Amarone Lovers story so far

User

Posted 08 Mar 2016 at 16:14

Good to hear all went as well as planned. Pleased to hear your three pals escaped unscathed. I know what you mean about the squash.

Now it is time to take it easy but keep mobile.

Thanks Chris

User

Posted 08 Mar 2016 at 16:24

Glad it all went according to plan Al.

You must have looked very sporty in the Z4, even if you didn't feel like it!

We can't control the winds - but we can adjust our sails

User

Posted 08 Mar 2016 at 17:29

Ditch the squash !!
Glad it went well

If life gives you lemons , then make lemonade

User

Posted 08 Mar 2016 at 20:01

Soon as you can have a glass of the good stuff to celebrate.

Take things easy though

User

Posted 08 Mar 2016 at 23:13

Hi Al,

Glad op went well. Don't be tempted to do too much too soon, you have just undergone very major surgery and complete healing takes time.

Barry

User

Posted 09 Mar 2016 at 08:26

It's difficult to get the compromise right between resting and exercising. My mind is quite active and I want to push on and I'm not really one for sitting still (unless there is some good sport on TV ) I think I will just do a little more and rest a little less than the day before-simples!

User

Posted 22 Mar 2016 at 13:47

Good afternoon everyone,

I am feeling rather pleased after yesterday's visit to consultant and thought I would share with you.

Had all 22 staples removed with no fuss or pain.

Had ct scan to check bladder and then had catheter removed, a bit of discomfort but only lasted a few seconds. Wore pad until nighttime, quite a few dribbles, but overnight completely dry (did have to get up 3 times though) and today I'm almost dry even after a gentle walk to village. I know it's early days yet but it's all pointing in the right direction. Still stingy when I pee though.

Good news also from histology-all cancer removed with clear margins, none in lymph nodes or seminal vesicles so staging changed from T3b to T2b. At this point in time I do not need any further treatment, however I will have a super sensitive psa test early May so things may change again.

I mentioned to the consultant that I write on this forum and he was more than happy to be mentioned by name along with the hospital where I had the op. I know there are rules for this so maybe someone could advise. Thanks.

I hope this brings a little help to others and to know that in the doom and gloom of Pca there is a lot of light.

Best wishes to you all

User

Posted 22 Mar 2016 at 14:08

Very good news AL!

Sounds like you are well on the way with your recovery.

Hopefully the PSA test will confirm your histology results.

Best wishes
Luther

User

Posted 22 Mar 2016 at 14:34

Well done Al. So pleased for you.

Just remember to take it easy. Don't get carried away by the excellent results. A little caution now could make all the difference

We can't control the winds - but we can adjust our sails

User

Posted 22 Mar 2016 at 18:03

Really good news especially the change in staging.

User

Posted 22 Mar 2016 at 18:18

Well done to you and of course your medical team. As J said do not get carried away and do too much.

Thanks Chris

User

Posted 22 Mar 2016 at 19:12

fabulous news, a better than expected pathology report, healing well and continence already looking good.

Time to celebrate but do listen to the other Men who have been through this, take it steady.

as far as naming surgeons, hospitals etc then the site has quite a strict rule on this, it is to protect everyone I think including PCUK. You can say which hospital, NHs or Private and refer to the surgeon as Mr P or similar. You can give out a name in context of a published article they have written I believe.

i wish you all the best

User

Posted 22 Mar 2016 at 21:06

Thanks everyone,

I will take all your advice and take it easy, don't want to jeopardise recovery at all.

Mo, As for naming names I don't think I will mention anyone as don't want to drop anyone in it, safer that way.

Cheers

User

Posted 16 May 2016 at 12:28

Hello everyone,

Just thought I would update you all on my latest news. Have just returned from seeing consultant with the result of my first post op. psa test. Level is undetectable at 0.01. I am so relieved and will be celebrating tonight with a curry (after all turmeric is supposed to be good for you!).

So at this point in time no further treatment is required just three monthly psa tests. Only other med is cialis of which I am taking 20mg every three days (since April 1st), seems to be working slowly and as a rough guess may well be half way there😀.

I hope this news helps and gives hope to others. Full info just tap on my profile.

Cheers

User

Posted 16 May 2016 at 13:51

Great news, definitely a day to celebrate!

Always good to see encouraging posts like this

Best wishes,

Arthur

User

Posted 16 May 2016 at 14:24

Great news on a good score !

John

User

Posted 16 May 2016 at 15:59

A/L good score and I bet you are well chuffed about it. I was in Jan this year when given a 0.01 and again last week.

Very good reason to celebrate and like you I have been on Cialis 20 mg for the last month and there are Deffinitely stirrings afoot, I managed to get a pump prescribed as well.

Best wishes for the future low scores

Regards Chris/Woody

Life seems different upside down, take another viewpoint

User

Posted 16 May 2016 at 16:42

Lovely news Amarone Lover. Very pleased for you.

All the best

Sandra

We can't control the winds - but we can adjust our sails

User

Posted 16 May 2016 at 16:42

Thanks Chris/Woody,

Great news for you too. Am seeing my gp tomorrow about more cialis, will enquire about the pump but am quite happy to allow the cialis to do its stuff.

Cheers

User

Posted 16 May 2016 at 18:41

Great news, long may it continue. Remember the pump is another aid to rehabilitation.

Thanks Chris

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