you are unfortunate enough to live in an area where this service is not offered then yes, ask your GP for a prescription. If s/he is not particularly knowledgeable about HT, penile health and NICE guidelines s/he may struggle to know which pump to prescribe - somewhere on this forum there is a thread with the prescription codes* for the Farnhurst Elite and the Osbon Erecaid Esteem. These seem to be the most popularly prescribed.

If you are really unlucky and live in an area where the CCG has decided not to fund vacuum pumps (despite you being entitled to one under NICE) let me know - we have a spare one (sterilised of course)

*Note added - Osbon Esteem NHS order code is XX-50 and PIP code is 289-0713

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 14 Apr 2016 at 11:29

Thanks Lyn, much appreciated.....had my 2nd chemo yesterday so I am laying low for a few days.....after my 1st I felt so good I was out and about round asda the same night.....got a chest infection that floored me....I will take the info you have given me to my GP in a few days...He is usually very good with stuff so hopefully I can get the little fella his gym kit lol.

Shaun

User

Posted 14 Apr 2016 at 14:13

I had rp and no sparing of nerves, so cannot get erection. Tried pump nut skin on penis was too soft and it caused bleeding and infection. Tried cream, and muse, but not with any success. My wife and I are grateful I was caught before it spread - Gleason 9 stage 3 - but would have liked to continue having full sex, but have elected for whatever we can do. I can mastubate to climax, on a soft penis, but takes a while. Not sure about implants, as I don't really want anymore surgery. I had to have a circumcision to clear up foreskin infection from pump use. Anyone else having this problem? By the way, that the surgeon said about loosing 10 to 15mm off penis length... More like 30 to 40mm!!

User

Posted 14 Apr 2016 at 14:19

Wow that's a lot to lose!

User

Posted 14 Apr 2016 at 15:14

My foreskin is longer than it was but it was caused by the foreskin not being pulled back over the gland(bell end). The foreskin came up like a ballon. The first time was after not pulling it back after a shower, I rang my Uro nurse who told me to put a bag of frozen peas on it until the swelling went down then pull the skin back over the gland. I did ask if they needed to be garden or processed.

The second time was post op were the foreskin and not been put back after an op. I asked the nurse for an ice pack and got crushed ice in a surgical glove.

I think using the sheath system aggravated it when try to pull it off even with the use of adhesive release spray.

I sometimes think i might need a circumcision but other times it is okay. It can have the advantage of catching a small leak, but keeping it clean is a must.

Link to page.

https://books.google.co.uk/books?id=jsU3IsgiaO8C&pg=PA128&lpg=PA128&dq=flaccid+insertion&source=bl&ots=wIalSMDe0_&sig=CYNdFSMWb0UXT03LC-8UbXwkX5I&hl=en&sa=X&ved=0ahUKEwjviM7quI7MAhUB2xoKHTobDrkQ6AEIHDAA#v=onepage&q=flaccid%20insertion&f=false

Above is a link to a page,you may need to copy and paste it into your browser. I would copy and paste the extract but I suspect that may not be allowed.

It describes a technique for having vaginal intercourse with a soft penis. It works for us.

Thanks Chris

Edited by member 14 Apr 2016 at 15:30 | Reason: Not specified

User

Posted 14 Apr 2016 at 15:20

Russell, did anyone ever let you try caverject injections?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

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